CancerCompass message board discussion started by Jules1970 on 1/5/2006 http://www.cancercompass.com/message-board/message/all,3938,0.htm Sat, 22 Nov 2008 00:00:00 GMT Sat, 22 Nov 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ hi, i have tried to post these details before with some problems, i don't know whether it has been edited or not - anyway, one more try: Prof Peter --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html --- Jules1970 Thu, 05 Jan 2006 00:00:00 GMT This is the most frustrating element to this message board community. The moderators refuse to allow the members of the community to reach out to each other and offer help regarding treatment options. They make it downright impossible to post any form of communication between the posters so we can contact each other outside the forum to discuss the doctors' contact information. I certainly appreciate your help, but unfortunately the contact info has once again been removed. Sparks Fri, 06 Jan 2006 00:00:00 GMT very frustrating and unhelpful i agree, we all need to share resources and help each other through this if we can - if you email me at jules(at)homeybunny(dot)plus(dot)com and mark it 'lodge' i'll open it because i'll know it from you and then i can just mail you the contact info. best wishes, jules Jules1970 Fri, 06 Jan 2006 00:00:00 GMT I've found that there are a couple of families starting their own web site. Hopefully, they'll allow the free flow of information there. They're looking for suggestions and that was the only good one I could think of. Who knows, it just might help. The more information we have the better. Take a look if you'd like it is cholangiocarcinoma(dot)o-r-g. Hopefully that won't be "edited" Noregon Sat, 07 Jan 2006 00:00:00 GMT I have tried e-mailing you, but it keeps getting sent back. Could you confirm the address again? Thanks! Hopeful5 Mon, 09 Jan 2006 00:00:00 GMT email is jules (at) honeybunny (dot) plus (dot) com - i have had to write it in code because otherwise it will be deleted from this board, i will also post the details on the new site mentioned in the posting above - cholangiocarcinoma.org. hope your dad is ok. best wishes jules Jules1970 Tue, 10 Jan 2006 00:00:00 GMT