CancerCompass message board discussion started by Texas,24 on 1/7/2006 http://www.cancercompass.com/message-board/message/all,3955,0.htm Sat, 22 Nov 2008 00:00:00 GMT Sat, 22 Nov 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I am 24 yrs old, and recently diagnosed w/adenocarcinoma of the mouth. I had surgery last month and had the salivary tumor removed, among tonsils, an impacted wisdom tooth (under the tumor) and minor glands in my neck. The neck glands tested positive and I will now have to have radiation treatment. Is anybody going through this? I'd like a companion or just someone to talk to that can inform me and help me get through this. Thanks Texas,24 Sat, 07 Jan 2006 00:00:00 GMT I had an operation on december 19. I know exactly how you feel, however I am taking a proactive postion and changed my diet completely as I have read that most degenarive dideases are very related to nutritional problems. At the moment I eat 80% vegetarian meals an most of these include row vegetables and fruits, I am taking 20% of animal protein, mainly in the cttage cheese since I am following the Cotage chesse and flax seed oil formulation from Joanna Budwig diet. Researching alternative methods have oppened my eyes to the importance of nutrition and lifestyle. I am also taking glyconutrients (Ambrotose from Mannatech and Grape seed extract from Helbal Select. Keeping a positive spirit is important, Proverbs says that "a joyful heart does good as a healer" and that correlates with most mental health views that point out the negative impact of depression on our inmune system. You are a young person which is a great advantage and as read more about alternative methos I strongly feel that replenishing our bodys with the the right nutrients can certainly improve the cancer patiente quality of life and prognosis. I have also read many testimonials on this topic and found much positive input. I hope this helps. Maldon Gonzalez Fri, 20 Jan 2006 00:00:00 GMT yes, i was also dx with parotid adenocarcinoma in 2004. I am 42 years old. I had a mets to lung in late 2005. I have found alternative treatments to be very positive with good results. I am now in remission. Please feel free to email me at --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----. Sherrynfl Tue, 23 May 2006 00:00:00 GMT Dear Sherrynfl, My son in law has salivary gland cancer. It started in his neck area, was misdiagnosed, diagnosed benign etc, till it spend to his back (had taken out one vertabra and is attacking along the spinal cord, and is on other spots in his body. They have done some surgery, and radiation, but now they are doing nothing because of an Insurance probelm. He is a young man, early 40's with a young family. I would love to have you tell us about your alternatives. I hope you are still in remission, and everything is looking good for you. bless you and yours susan Susanlyn Tue, 22 Aug 2006 00:00:00 GMT Hi my name is Robbie, my husband has been diagnoised with mucoepermoid carcinoma cancer, not curable, has spread to his right lung, thoraic area, and more around the neck and lymph nodes.  He has had 3 treatments of chemo this friday.  They have  given him 1 year maybe more or less.   Not sure if this is in the same ballpark as yours but willing to be a friend during this for you.  God Bless RobbieB Thu, 06 Sep 2007 00:00:00 GMT I would definitely like to know more about your alternative treatment. I was diagnosed with adenoid cystic carcinoma of the salivary gland in 2006.  I do have nodes in my lungs and I am pretty tired at times.  I want to improve my diet and it is sometimes hard to know what work best with cancer.   Please share what you know about effective diets.  Thanks you.  Stephen Pruitt Stephen55 Fri, 16 Nov 2007 00:00:00 GMT Could you please tell me the alternative methods you are using.  I have a friend with mucoepidermoid carcinoma of the salivary gland that also metastisised to the lungs.  They don't know what to do for her aside from the chemo she is now getting.  It's apparently a very rare cancer.  I'd be interested in hearing all they've done for you.  Thank you and good luck to you.Patty pattyt Wed, 22 Oct 2008 00:00:00 GMT I am very sorry to hear about your husband.  I have a friend with mucoepidermoid carcinoma that they removed and gave rad. for.  About 3 months after stopping radiation, it started to spread to the lungs.  SHe has 14 nodules on the lungs.  She's receiving chemo, but because this is such a rare cancer, they don't know what to give her aside from what she is getting.  The last PET scan showed the nodules on her lungs enlarged and she has a hot spot under her tongue.  What kind of treatment are you recieving.  I would be interested in hearing.  My friend is doing very well, although her cancer appears to be active.  She hasn't lost any weight, is very active, and looks great.  I hope your husband is  feeling good as well.  If you want I can put you in touch with her so you can share info. Patty pattyt Wed, 22 Oct 2008 00:00:00 GMT