CancerCompass message board discussion started by Pleasehelpme on 1/30/2006 http://www.cancercompass.com/message-board/message/all,4331,0.htm Tue, 07 Oct 2008 00:00:00 GMT Tue, 07 Oct 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My Best friend was diagnosed last week with Angiosarcoma. He is in the hospital now. He is 27. Does anyone know anything positive that has worked for treatment. I have been told there is no cure....any information would help Pleasehelpme Mon, 30 Jan 2006 00:00:00 GMT  On 1/30/2006 Pleasehelpme wrote:My Best friend was diagnosed last week with Angiosarcoma. He is in the hospital now. He is 27. Does anyone know anything positive that has worked for treatment. I have been told there is no cure....any information would helpI know this is an old message, but I came across it when I was researcing angiosarcoma.  My brother in law was diagnosed in October and I can't seem to find anyone to reply to me.  Were you able to find any info?  I know this is a rare cancer and the doctors don't even know what will work. Please reply.  We're desperate! Cindy01 Sun, 07 Jan 2007 00:00:00 GMT  On 1/7/2007 Cindy01 wrote: On 1/30/2006 Pleasehelpme wrote:My Best friend was diagnosed last week with Angiosarcoma. He is in the hospital now. He is 27. Does anyone know anything positive that has worked for treatment. I have been told there is no cure....any information would helpI know this is an old message, but I came across it when I was researcing angiosarcoma.  My brother in law was diagnosed in October and I can't seem to find anyone to reply to me.  Were you able to find any info?  I know this is a rare cancer and the doctors don't even know what will work. Please reply.  We're desperate! I was diagnosed with Angiosarcoma in December 2006. it was discovered when I went in for by bi yearly Pet Scan for my Non Hodgkins Lymphoma.  On January 4, 2007 I underwent an 11 hour surgery to remove the tumor. I was in trhe hospital for two weeks recovering from the operation and am still recovering at home.  Please feel free to contact me if you have any questions. LarryT  Larryt Sat, 17 Feb 2007 00:00:00 GMT  On 2/17/2007 Larryt wrote: On 1/7/2007 Cindy01 wrote: On 1/30/2006 Pleasehelpme wrote:My Best friend was diagnosed last week with Angiosarcoma. He is in the hospital now. He is 27. Does anyone know anything positive that has worked for treatment. I have been told there is no cure....any information would helpI know this is an old message, but I came across it when I was researcing angiosarcoma.  My brother in law was diagnosed in October and I can't seem to find anyone to reply to me.  Were you able to find any info?  I know this is a rare cancer and the doctors don't even know what will work. Please reply.  We're desperate! I was diagnosed with Angiosarcoma in December 2006. it was discovered when I went in for by bi yearly Pet Scan for my Non Hodgkins Lymphoma.  On January 4, 2007 I underwent an 11 hour surgery to remove the tumor. I was in trhe hospital for two weeks recovering from the operation and am still recovering at home.  Please feel free to contact me if you have any questions. LarryT  Dear all,My 37year old brother was diognosed with Angiosarcoma last week.  We are in downward spiral.  We will be starting chemo next week with most likely toxicol and radiation.  We have consulted Sloan Kettering and MD Anderson.We are scared to death and the prgnosis is not real good. I will let you know how it works, he actually does cancer research for a career and we have some great oncologist and access to the best.Has anyone had any better experiences with this?       Nccpa2003 Sat, 24 Feb 2007 00:00:00 GMT October 2005 - Surgery to remove original angiosarcoma tumor on back.December 2005 - Two tumors in lungs - Doctors wouldn't operate.January 2006 - Began Nexavar (Sorafanib) pills 4/day.July 2006 - One lung tumor disappeared.  The other shrunk in half.  They operated to remove the regrowth on back and the remaining half tumor in lungs.February 2007 - Surgery to remove tumor under left armMarch 2007 - Surgery to remove tumor under right arm pit.  Off Nexavar. May 2007 - Large growth on back in original site and additional tumor growing on side.  CT Scan didn't show anything inside yet.  Began Avastin...want to add additional chemo and am looking into least side effects.  Jacquieyyyyy Tue, 15 May 2007 00:00:00 GMT Is Angiosarcoma the same as Angiomatoid fibrous hystiocytoma? My boyfriend was just diagnosed with this after his Doctor "brushed off" his growing lump in his neck. Does anyone have any experience with this? Please help! Darla Dab524 Mon, 11 Jun 2007 00:00:00 GMT  On 1/30/2006 Pleasehelpme wrote:My Best friend was diagnosed last week with Angiosarcoma. He is in the hospital now. He is 27. Does anyone know anything positive that has worked for treatment. I have been told there is no cure....any information would helpsorry to hear about your friend. i am 22 and i was diagnosed with an angiosarcoma in my right maxillary sinus and my chances were not very good. just wanted to let you know there is hope and just think positive. going through cancer is something that has changed my life and i just wanted to let you know if you have any questions feel free to ask me. hope everything works out for your friend.s miss_sunshine Mon, 01 Sep 2008 00:00:00 GMT