CancerCompass message board discussion started by Gail Miklatek on 2/1/2006 http://www.cancercompass.com/message-board/message/all,4342,0.htm Wed, 03 Dec 2008 00:00:00 GMT Wed, 03 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I am looking for people who are living with this cancer and have been successfully. I was diagnosed about a week ago and started treatment with chemo. I feel so hopeless because I cannot find long term survivors to talk with me. Gail R. Gail Miklatek Wed, 01 Feb 2006 00:00:00 GMT Please don't give up hope and continue to fight. Matttest Wed, 01 Feb 2006 00:00:00 GMT Hello.  My name is April, I am a member of a non profit organization called CaBRI in Ann Arbor, MI.  We are studying SNUC and attempting to learn as much as possible to ultimately determine an effective course of treatment.  Considering there are less than 100 people who have been diagnosed with SNUC at any given time, it is difficult to compile the data and to expect any major breakthroughs as quickly as more commonly known cancers is hopeful but not likely moreso because the larger well financed companies focus their efforts on more widespread types of cancers.  However, finding effective treatment for SNUC could very well have a positive effect on other types of cancers also.  CaBRI's parent company Cayman Chemical was devastated personally from the loss of an employee in 2006 from SNUC and the President of the company has made this a charity project of his in memory of Andrei.  Our goal is, as the case with all cancer, is to learn what course of treatment and the order in which it has been given to patients and to study biopsies and tissue samples.  If you'd like to learn more about us, please visit www.snuc.net.  I hope you are doing well and amidst what you and your family must be enduring, I am simply informing you that CaBRI has an open door to welcome you with utmost compassion and empathy if at any time your family feels they would like to collaborate with CaBRI to get educated.  Take Care. CaBRI Fri, 21 Dec 2007 00:00:00 GMT My husband was just diagnosed with snuc 3 days ago. It is hard to be hopeful, but I have found some info that leads me to be hopeful.We are in the U.P. of MI. I am very familiar with AA and U of M.Thanks for the info and I will check out your website.Kristina kristinamich Sat, 03 May 2008 00:00:00 GMT