CancerCompass message board discussion started by Mom2novalee on 2/24/2006 http://www.cancercompass.com/message-board/message/all,4602,0.htm Wed, 03 Dec 2008 00:00:00 GMT Wed, 03 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Anyone else out there with carcinoid tumors and syndrome? Mom2novalee Fri, 24 Feb 2006 00:00:00 GMT My mom has stage 3 liver cancer with flushing. It's going on 3 1/2 years now. The doc gave her 6 months and she's still with me. If you have any questions I will try and answer them. HUG, Carol Hope? Thu, 15 Jun 2006 00:00:00 GMT Yes, I also have carcinoid with the syndrome.I was diagnosed 10/94 with liver mets. Had surgery 1/95 to remove as much tumor as possible. Am now on Sandostatin LAR Depot inj., 30mg. every 3wks. I have to pace myself, which is very difficult. I guess fatigue and excessive sweating are my #1 concerns at present. I take life one day at a time, sometimes, 1 hr. at a time. Blessings to you, and just know you are not alone. Marilyn1 Mon, 30 Oct 2006 00:00:00 GMT Hello,I am Stephen,based in NZ.My carcinoids got fairly large in my liver-after about 6 years .I have had Selective Internal Radiation Therapy a couple of months back.(Micro scopic radiated balls pumped into the liver via an artery.)This can shrink tumours up to 90 % buying more time.The radiation knocked me so quite underweight.I am now eating anything to put on weight. Once back up in weight,I will return to a near vegetarian diet,then go on the Rudlph Breuss 42 day diet.He seemes to cure near everything.The diet is basically carrot and beetroot juice,along with herb teas-based mostly on sage tea.A very alkaline diet.Most natural anti cancer diets are strongly alkaline. PS contact with the Brazilian John of God,can be an amazing experience Haifu 1. Tue, 07 Nov 2006 00:00:00 GMT Yes - I have carcinoid tumors with met to the liver along with carcinoid syndrome.  I am actively in treatment - can I help answer some questions? Live4him Wed, 05 Sep 2007 00:00:00 GMT Ver good information - that is basically what my husband did.  He just had surgery to remove the primary and a tumor on the liver.  He is doing well.  Are you on Sandostatin injections?? Live4him Wed, 05 Sep 2007 00:00:00 GMT