CancerCompass message board discussion started by Karen C. on 12/19/2002 http://www.cancercompass.com/message-board/message/all,489,0.htm Wed, 03 Dec 2008 00:00:00 GMT Wed, 03 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My husband was diagnosed with the above cancer and the doctors state his survival time is approximately 1 year. I was wondering if anyone else has dealt with this type of cancer and how they are doing and dealing with it? Karen C. Thu, 19 Dec 2002 00:00:00 GMT My mother is going through the same thing right now. She has less than a year left also. It's terrible. Six months ago she was totally fine. Her tumor was removed once already but has grown back already. It is very aggressive. I, too, am looking for other treatments. I will pray for you and your husband. Kuiper Thu, 24 Mar 2005 00:00:00 GMT Just wanted you to know that I understand exactly what you are going through with your mom. I lost my mother to this horrible disease on January 15th, 2005 -- just 3 weeks after diagnosis. She went from fine, healthy and active to a state of complete deterioration in only 3 weeks! It was a terrible experience for her and for me as her caregiver. I'm sorry I don't have any positive thoughts about this disease, but I have only felt comforted by talking to people who are going through the same thing -- it is so horrible it has to be experienced to be believed -- I will pray for you.... M Mhop53 Tue, 26 Apr 2005 00:00:00 GMT I lost my sister-in-law three days after she was diagnosed............no symptoms, no real behavioral changes..........no chance for any treatment. I am a board member with the American Cancer Society and this really brought the message home to me. I am a cancer survivor myself but not anything of this nature.........this is a heinous disease that robs this world of fine people. My sister-in-law did not have to suffer but she was such a wonderful person, it does not make the leaving any less painful. Somehow, someway, this disease has to be stopped.........this disease claims more lives than any war we have ever known.........THIS IS A WAR and it is time we stopped it. For the love of Vickie............ Acsvolunteer Thu, 18 May 2006 00:00:00 GMT my father was diagnosed with the exact cancer in April. He went through surgery three days after diagnoses and began chemo and radiation. Only two weeks later my uncle was diagnosed with glioblastoma stage 4 and is only three weeks behind my dad in treatments. my dad just finished all chemo and radiation and was on a small break when he had another seizure and found the tumor back. In only 10 days of being off of treatments his tumor grew back to the size it was before surgery. Tomorrow morning at 11 am is his second brain surgery. All that we have found to help my dad get through his day is to not read stats!!!! This will only be a hindering on the healing and fighting. Good luck and I will keep you in my prayers Ct169 Tue, 01 Aug 2006 00:00:00 GMT My mom hsa gbm 4 as well was diagnosed 3 months ago Has had surgery radiation and is waiting for chemo . She was a very healthy active 74 year old and started having memory and speach problems and was diagnosed on June 13 . we have taken her to sloan Kettering hospital in Ny Nd the surgeon was Dr Guten Wonderful man. We are now reserching into Duke university for a More agressive type of chemo ..They are in raleigh NC and renowned for there treament of GBM. We all take it one day at a time and there ARE survivors but you have to act quickly and decisively to keep successful Good luck to you You are in my prayers Donnaf Sat, 12 Aug 2006 00:00:00 GMT My father is battling this "alien," like he calls it, for two months now. We rushed him to the hospital on 8/9/06 with what we thought was only a minor stroke. Well, low and behold, it is the glioblastoma stage 4. In a matter of a day all of our family's lives have been turned upside down and inside out. He just finished his 6weeks of chemo and radiation treatments. He has been so strong so far, but the reality is beginning to set in. We go back next week for the first MRI since treatment and we are all scared to death of the results. Stats are very, very grim. This is a situation that i truly would not wish on anyone. I have never felt so defeated in my entire life. I am the youngest of three (28 years old) and I am just so scared to loose a parent. My thoughts,prayers, and strength goes out to any and all that are battling this "alien". Breannclrk Thu, 19 Oct 2006 00:00:00 GMT I can imagine your fears ,,,I have no magic words at all...I lost my loved one last May. To say she was extremly healthy is an understament.It all changed in an instant. It feels like yesterday getting up going to treatments....Holding on to any and all hope.Being busy scheduling appts. taking care of her, held some of the fear at bay for moments. GBM just slowly takes our loved ones away bit by bit each day... Unfair is not a strong enough word to use. I never thought I would survive the ordeal...butI did and so will you... Just do as much as you can for your loved one, and you will have no regrets..sounds like a small thing to hang onto ...but I nothing else to offer you...My only comfort aganist this madness is that I did all that I could. Did you notice behavior changes in your loved one, before they became aware that they had GBM??? Lifechaning Mon, 13 Nov 2006 00:00:00 GMT  On 3/24/2005 Kuiper wrote:My mother is going through the same thing right now. She has less than a year left also. It's terrible. Six months ago she was totally fine. Her tumor was removed once already but has grown back already. It is very aggressive. I, too, am looking for other treatments. I will pray for you and your husband. Hello, My father has GBM also, he had his tumour surgically removed about 3.5 months ago and it has grown back after chemo. and radiation. I am not sure what to expect as I do know each person is different. Do you mind sharing your mother's story with me? Thankyou Lorig Mon, 15 Jan 2007 00:00:00 GMT  On 12/19/2002 Karen C. wrote:My husband was diagnosed with the above cancer and the doctors state his survival time is approximately 1 year. I was wondering if anyone else has dealt with this type of cancer and how they are doing and dealing with it? My name is John I will be 47 yrs old on Dec. 9th My wife and I have two great kids 5 and 11. I was diagnosed witha GBM IV in March of 2004.  Had surgery, complete removal from my left frontal lobe, radiation with clinical trial Celebrex 800 mg per day, in Sept. 2004 started chemo ( temadar )  for 5 days on a 28 day cycle for 2 years. I've been off the chemo since Sept.2006, in March of 2008 I will be a 4yr survivor!!! Tell your husband there is always hope no matter what the doctors tell you!!!  They told me I had 12 to 18 months, I love proving them wrong!!! Stay Strong John F / Boston Ma. Jdaaf Sat, 08 Dec 2007 00:00:00 GMT