CancerCompass message board discussion started by Alexia on 3/27/2006 http://www.cancercompass.com/message-board/message/all,4938,0.htm Wed, 03 Dec 2008 00:00:00 GMT Wed, 03 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Have any of you been or know of anyone who has been to burzynki clinic in texas.thinking about taking my 72 year old mom with glio. multifome.Any info would be greatly apprec. Alexia Mon, 27 Mar 2006 00:00:00 GMT I don't have personal experience with the clinic but I have not heard as many good things as I have negative things. Brainy_chick Tue, 28 Mar 2006 00:00:00 GMT Alexia...go to www.braintumor.org and get my email address...i will send you the address of a friend who is currently using that clinic Garland Tue, 04 Apr 2006 00:00:00 GMT  On 4/4/2006 Garland wrote:Alexia...go to www.braintumor.org and get my email address...i will send you the address of a friend who is currently using that clinicHello, my husband was dx with GBM a month ago.  I've been doing research on Dr. Burzynski and came across your message, but could not locate your email address at braintumor.org.  Can you give me some feedback or send me the address of your friend who is using this clinic?  We're feeling so desperate after talking to my husband's Neuro-Oncologist.  He basically said the tumor will most likely come back and of course there is no cure at this time for this cancer.  I've called the clinic and asked about the cost of the tx, they said it can cost close to 100k for 1 yr of tx.  Ins. might not cover anything...  How can most people offord this???  Any info. will be greatly appreciated.  --- Message edited by CancerCompass staff: for personal protection, email address removed.  Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- Yoomee Tue, 12 Dec 2006 00:00:00 GMT