CancerCompass message board discussion started by Sandyp on 5/19/2006 http://www.cancercompass.com/message-board/message/all,5382,0.htm Wed, 03 Dec 2008 00:00:00 GMT Wed, 03 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I was diagnosed 10 months ago and just had a clear mri this past week! I had radiation, chemo and surgery. My life is great, I still work, my appetite is fine and the only discomfort I have had is a little headache on the first day of temodor. I don't even really get tired. I hope this helps people newly diagnosed as I know my family and I were really scared in the beginning. I had surgery and am treated at Geisinger in Danville, Pa. I also did not incur any deficits from the tumor! Sandyp Fri, 19 May 2006 00:00:00 GMT That is wonderful news! :o) I'm so happy that you're doing well. Here's to your continued good health. Sallysem Fri, 19 May 2006 00:00:00 GMT I was diagnosed way back in 2003. Done the surgery, radiation, and chemo (a couple times actually!) Ya know what? I'm feeling pretty good too. The only deficit I have is that my vision isn't as goos (which isn't saying much because I wore glasses before being diagnosed) Brainy_chick Fri, 19 May 2006 00:00:00 GMT I have been following your messages... and first of all I want to great you for your fight, and for your results. I am not a patient, my mother is (50 year old)... since feb 2006. It's been a hard year. I am still very scared even with all the good news you and others provide me everyday I come to check new messages. I suppose you have already noticed my bad English. I am not English/American, I am Portuguese. we are fighting very hard, my mother is still very active (working and stuff) although sometimes she is very tired. The only deficit she has is some difficulty in recalling some words but this symptom varies very much . But I am facing a huge problem, to complicate even more all the scenario. my mother doesn't know exactly what does she have, because docs preferred not to tell the true. I am completely against this kind of approach but my family have supported the option. I am very lost in all this because I everything I know I have found it myself in the internet and with some research in medical paper. I am an economist, by the way, so you can imagine how some matters are really difficult to understand. Anyway, I am trying to discover the best solution to my mother, we are just on the first round of chemo with temodar, after a surgery and radio+chemo treatment. Her first MRI will be on 23th june. I am afraid but praying every night. Kisses and hugs. Carol Carolpt Mon, 22 May 2006 00:00:00 GMT Thanks for your great news! Was diagnosed on April 6th. Tumor the size of a tennis ball. There is still a tumor inside the brain with, of course, residuals. I'm in my second week of chemo and radiation. Temodar. Sometimes I am nauseous...it comes and goes. I have resumed work which feels great. Don't know what to look for really. My tastes and smell was affected by the tumor before I had surgery, so don't know if the radiation or the chemo is making it worse. Lost some feeling in my left side...no droopy face or slurring speech! I feel very blessed. Have not had a seizure. Taking anti seizure medicine (Dilantin). I really do hate that my most favorite foods smell and taste like chemicals. Can't eat pizza, steak, chocolate, anything sweeet. Fish is fine. Oh well, I am alive and with my beautiful wife. We celebrate our 25 this August. Will look for more great news from everyone. I have one more month of Temodar and radiation before I see another MRI. God Bless us all! Flippy66 Sat, 27 May 2006 00:00:00 GMT Dear Sandy P, Reading your post, made my day! I celebrate your ten months of recovery and your wonderful MRI report! You are an inspiration to others who have a brain tumor, especially to people who have been diagnosed recently. Thank you. Enjoy your day!! Take care, Rondi caring daughter Thu, 01 Jun 2006 00:00:00 GMT