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    <title>CancerCompass Message Board: Does Anyone Else Wonder What To Do Now That The Treatments Are Over?</title>
    <description>CancerCompass message board discussion started by Candace P. on 4/25/2003</description>
    <link>http://www.cancercompass.com/message-board/message/all,549,0.htm</link>
    <pubDate>Sat, 11 Oct 2008 00:00:00 GMT</pubDate>
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      <title>Does Anyone Else Wonder What To Do Now That The Treatments Are Over?</title>
      <description>I was diagnosed with Invasive (inflammatory) Lobular Carcinoma of the right breast in Feb. 2002, started chemo (Adriomycin and Cytoxin) for 12 weeks, once every three weeks for four rounds, took a 3 week vacation from chemo and then started Taxol for 12 weeks, once weekly.  I had a break for a month or so and then had a radical mastectomy on Nov. 1 with reconstructive surgery (free tran flap from stomach) that had to be removed the next day because of complications.  I also had a reduction of the left breast at the same time so it would better match the reconstructed breast.  Oh, well, I ended up with one pretty perky breast and a tummy tuck after 24 plus hours of surgery in 2 days. I had a lot of lymph nodes removed because they were affected by the cancer - stage 3b by pathology report. I started radiation treatments in January 2003 and finished up on March 3.  I am also on Femara.  Well, here I am, still standing and wondering what to do with the rest of my life.  I don't have to go back to the cancer center anymore, except for 3 mo. check ups.  I felt much safer when I was there every week because someone was always checking on something and I had blood work done weekly.  Now that I'm free I feel like my high wire act just lost its safety net.  Does anyone else out there feel this way?</description>
      <author>Candace P.</author>
      <pubDate>Fri, 25 Apr 2003 00:00:00 GMT</pubDate>
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      <title>RE: Does Anyone Else Wonder What To Do Now That The Treatments Are Over?</title>
      <description>My husband had non-hodgkins lymphoma and my daughter had mesenchymal chondrosarcoma. Both are cancer-free. My daughter has faced multiple reconstruction surgeries. We have spent a lot of time in the last 4 yrs. down at St. Jude's in Memphis. I felt like you do--the safety net is gone when we're home. But, after much struggle, my daughter, who is now 21, is on the emotional/social recovery track.  All we can do is to trust that God knows what's going on and what is going to happen. I'll keep you in my prayers.</description>
      <author>Pat B.</author>
      <pubDate>Mon, 28 Apr 2003 00:00:00 GMT</pubDate>
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      <title>RE: Does Anyone Else Wonder What To Do Now That The Treatments Are Over?</title>
      <description>Hi Candace,
I know how you feel about the feeling of having a safety net. I have colon cancer. I was diagnosed in Nov. of 2000. I had a complete hysterectomy in April of 2002,and through biopsies, I learned that the colon cancer had spread to my right ovary. My oncologist told me to "go live my life" in Aug of 2001 after initial chemo. Well there were no follow-up tests done, and the cancer had spread. I'm not telling you this for you to assume the worst. I just want you to make sure your doctor orders whatever tests are necessary. I felt worse when I learned the cancer had spread. If it had not been for my gynecologist ordering biopsies on the ovaries, I don't know if I would still be here today. I'm still seeing the same doctor, only now I am assertive about scans etc. I am doing quite well now. There is no measurable cancer in my body. I guess when you're on chemo, you do feel safer, but you have to be positive, and advocate for yourself. After all you've been through, take some time to celebrate. I wish you good Luck Julie C.
</description>
      <author>Julie C.</author>
      <pubDate>Mon, 28 Apr 2003 00:00:00 GMT</pubDate>
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      <title>RE: Does Anyone Else Wonder What To Do Now That The Treatments Are Over?</title>
      <description>I was diagnosed with primary peritoneal cancer (some ovary involvement) in March of 2002 had 6 rounds of chemo every 3 weeks. That ended in August of 2002. I go every 3 months for check by oncologist. I now find myself getting more anxious as time passes. Just waiting for the other shoe to drop. Was told there is usually about 2 year remission and then reoccurance, and a 5 yr. life expectancy. I am having a CT scan done next week, just because of my history. Really scared they will find something. I also do not know how to get back to living. By the way this type of cancer is treated the same as ovarian, and prognosis is the same, I am stage 3c. Would love to hear how you are coping.  Minnie</description>
      <author>minnie p.</author>
      <pubDate>Tue, 06 May 2003 00:00:00 GMT</pubDate>
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      <title>RE: Does Anyone Else Wonder What To Do Now That The Treatments Are Over?</title>
      <description>Hello to everyone who responded to this e-mail...I must say that I too am feeling the same way many of you are. Truthfully, if anyone tells me to "be positive" just one more time, I may lose it. Yes it is difficult to get on with our lives and we aren't all these wonderfully "transformed" people that we hear about. In 1997 I had a mastectomy followed by several high dose treatments of chemotherapy. Doctors didn't think I'd make it through the year.  Well I did...I thought my family needed me and I completely changed my diet, took supplements and tried some of the alternative approaches that are available...It's been over 5 years now, but this past year my cancer was found throughout my spinal cord and in my hip socket. Had radiation treatment and now am having Zometa treatments (a bone building treatment) and am on Femara. I attempted to return to school to become a massage therapist, but had to quit because of my illness.  So now I am kind of stuck in a job that I'm not esp. thrilled about because my husband has had a difficult time finding work that is consistent.  And I also carry the Health Insurance Benefits, so I will have to work until I drop.  I feel ok except for minor pains and all and it most likely is better that I do work.

Well anyway...I too am feeling very discouraged and the "waiting for the other shoe to drop" expression is exactly how I feel. I made an effort to become a massage therapist and thought my life would really be different.  But I guess it just wasn't in the cards. Now, I just can't seem to move on anymore.  I'm tired and just feel that I don't have long for this world.  It seems that I've suffered long enough and that I've had my share, but problems just keep surfacing and I'm tired of dealing with them...I really don't know where to turn. I don't want to take any anti-depressant because I want to be able to deal with these feelings.  I've been on those before and its as if you have no feeling. 

It's just hard to move forward.  I just wish I could find some peace in all of this.</description>
      <author>Deborah C.</author>
      <pubDate>Thu, 08 May 2003 00:00:00 GMT</pubDate>
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      <title>RE: RE: Does Anyone Else Wonder What To Do Now That The Treatments Are Over?</title>
      <description>Dear Deborah, Your story sounds so sad, I wish I could give you a hug, I know that wouldn't cure you but it might make you feel better. I was wondering if there are any cancer survivor groups in your area, if so you might want to give that a try. I am not a joiner by nature but I have been going to the meetings and it is helpful just to talk to someone who can completely understand your feelings. I hope you can find a group, or keep writing on this message board, we are all out to help one another if we can. Hpoe things take a turn for the better for you.</description>
      <author>minnie p.</author>
      <pubDate>Fri, 09 May 2003 00:00:00 GMT</pubDate>
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      <title>RE: Does Anyone Else Wonder What To Do Now That The Treatments Are Over?</title>
      <description>Dear Candace and all concerned: First of all, let me congratulate you on your willingness to reach out to others. Everyone needs someone everyday in their lives, and staying open to receiving input from others will help you tremendously. I'm finishing up some tests today to see if my non-Hodgkin's lymphoma is still in remission. You and I and anyone who has had cancer are veterans in a war against cancer. None of us volunteered to participate in this war, yet we find ourselves on the front lines. We have been attacked by a terrorist on our homeland, from within and it has affected everyone who knows us. We have seen pain and suffering, and yes sometimes death seems all around us. Yet we live to fight another day.
 
My family doctor warned me of these feelings you are having. The reason I use the analogy of being at war is because you and all of us feel as if we have been to war and no one can really understand unless they have been there. You have every right to feel the way you do, and yes you will get better. Your body will heal long before your emotions and your mind do. Do it at your pace, but just make sure you do it. You are a unique and special person, who has learned how, day by day, to overcome one of the most cowardly, despicable diseases in the world. Imagine the power you now have!! Please feel free to get very mad at this disease for disrupting your life and the life of those you love. 

You are not lost, you are in charge. None of us can control the quantity, or the length of our lives, so we must focus on the quality of our lives. You must find something to be thankful for every single moment that you can. No matter how small it seems. You are a warrior, who will find what it is in you that others just don't know yet. Your God has blessed you with that chance. Think no other way, and your life will be full, no matter how long you have to fight. This miserable disease may someday take our bodies, but it cannot kill our spirits!!  God bless. Rob   
</description>
      <author>Robbie R.</author>
      <pubDate>Mon, 19 May 2003 00:00:00 GMT</pubDate>
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      <title>RE: Does Anyone Else Wonder What To Do Now That The Treatments Are Over?</title>
      <description>First of all, I want to thank each and every one of you for answering my message.  Cancer is a slap in the face and the heart.  I have had a lot of time to think in the past year and to decide what is important in life and what isn't.  My small circle of family and friends have been here to encourage me and to just listen when I think out loud.  I have also made visits to a wonderful psychologist who is very understanding because his wife has cancer.  If you need something like antidepressants to help you through, try them.  If one doesn't work there are many more.  I found that Celexa helps me stop obsessing about the evil one (cancer).  I am not very religious in the formal sense, but I talk to God almost every day and keep St. Peregrine close to me.  I have one friend who lost her husband to melanoma 2 yrs. ago and she has been the best friend ever.  She makes me laugh till fluids come out my nose.  I try to keep a positive attitude and enjoy every moment I have.  I think I'm going back to work next week, which will be another step at getting back to me, although wearing pantyhose again doesn't turn me on.  We must use the time we have well.  I will pray for all of you.  I'm leaving a lot out of this note, because there is so much.  I just wanted to let you know that I got your messages and really appreciate them.  If any of you want to talk please e-mail me at Primrose@gisco.net.  I will answer.  I will also be back here.  Thank you so much.  I think of you all with hope, peace and love.  Candy</description>
      <author>Candace P.</author>
      <pubDate>Mon, 19 May 2003 00:00:00 GMT</pubDate>
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      <title>RE: RE: Does Anyone Else Wonder What To Do Now That The Treatments Are Over?</title>
      <description>Hi Deborah, Jan here. I am an ovarian cancer survivor of almost seven years now. Stage 4.  I too understand your feelings and the others who sort of just wonder what next?????? As far as the word you would rather not hear, I guess it is used a lot isn't it?  I wish better things for you and all the others who have had to fight and struggle with this damn cancer. Some day I hope it to be no more. Yes, those same feelings are with me also...what is around the corner? I hope to remain strong and able to fight this beast if it chooses to return to my body but mean while I will stop and smell the roses a little more often than before. I will leave you with this quote my friend..."There isn't a valley low enough that an angel can't carry you through it" 

Be well.........Jan
</description>
      <author>Jan T.</author>
      <pubDate>Mon, 19 May 2003 00:00:00 GMT</pubDate>
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      <title>RE: RE: Does Anyone Else Wonder What To Do Now That The Treatments Are Over?</title>
      <description>Good post Rob.....thanks for it.  Be well.....Jan</description>
      <author>Jan T.</author>
      <pubDate>Mon, 19 May 2003 00:00:00 GMT</pubDate>
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      <title>RE: RE: Does Anyone Else Wonder What To Do Now That The Treatments Are Over?</title>
      <description>I too am a survivor of non-Hodgkin's and it's a daily battle. I imagine all kind of horrible things I even go so far as to imagine a headache is a sign the cancer moved to my brain.  I have been so well blessed with support, the support of my co-workers and my boss has been outstanding, my friends from church who have prayed for me through the worst and most of all my husband who I never thought could be as strong as he was.  I have been out of treatment almost a year but the sheer hell of waiting for a relapse is almost enough to send you over the edge.  Since I am incurable (but containable) it's just a waiting game.  My thoughts and prayers are with you and keep positive because that is the only way you will win.</description>
      <author>wendy b.</author>
      <pubDate>Tue, 20 May 2003 00:00:00 GMT</pubDate>
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      <title>RE: Does Anyone Else Wonder What To Do Now That The Treatments Are Over?</title>
      <description>Dear Candace, 
Please find a very good ND (naturopathic doctor). 
An ND can really help your body get strong and build up your immune system and detoxify you from the chemo treatments which will help your immune system get back up is quite important and and ND can guide you through that.  An ND can put you on the course of staying healthy, nutrition, supplements, etc. now that the crises management is over. 
I am a pancreatic cancer survivor, and strongly believe this.

Take care, all the best 
Irma M.</description>
      <author>irma m.</author>
      <pubDate>Thu, 22 May 2003 00:00:00 GMT</pubDate>
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      <title>RE: RE: RE: Does Anyone Else Wonder What To Do Now That The Treatments Are Over?</title>
      <description>Hello Jan,

I just want to thank you for your understanding and for your sharing your faith.  I DO believe angels are helping us...guess I just struggle with letting myself have total comfort and trust in that.  I'm trying to cope and may go back to a counselor again. I want to make the best of my life, but just get real down in the dumps at times. It just seems like I've had enough pain in my life and would really like to have that be over with.  I would really like to experience some true JOY before I leave this world and to maybe be able to share that with others. I am searching and will hopefully find the peace I need.  Thank you and good luck to you with your struggle.  Please write again soon and thanks again for the understanding words.

Deb</description>
      <author>Deborah C.</author>
      <pubDate>Fri, 23 May 2003 00:00:00 GMT</pubDate>
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      <title>RE: RE: Does Anyone Else Wonder What To Do Now That The Treatments Are Over?</title>
      <description>I have read your reply and am very interested in your recommendation of an ND.  I have completed chemo and last week antibody (maintenance) IVs since the cancer is incurable.  Next check up is in mid-July.  Since the cancer is in my lymph system I feel very strongly about nutrition, supplements, etc. but am having a hard time finding a regimen -- there is so much info and so many supplements I can decide what is best for me.  My question would be how to go about finding a doctor I can trust and feel he is doing best for me?  

Congratulations and continued good health to you.  Linda</description>
      <author>Linda  R.</author>
      <pubDate>Sat, 24 May 2003 00:00:00 GMT</pubDate>
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      <title>RE: Does Anyone Else Wonder What To Do Now That The Treatments Are Over?</title>
      <description>I am a Certified Nutritional Consultant and I help a lot of clients in just your situation. I do not recommend my service over anyone else's but I do recommend that you find someone with some experience who can walk with you through this journey. There are a lot of things that you can be doing to ensure that your life be one of peace about your situation. Support is so very important. Friends, clergy, professionals. People who CARE how you are feeling. People who can encourage you to be responsible for your own life from now on. Email me if you would like to talk further. If not, please contact a CNC or a Naturopath in your area.</description>
      <author>Nancy C. S.</author>
      <pubDate>Tue, 27 May 2003 00:00:00 GMT</pubDate>
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      <title>RE: RE: RE: Does Anyone Else Wonder What To Do Now That The Treatments Are Over?</title>
      <description>Hi Jan. I just read that you are a stage 4 ovarian cancer survivor of 7 years.  How amazing!  I was given 3 months to live without chemo and 5% chance to make it for a year, after than 20% to make it for 5 years.  I recently went to my check up since my last chemo in May.  I thought I would get all good news because I am feeling better, hair is growing back, some of the side effects that I have are lessening in pain and I can actually get about when I feel like it.  I have not been given the ok to go back to work yet.  They have me on disability.  I am only 43 years old.  When I went for my CT scan and check-up, they found nodules on my lungs and want me to start chemo of doxil or gemzar.  I was hoping for good news and to get on with normal life but now another set back.  Not sure what I want to do.  I am thinking of the Alivizatos treatment instead.  Could you fill me in some on your situation and how you made it this far?  That is just great!!!  You could email me outside this group if you want to.  My email is andrie@spacestar.net.  Thanks and good luck to you all!!!  Keep your chins up!  Prayer does help!  Family is also a very good support group although they don't know 1st hand what you are going thru.  They will always be there for you.</description>
      <author>Shel A.</author>
      <pubDate>Mon, 22 Sep 2003 00:00:00 GMT</pubDate>
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      <title>RE: RE: RE: RE: Does Anyone Else Wonder What To Do Now That The Treatments Are Over?</title>
      <description>I have used this a lots and am still using it!  You might want to use it too!  So many praying on your behalf!

www.worldprayerteam.com

David</description>
      <author>David D.</author>
      <pubDate>Wed, 24 Sep 2003 00:00:00 GMT</pubDate>
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      <title>Mesenchymal Chondrosarcoma</title>
      <description>Hello, anyone who needs information about this type of cancer or wants to share information please send me a message.

MiMi

grandmother to Carly age 6
dx mes chondro 7/2002
surgery/chemo/proton beam radiation
OT &amp;amp; NED 2/2003</description>
      <author>Carlysmimi</author>
      <pubDate>Fri, 11 Jun 2004 00:00:00 GMT</pubDate>
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      <title>Deborah c.</title>
      <description>See if you can find a Reiki practitioner in your area.  Reiki is a very wonderful complementary therapy which can help provide you w/ the energy needed to continue the fight. Here is an excellent site to learn more.

[http://www.reiki.nu/reiki/reiki.html]

I received reiki treatments regularly during the initial A/C&amp;amp;T treatments {Stage III breast cancer - 1.5 yrs of chemo (A/C &amp;amp; Taxol) &amp;amp; adjunct therapies (Herceptin, Radiation &amp;amp; Fareston)} and it allowed me to continue working full time. In fact the days that I wasn't able to receive the reiki, my side effects were much, much worse.  Shortly after I completed the A/C&amp;amp;T, I received the Level 1 Reiki Attunement so I could give myself daily reiki treatments. The connection to the Universal Life Energy, established during the attunement process, has given me the strength to continue my fight. I no longer feel that I am fighting alone.  If you cannot find anyone in your area, go to the [www.reikisecrets.com] website where you can receive a free attunement and then let me know so I can explain the how to's, etc...  You may even be able to branch out and become a practitioner yourself (instead of the massage) as Reiki requires no energy input from you, and you would actually receive reiki as you give it to others, allowing you to help others without harm to yourself and to find a purpose to continue the fight.

My best to you &amp;amp; yours, ......luv Hannah.</description>
      <author>Hannah</author>
      <pubDate>Mon, 11 Oct 2004 00:00:00 GMT</pubDate>
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      <title>Re: Does Anyone Else Wonder What to do Now That The Treatments Are Over?</title>
      <description>To those who have completed their treatments, are in remission and are wondering what next, I say.... we've been given a second chance.  I too am afraid of reoccurrance [terrified actually as I just completed 1.5 yrs of chemo (A/C &amp;amp; Taxol) &amp;amp; adjunct therapies (Herceptin, Radiation &amp;amp; Fareston) to treat Stage III breast cancer] but just think, we're alive!  Hell, if your chemo was as fun as mine was.... then each and every one of us has already walked through the valley of the shadow of death and lived to tell about it.

    So, my question to you is... What do YOU really want to get from this life?  You now have a chance to start over... isn't there something you have always wanted to do but were too busy or too afraid to do?  Grab the GIFT of life you've been given with both hands - and, well - SHAKE HARD!  just to see what falls out.  You know, live each day.... 

    Now, I realize finances are rough for all of us but there are a lot of things out there we can do to enjoy this gift we've been given.  An actual chance to start over.  Personally, I've been working on changing as many of the self destructive and self abusive behaviors I can; such as - my diet, exersize (started yoga &amp;amp; Tai Chi), I'm getting a divorce, and am looking forward to spending a lot of time giving back for all the support I've received along the way. Once I'm strong enough I'd like to volunteer my Reiki skills @ the cancer center where I received my care, maybe also work at a farm near where I live that uses horses (pet tharapy) to reach troubled teens and for the long term, I am planning on opening a Wellness Center for sick children &amp;amp; their families.  I expect the center will take 5-10 yrs to have up and running but who cares?  I don't have children of my own, will be single in 3 months, and I want to do SOMETHING WORTHWHILE w/ my life.  

   Just think about it.... then go out and do something about it..... What do we have to lose that we haven't already????

My best to you &amp;amp; yours,  luv Hannah.</description>
      <author>Hannah</author>
      <pubDate>Mon, 11 Oct 2004 00:00:00 GMT</pubDate>
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      <title>Ovarian Cancer</title>
      <description>Dear Jan:  I just read your message from over a year ago. Wondering how you are doing.  I am a Stage IIIC ovarian cancer survivor diagnosed in December 2003. Just had a CA125 of 53.5, and will have a MRI tomorrow.  I am scared and wonder if you ever had an elevated CA125, or recurrence.  It is very helpful for me to converse with survivors.  Thanks, and God bless you.  Betsy</description>
      <author>Betsy</author>
      <pubDate>Tue, 07 Dec 2004 00:00:00 GMT</pubDate>
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      <title>Ovarian Cancer Support......</title>
      <description>Hi Betsy, I understand your fears my friend. My C-125 usually is in a normal range and has been for quite sometime. Around 6 or 7. I have had no recurrence thus far. Very lucky. Get in touch anytime kiddo if you like. I am eight years now. And as you probably know you can go as high as maybe a 30 and all can be well. Wishing you good test results my friend.  Hugs and be well. </description>
      <author>Jan T.</author>
      <pubDate>Tue, 07 Dec 2004 00:00:00 GMT</pubDate>
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      <title>What to do After Treatment</title>
      <description>Hi.  I have not quite gotten there yet.  I had my right breast removed with reconstructive surgery 1st then I went through 12 weeks of A&amp;C Chemo and now I am on Taxol for 12 weeks every week.  I have 5 more to go.  I was stage 2 Her2-neu/positive.  I am wondering what happens when I finish.  I am in a study where they monitor me for 5 years but that is only every 3-6 months.  I would continue to try to keep myself healthy and research more and more about the disease.  I would keep track of how I am feeling and be sure to call the doctor when something is not right.</description>
      <author>Biggirlfaith1</author>
      <pubDate>Wed, 04 May 2005 00:00:00 GMT</pubDate>
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      <title>Mesenchymal Chondrosarcoma</title>
      <description>My  daughter was 17 yrs. old when she was diagnosed. She had chemo, radiation, surgery and a little more radiation. She is 5 1/2 yrs. out cancer free. I pray things will go as well or better for your granddaughter.  Pat</description>
      <author>Pat B.</author>
      <pubDate>Wed, 04 May 2005 00:00:00 GMT</pubDate>
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      <title>Pat/mesenchymal Chondrosarcoma</title>
      <description>Hi Pat, thanks for your message. I run an on-line support group for mes chondro. We have 50 members. Maybe you or your daughter would like to join. It's free and it could be beneficial if your daughter ever needs to obtain new info.
With Hope, MiMi
http://health.groups.yahoo.com/group/MesenchymalChondrosarcoma/</description>
      <author>Carlysmimi</author>
      <pubDate>Wed, 04 May 2005 00:00:00 GMT</pubDate>
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      <title>Straight From The Heart</title>
      <description>Candace,

My name is Wayne. You will see some other post on Cancer Compass that I have made to a few other people.

I am 31 years old. I do not have Cancer. My Mother, who had cancer, sent me the link to the site and for about two weeks now I have been hooked in.

I am hoping that my message reaches you. My message is GREEN TEA Catechins!

There are so many studies being done around the world on the benefits of green tea catechins and cancer.  Catechins are the molecules in green tea that are beneficial to humans.  

I would like you to learn more about catechins by visiting www.originbiomed.com and clicking on the link that says Polyphenon.  

I would be happy to discuss your questions.  

Finally, Finally, I believe I can make a difference in people's lives through Polyphenon.

Lots of love.

Wayne
PS. I have a cousin named Candace who I haven't seen since for over 16 years. I miss her lots!</description>
      <author>Wayne</author>
      <pubDate>Tue, 19 Jul 2005 00:00:00 GMT</pubDate>
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      <title>Dear Nancy</title>
      <description>Hi Nancy,

My name is Wayne. I have a B.Sc in Kinesiology with a minor in Nutrition.

For the past 4 months I have been working with a company who manufacturers natural health products formulated with green tea catechins.  

I am sure you are aware of the benefits of green tea catechins and cancer patients.

Polyphenon is produced by Mitsui Norin Co, Japan. About 25 years ago their lead scientist Dr. Yukihiko Hara was the first person in the world to successfully extract the catechin molecule from the green tea leaf.  Polyphenon is the result of his efforts.  

Dr. Hara has been providing evidence that Polyphenon works both inside and outside of the human body and now the U.S. National Cancer Institute and many other Cancer Institutes around the world are using Polyphenon in their clinical studies and trials with the goal of developing preventives for cancer.

Origin BioMedicinals is now offering people in North America this marvelous substance. We have take Polyphenon and put into a capsule. We call it Polyphenon 100. 

I hope that this message reaches you and that you help your friends, patients, and clients in gaining a better quality of life.

Lots of love.

Wayne</description>
      <author>Wayne</author>
      <pubDate>Tue, 19 Jul 2005 00:00:00 GMT</pubDate>
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      <title>Green Tea &amp; Coping</title>
      <description>This letter is in response to Wayne.
O have heard that Green Tea, will help.
 I have been taking the Essaic's Tea, since I was in radiation. ( I was diagnosed with stage 3 B.C. on Feb.)
 2 weeks ago, I had another biopsy, and it came just fine. weather it was the essiac's Tea, or prayer... i am not really sure! But i do believe in both!   :)
 As far as coping after treatment. it's hard to stay positive. I am 49 years old, lost my business, due to scheduling for chemo &amp; rads treatemnt. and trying to start all over at 49 is a real treat!!   LOL.... not to mention, trying to get life insurance!
  I got refused coverage from one of the major companys in the U.S. Even though right now I am cancer free. Just the " label" As having had Cancer is a problem.
  I like many others wonder.... what the hell , do I do now??   But i keep plugging along....
  Best regards, to everyone that is in the samne boat</description>
      <author>Breeze</author>
      <pubDate>Tue, 11 Oct 2005 00:00:00 GMT</pubDate>
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      <title>Mesenchymal Chondrosarcoma</title>
      <description>A friend of mine who has mesenchymal chondrosarcoma has asked me to research possible treatments. I have done a search of PubMed and the U.S. clinical trials database, but am interested in finding alternatives. Could you please suggest where I can locate legitimate alternative treatments, other sources of information in U.S. and abroad, and other patients and their families, who might have ideas on new treatments?

Thank you very much.

Dan</description>
      <author>Kayaker</author>
      <pubDate>Mon, 17 Oct 2005 00:00:00 GMT</pubDate>
    </item>
    <item>
      <title>Breeze, Try Polyphenon 100</title>
      <description>Hi Breeze,

Sorry for the long delay.

It sounds like you still have some hope!  As my Mother always tells me...Never, Never, Never, give up hope.

In regards to green tea...Green Tea is good for you. Green Tea Catechins are the molecules in green tea that provide the health benefits.  If you type Polyphenon into google, you will see a few links where Polyphenon is being studied as a preventative to certain cancers.  Check it out.

My Mom was diagnosed with CLL(a rare blood cancer) and I have been giving her Polyphenon 100 capsules. She did go to her doctor not too long ago and got a good review. Hopefully the Polyphenon capsules are providing some benefit.

I hope this message reaches you well. Thank you for responding to my post.

HOPE is a powerful thing!

Wayne</description>
      <author>Wayne</author>
      <pubDate>Tue, 25 Oct 2005 00:00:00 GMT</pubDate>
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    <item>
      <title>in Response to Green Tea. &amp; Wayne</title>
      <description>Wayne,
 Thanks for the info on the Green Tea!  I used to take it years ago, and I guess , I'll go back on it! And add it to my " collection" of herbs &amp; vitamins to take!
  I went to my Oncologist last month, and he told me, that whatever I was doing, to keep doing it, 'cause everything came back fine.
   Since I wrote my last note, I have been job hunting,That was a real trip! I went for an interview at a local private club, for a bartending job,( being I used to work at the local country club years ago I felt, WOW I could do this ... no problem!   lol  Well, damn, after I walked in there and seen the other " girls" with hip huggers and belly button rings, I sure felt like an ANTIQUE!   LOL But while I was going through Rads, I was also going taking classes, and finally landed a job, in a local nursing home. They say that things come " full circle"  Well, this did, it was the nursing home that I worked at 30 years ago! when I was in my early 20's. 
   I talked to there DON and was telling her that next year I wanted to go back and get my RN degree. She told me that when I decided to do that , to let her know, and she would tutor me, before the entrance exam.
  So.... to everyone out there, there is hope at the end of the tunnel. Sometimes you have to step back, and take a look at where you are going. And I believe there are angles that guild us through life.
 Please don't think, that I am "little Miss Postitve Attitude" because there were times, that I would just sit and cry. 
  We were your normal, middle aged couple, we raised our 2 boys, and they are out on there own, and were were looking forward to " our time" And then all hell broke loose. Hubby lost his job, after 20 years, in Jan. And I was diagnosed with Breast Cancer later that month.
 Needless to say, it was a roller coaster ride, that we will never forget. But....
  Things are finally starting to fall back into place.
  yes, I did lose my business, but I also had a lot of time to think about things. What I have learned is that,God, and good friends will always pull you through. As my one girlfriend told me. " if God brought you to it, he'll pull you through it"  And that's exactly what he did.
 Regards,
  Breeze</description>
      <author>Breeze</author>
      <pubDate>Wed, 26 Oct 2005 00:00:00 GMT</pubDate>
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    <item>
      <title>Anti-depressants</title>
      <description>Hi Deborah!

My name is Ricki! I too am post treatment for breast 
cancer, with many complications from all the 
treatments, making it difficult not to think about my 
situation, since my toes are numb and hurt (try that), I 
drop things all the time, since my fingers are also 
numb (I actually made a typo and wrote dumb, instead 
of numb).  I m telling you some of my symptoms just to 
say it is next to impossible not to think!

How long ago did you take anti-depressants.  There 
are so many on the market now that increase your 
serotonin level.  Serotonin helps to increase 
everyone's sense of well being.  It is a natural 
substance in your body.  In essence, you shouldn't 
even know you are taking it, except when you notice 
you get through some difficult moment that you know 
would have been very difficult to deal with in the past.  
Serotonin drugs are all a little different.  Some can 
make you a little sleepy and others can make you a 
little hyper, but usually people find one that works for 
them.  It does not make you feel numb or as if you 
have no feelings.  I used to be very anti-drugs, I have 
reconsidered and find that I actually can better deal 
with my feelings when my feelings aren't out of control. 
Another drug that can be very helpful are anti-anxiety 
medication -used only when needed.  It allows one to 
be calm enough to think things through without 
fogging your thoughts.

It is up to you, and I am not telling you you should be 
taking any medication!  You need to do what feels 
right to you!  I am sharing my experience, knowing that 
anti-depressants should not make you feel numb!

I am sorry this is so much more difficult for you!  It is 
hard enough to handle ones illness without also 
having to worry about bringing in money and making 
sure you have coverage!  Think about the possibilities 
of other treatments such as accupucture, hypnosis etc. 
as ways to control some of your feelings of anxiety,if 
you don't want to use medication.  I hate to see you 
suffer more than you have to!

I wish you the very best!  I hope that you can find some 
peace, it is the least you deserve!</description>
      <author>Rosieme</author>
      <pubDate>Mon, 26 Dec 2005 00:00:00 GMT</pubDate>
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