CancerCompass message board discussion started by Carolyn830 on 6/2/2006 http://www.cancercompass.com/message-board/message/all,5539,0.htm Wed, 03 Dec 2008 00:00:00 GMT Wed, 03 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I would like to hear from anyone who has had experience with Protocel. My wife in excellent health, age 72, just had a very large glioblastoma removed from her brain and is recovering nicely. I do not trust radiation and chemo that they plan to put her on. I want to give a combination of Essiac tea, Willard Water and maybe Protocel. Any comments will be appreciated. I want a cure not a treatment. Many thanks. Al Carolyn830 Fri, 02 Jun 2006 00:00:00 GMT hi I`m going thru the same questions.My Mom is 73 has Glio. as well she has had rad. and chemo.and i do regret the rad.I feel most of her deficits are from that. We do have a holistic doc. as well and he does feel we have a shot if we go off the chemo.I do think you would need a far more agressive approach than what you mentioned talk to a holistic doc.I had more faith in holistic alone when my Dad was sick with lung cancer.But I did see first hand just how agressive this disease can be.I now feel it`s best with such an agressive tumor to try everything.I wish you all the best it`s a very difficult decision.I`m sure one you will second guess no matter what you decide. Susan Alexia Fri, 02 Jun 2006 00:00:00 GMT i dont have a cure but i think sulfasalazine gave my mom longer and i wish we would have started it earlier but the doc s always go with the protocol...she has made several come backs..not many trials yet but what is wrong with a drug with no side effects that costs next to nothing that works??? Norain Sat, 10 Jun 2006 00:00:00 GMT