CancerCompass message board discussion started by Siberianhuskyluver05 on 6/3/2006 http://www.cancercompass.com/message-board/message/all,5543,0.htm Wed, 03 Dec 2008 00:00:00 GMT Wed, 03 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I greatly appericate your response. It is good to hear that your dad is doing well. I don't mean to jump ahead of myself but do you know what your dad did to survive the cancer, and specific treatments. What he a GBM survivor? Because just this week my dad found out that it is growing back, but he's not so sure that he wants to go in for surgery, if you know of any alternatives or special things your dad did to survive that would be great inforation for me right now. Thank you for your time. Siberianhuskyluver05 Sat, 03 Jun 2006 00:00:00 GMT Hello there, my dad is now a little over nine months since his diagnosis with a brain tumor. Today he sees the medical oncologist and has a follow-up MRI. We are quite anxious about this as we have seen some major changes in his ability to remember and to speak. He is truly the most courageous and strongest man that I know. My dad was initially found to have a brain tumor on Aug. 21, 2005. He had surgery to remove 90% of the tumor on Aug. 29. It has been a difficult road to be honest. He had to learn how to walk, brush his teeth, etc. all over again because his tumor was deep within the left temporal lobe. The surgeon had to go thru much healthy brain tissue to get to it, and my dad has experienced major losses as a result. My dad spent two weeks as an inpatient on a rehab unit to receive physical, occupational, and speech therapy. His treatment has included 33 external beam radiation treatments along with 42-days of Temodar. He continued to take Temodar (double dose) for six months. This is pretty much the standard of care from everything that I have heard and researched. We are fortunate that my dad has been able to tolerate the chemotherapy and that the tumor cells have responded to the medications so far. My dad is very strong-willed 68-year-old and was physically strong and healthy prior to his diagnosis. He has an inner strength that is truly amazing. He has accepted losses and major changes in his abilities and is making the most of each day. We are so fortunate that he is still at home with my mom. We are surrounding him with all of the love and TLC that he can tolerate. I don't really have any "magic" solution unfortunately. I certainly wish that I did. This is a devastating journey to walk with someone that you love so much. Each day is so precious... How is your dad doing? It has to be devastating to find out that there is tumor regrowth. What did your dad decide to do? Be hopeful. Take care, Rondi caring daughter Wed, 07 Jun 2006 00:00:00 GMT