CancerCompass message board discussion started by Davidsdad on 6/9/2006 http://www.cancercompass.com/message-board/message/all,5612,0.htm Wed, 03 Dec 2008 00:00:00 GMT Wed, 03 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ hello everyone...we are new to this message board. i was poking around for information and stumbled in. i have read many of the stories from parents of children with dpg. my son also has this terrible disease and we are in the same boat as many of you. i came upon kaylasmom and was intrigued to find an alternative treatment to be working so well. im interested in learning more about the rut6/cal phos regimen as well as where i can get the mixture. like many others we have gone down the radiation, chemotherapy, decodron road only to get to this point and, not in so many words but be told there is nothing more. this makes the treatment of ruta6+ all the more interesting. we are experiencing some degrading symptoms; speech is more slurred, more difficulty swallowing and more limited mobility. we are looking for anything anywhere on the planet that gives positive results. the ruta6 seems to be the one.....kaylas mom? where can i get some of it, if you read this PLEASE send me an email so we can talk some more......prayers and best wishes to all families experiencing this! Davidsdad Fri, 09 Jun 2006 00:00:00 GMT Hi, Please contact me asap if you are still looking for alternative treatments for your son's pontine glioma. My husband has a pontine glioma and is taking Ruta/Cal right now. We're also planning on going to the Burzynski Clinic when/if the time comes. PLEASE e-mail me at --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- Mary Marycarole Fri, 30 Jun 2006 00:00:00 GMT