CancerCompass message board discussion started by Saraht on 6/9/2006 http://www.cancercompass.com/message-board/message/all,5614,0.htm Wed, 03 Dec 2008 00:00:00 GMT Wed, 03 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I would like to know if there is anyone that has had stage 1 vaginal cancer. What the treatment was for you. This is very scary for me.Thank-you Lynda Saraht Fri, 09 Jun 2006 00:00:00 GMT i too have been told i have VAIN. i understand how scary it is. im in the UK. where are you from? i only ask as where you live depends on the treatment you receive. i had a total hysterectomy 2 years ago (after cervical cancer and other gyny probs). had vault smears (from top of vagina) 6 monthly afterwards and each time ive ended up in hosp having more surgery. now my doc wants me to consider a vaginectomy or radiatherapy (both of which means penetrative sex will be impossible). im scared and confused. ive never slept around, dont have HPV, and always gone for smears etc. and im only 42. i have a few months to decide on the treatment i have next as doc said hes 100% sure its not going to spread (very few cells at the moment), and also as i detest being in hospital and everything to do with this awful disease. i thought it would all be finished when i had the hysterectomy. not for me, and i am now in the one in a million position that it keeps recurring. have you had treatment? how is it going? anyway ive rambled on for quite a bit now so am going to go. paula Paula1 Tue, 11 Jul 2006 00:00:00 GMT I went through treatment for vaginal cancer almost two years ago. I would be happy to chat with you about it. If there's a way to give you my personal email I will do it. I don't know how this website works. Judy Judithann Tue, 11 Jul 2006 00:00:00 GMT i dont know how this website works either but i would love to hear from you. i dont know what to do about all this. am so worried and scared bout it all. paula Paula1 Fri, 14 Jul 2006 00:00:00 GMT Paula--I'm posting my website here, so you can email me----- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----. I hope this gets put through to you. Judy Judithann Fri, 14 Jul 2006 00:00:00 GMT Have you been diagnosed?What were your symptoms? I have just made the decision to see a different Dr. than who I saw two years ago,because intercourse is still so painful and the Dr.'s recommendation to "relax more" didn't make any difference whatsoever. If anybody else is reading this, please let me know what your initial symptoms were. Thanks. I'm really scared about the possibility of a cancer diagnosis. Laurie Laurie jo Sun, 30 Jul 2006 00:00:00 GMT would still love to talk to you, but cant get your email address via this site, and cant post mine either. not sure what else i can do? any ideas? paula x Paula1 Sun, 20 Aug 2006 00:00:00 GMT i just wanted to ask if you have been for a smear recently? if not, then insist on having one done asap. painful sex is associated with lots of different things, cancer is not the first thing doctors will look for if you have had regular smears. where bouts are you? im in uk. i think you are wise to change your doctor as 'relax more' is hardly a sound diagnosis! dont be too worried about having cancer, it is rare and is usually detected early and is very treatable. ive had gynae problems for 21 years and im still here! if you have any other questions, let me know but in the meantime dont worry!! paula x Paula1 Sun, 20 Aug 2006 00:00:00 GMT I guess you saw that I tried to put my email address online. I didn't realize it was against the rules. I, too, wish we could get in touch but I don't have any good ideas. I am almost two years from treatment and am doing well. My doc told me that recurrence happens 80% during the first two years. I don't know if there's a difference between treatment in California opposed to UK. I had radiation and chemotherapy. Judy Judithann Sun, 20 Aug 2006 00:00:00 GMT I guess you saw that I tried to put my email address online. I didn't realize it was against the rules. I, too, wish we could get in touch but I don't have any good ideas. I am almost two years from treatment and am doing well. My doc told me that recurrence happens 80% during the first two years. I don't know if there's a difference between treatment in California opposed to UK. I had radiation and chemotherapy. Judy Judithann Sun, 20 Aug 2006 00:00:00 GMT Hi Paula-thanx so much for your response. I saw a gyno doc last week and had a very extensive exam(including smear & vaginal biopsy) and am waiting for results. One thing he said was my vagina has shrunk by over 1/2-that's a whole other issue to deal with I guess. If you'd like, I'll respond again once I hear results on tests. Thanks for the kind words of encouragement. Laurie Laurie jo Sun, 20 Aug 2006 00:00:00 GMT hi. the only thing i can think of is with regard to the emails being deleted is to tell you i have a hotmail account (.com) and that the name is paula_mahoney. wonder if this will work?? if not will try something else. paula x Paula1 Mon, 21 Aug 2006 00:00:00 GMT i know how worried you must be waiting the biopsies etc. but i am SO glad you saw a gynaecologist. i can only offer you my support,and tell you i am thinking of you. see my other message to judy if you wanna get in touch with me. how long did they say biopsie will take? when was it done? they are pretty quick here in uk. got my results in 2 weeks and that was over christmas. keep in touch laurie. paula x Paula1 Mon, 21 Aug 2006 00:00:00 GMT use alphabets and play charade in your msg to use like Kitty @my sisters house. my baby had hot milk, Mail did not come Shelart Sat, 25 Nov 2006 00:00:00 GMT use alphabets and play charade in your msg to use like Kitty @my sisters house. my baby had hot milk, Mail did not come Shelart Sat, 25 Nov 2006 00:00:00 GMT IF THEy operate can they give you sodium penathol Mazie Fri, 29 Dec 2006 00:00:00 GMT  On 7/11/2006 Paula1 wrote:i too have been told i have VAIN. i understand how scary it is. im in the UK. where are you from? i only ask as where you live depends on the treatment you receive. i had a total hysterectomy 2 years ago (after cervical cancer and other gyny probs). had vault smears (from top of vagina) 6 monthly afterwards and each time ive ended up in hosp having more surgery. now my doc wants me to consider a vaginectomy or radiatherapy (both of which means penetrative sex will be impossible). im scared and confused. ive never slept around, dont have HPV, and always gone for smears etc. and im only 42. i have a few months to decide on the treatment i have next as doc said hes 100% sure its not going to spread (very few cells at the moment), and also as i detest being in hospital and everything to do with this awful disease. i thought it would all be finished when i had the hysterectomy. not for me, and i am now in the one in a million position that it keeps recurring. have you had treatment? how is it going? anyway ive rambled on for quite a bit now so am going to go. paulaI too had total hysto thought I was clear..always something  Mazie Fri, 29 Dec 2006 00:00:00 GMT  On 7/11/2006 Judithann wrote:I went through treatment for vaginal cancer almost two years ago. I would be happy to chat with you about it. If there's a way to give you my personal email I will do it. I don't know how this website works. JudyJudy can u help me tooMazie   Mazie Fri, 29 Dec 2006 00:00:00 GMT  On 7/11/2006 Judithann wrote:I went through treatment for vaginal cancer almost two years ago. I would be happy to chat with you about it. If there's a way to give you my personal email I will do it. I don't know how this website works. Judyi just typed my personal e-mail. my mom has been diagnosed & i'm lookin for answers as well. --- Message edited by CancerCompass staff: for personal protection, email address removed.  Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- Quakyone Wed, 11 Apr 2007 00:00:00 GMT --- Message edited by CancerCompass staff: for personal protection, email address removed.  Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- Mazie Wed, 11 Apr 2007 00:00:00 GMT I want to tell u girls be careful listening to only one doctor, be sure to get a second and/or third opinion here.  I went to the health food store and got a cream to put on the clit, it stimulates your libido, and I started ready some saucy material, this help MUCH with R & R, the RELAX thing said repeatedly, remember when 'we' are stressed it is hard to relax, and when things hurt it is harder to relax, have a wine, use music, and positive thoughts "i'm gonna enjoy XXXX", make sure to tell ur partner what to do, NOT what NOT to do, teach him what YOU LIKE, and keep going, this put a strain on my marriage not knowing, not to tell him "in the bedroom" what hurts, I learned to tell him what I liked, and things got better.I do have vaginal cancer cells, biopsy-non-cancerous 3 mnths ago, now going in for laser cuff-anyhow, I'm writting in response to what has been writen, as well I must say PAIN CAN be MANY OTHER things - not just cancer- I had a DNC, and felt like I was 17 again, we're all dierent!  Good Luck to all of you!  God Bless each of you. Debsue Tue, 24 Apr 2007 00:00:00 GMT http://www.ajog.org/article/PIIS0002937805004916/abstract Debsue Tue, 24 Apr 2007 00:00:00 GMT  On 6/9/2006 Saraht wrote:I would like to know if there is anyone that has had stage 1 vaginal cancer. What the treatment was for you. This is very scary for me.Thank-you Lynda They might want to do radiation. I just finished up with that. Good Luck.It is not a walk in the park.But, they will walk you through it. Be not afraid it is not as bad as I expected. MazeMazie Sat, 15 Dec 2007 00:00:00 GMT