CancerCompass message board discussion started by Peeney on 8/11/2006 http://www.cancercompass.com/message-board/message/all,6404,0.htm Fri, 05 Sep 2008 00:00:00 GMT Fri, 05 Sep 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I guess this type of cancer is one of the rarest and hardest to get rid of. My friend was diagnosed with clear cell fallopian cancer in December 2005. I have watched her go through 2 different types of chemo and 2 surgeries to remove the cancer that kept re-appearing. She just had a pet scan the other day and found out that the cancer is back in the same spot (pelvic wall) after 4 months. This time they are going to try radiation after they operate for the 3rd time to remove this from her. She had one of the worst kind of chemos the second time as the first did nothing but make her lose her hair. The second one, which we thought was working, was given and then she remained hospitalized for days because she was so violently ill, only to find that even though she tolerated this treatment, it did nothing to the cancer. I have watched the mental and physical pain she has endured and just wonder if there is anyone out there going through what my friend is. She is only 48 years old. Peeney Fri, 11 Aug 2006 00:00:00 GMT  On 8/11/2006 Peeney wrote:I guess this type of cancer is one of the rarest and hardest to get rid of. My friend was diagnosed with clear cell fallopian cancer in December 2005. I have watched her go through 2 different types of chemo and 2 surgeries to remove the cancer that kept re-appearing. She just had a pet scan the other day and found out that the cancer is back in the same spot (pelvic wall) after 4 months. This time they are going to try radiation after they operate for the 3rd time to remove this from her. She had one of the worst kind of chemos the second time as the first did nothing but make her lose her hair. The second one, which we thought was working, was given and then she remained hospitalized for days because she was so violently ill, only to find that even though she tolerated this treatment, it did nothing to the cancer. I have watched the mental and physical pain she has endured and just wonder if there is anyone out there going through what my friend is. She is only 48 years old.  Peeney Fri, 04 May 2007 00:00:00 GMT Hello, How is your friend doing who has fallopian tube cancer?  My mom has stage IIIB fallopian tube cancer with mets to appendix and lining of rectum.  It is also clear cell.  She starts chemo next week......any advice or help would greatly be appreciate. rybar5 Sat, 08 Sep 2007 00:00:00 GMT I'm sorry to hear about your mom. So much time has passed since I posted the original message it is hard to remember what my friend went through next! Well, the cancer has not moved, it was just 2 years in Dec since her original diagnosis. She underwent 3 more chemo treatments as precautionary measure and just had her last one before Christmas. She is doing remarkably well under the circumstances. She will be going in for a CT scan at the end of January to see if the cancer has come back. I'm keeping my fingers crossed that she will get a clean bill of health. Peeney Sun, 06 Jan 2008 00:00:00 GMT my sister is 48 and has just been diagnosed with fallopian cancer at the Mayo in Rochester, MN. She is at stage 2 #4.  Will be getting her 1st round of chemo in 4 weeks. Please let me know what I can do as her younger brother. Regards,Patrick  Patrick47 Mon, 28 Jan 2008 00:00:00 GMT Hi Peeney, Any new updates on your friend? How is she doing? My mom finished her 8th out of 8 chemos and they want her to continue on maintence for one year. She has had NO scans and MD refuses when we ask. Her spirits have been great she has been amazing thru this.  I hope all is well with your friend and she is in our prayers ThanksJeanne rybar5 Sat, 15 Mar 2008 00:00:00 GMT