CancerCompass message board discussion started by Cansurvivor on 8/17/2006 http://www.cancercompass.com/message-board/message/all,6488,0.htm Tue, 02 Dec 2008 00:00:00 GMT Tue, 02 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Anyone have this type of cancer? Or know someone who does? Cansurvivor Thu, 17 Aug 2006 00:00:00 GMT i have signet ring been looking for someone to talk and relate to you saying cancer survivor is definitely incouraging would love to share more write back so we can talk please.GODBLESS!. jennifer Jennhws Sun, 27 Aug 2006 00:00:00 GMT Jennifer: Thanks so much for responding to my message. I would love to talk to you about our cancer. I was diagnosed 4 1/2 years ago and I have been in remission for two years now. It is a great thing; so there is hope. I didn't have much hope when first diagnosed because it is such a rare form of cancer and my doctors did not know how to treat it. I was referred to the Mayo Clinic in Rochester, MN and they treated it like a colon cancer. Are you having treatments now. Would love to hear from you. My e-mail address is --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----. It is easier than this message board. Can't wait to hear from you. Janet "Cansurvivor" Cansurvivor Mon, 28 Aug 2006 00:00:00 GMT i wasn't able to get your email address so maybe you can just try and get mine since you are more familiar with the web site. jennifer Jennhws Wed, 30 Aug 2006 00:00:00 GMT janet it's jennifer i guess we can talk like this if we have to let me know your there and we can talk. Jennhws Thu, 31 Aug 2006 00:00:00 GMT Sorry I haven't written back. Sometimes I can not get my computer to let me reply. After trying a couple of times, it finally let me in. I have a profile on the American Cancer Society's web-site which tells my story in a nutshell. Go to cancer.org and click on the surviors link. My profile name is Cansurvivor. Let me know if you find it. I am at work right now and getting ready to leave. I will try you again later on this weekend. I really am looking forward to talking to you. Take care! Janet Cansurvivor Fri, 01 Sep 2006 00:00:00 GMT i couldn't find your story i found some conversations you had with people but anyways i guess you can write and tell me or give me a direct route to your story web site.okay i'll begin.i was pregnant last year, at about 6 months my stomache started to hurt real bad i'm not a big complainer so i dealt with it because i knew it was my stomache and didn't feel it had any thing to do with baby this was my 3rd pregnancy.i have 3 children 9,5,and 10 months.my ob thought it was a hernia so after the baby i went to my six week check up and then got a referral to a gi doc because the pain was still there i couldn't lay on my stomache it was tender to touch.ended up being a football size tumor encircling my whole transverse colon from the inside out.i had surgery 2 weeks later 2/06. they also removed 17 lympnods 15 were cancerous.i healed from surgery for every bit of the 6 weeks,then went to my oncologist in 4/06.started chemo.at that appointment they found it in my neck cause at first we were thinking i was a 3, but my oncologist said i was most likely going to be a 4 cause he said it seemed to be more hereditary and genetic and i would most likely have tumors start popping up every where.which is exactly what has seemed to have happened because it is now also in my lungs,and liver.the 1st chemo folfox did not work for me i am now on folfire which looks like it may be working it dropped my cea by 10 points after just a couple treatments.i did complete blood work up friday,new cat scans saturday,and i go to doc wednesday so need extra prayers tuesday night.kinda scarred it's not working only because the tumor in my neck feels like tumors and just feels like it's getting bigger. it is definitely a daily reminder to be able to feel that in my neck.my oncologist was surprised when the 2nd treatment seemed to work only because he said if it was going to work it usually works the 1st time.we have known since the begining it was going to be tricky anyways cause it's signet ring.it seems like a death sentence.i was diagnoised at 29 and turned 30 in 3/06.i was told it will not go into remission when i was told i was a stage4.and i know the doctors are not GOD and hopefully we(GOD and I) will prove them wrong and i will have a miracle and be healed because it is up to GOD weither i live or die.i want to live like everyone else of course.i also just want to feel normal again.so had you metastisized?from stories i read it seems like the only people that survive are the ones who get it removed and i don't think i'm eligible for surgery.what do you think look forward to hearing from you.talk to you soon.GOD BLESS!. jennifer Jennhws Sun, 03 Sep 2006 00:00:00 GMT i found your story but please share more.my grandmother's name is janet fyi been meaning to tell you keep forgetting just thought that was neat.bye Jennhws Sun, 03 Sep 2006 00:00:00 GMT Hi,my wife was diagnosed with the signet ring cell,she has colon cancer that spread to her ovaries and peritoneal.The doctor gave her 50/50 chance in two years 10 months ago when she was first diagnosed.She went to Duke Medical last month to have the colon tumor removed however duke decided not to go ahead with surgery after doing a laparoscopy first.Next week we are on our way to wake forest for consultation: "Peritoneal Carcinomatosis Treated With Surgery And Intraperitoneal Chemohyperthermic" Faithful Mon, 04 Sep 2006 00:00:00 GMT well keep us informed.did she do chemo or is she currently? jennifer Jennhws Mon, 04 Sep 2006 00:00:00 GMT Hey Jennifer! Sorry it takes me so long to answer back. I am an instructional aide at a high school and things have been super busy here. My son also plays high school football and that takes up the rest of my time. Life keeps going on no matter what. How are things going with you? Are you on chemo now? I have been off chemo for almost three years (so there is hope). My first regiment of chemo was Captasar and 5FU and that wasn't doing anything for me so we switched to oxciliplatin (sp?) and 5FU. I was on that for about year when I started having an allergic reaction to it (it was closing up my airways when I was getting my treatments . . . kinda scarey), so we discontinued treatments and I have been off treatments ever since. The oxciliplatin was doing the trick and parts of me wished I could still handle it (until my cancer is completely gone), but that is not the case. My spot continued to decrease for about a year after treatments, but now it is just staying put. I would love to talk to you more about this. You can call me if you would like to talk. --- Message edited by CancerCompass staff: for personal protection, phone number removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- Sincerely, Janet Cansurvivor Fri, 15 Sep 2006 00:00:00 GMT I would like to know how things are going with your wife's treatments. I have signet ring carcinoma and would love to know how she is. Cansurvivor Mon, 23 Oct 2006 00:00:00 GMT Just wanted to know how things were going and if you still wanted to talk. Cansurvivor Mon, 23 Oct 2006 00:00:00 GMT  On 8/17/2006 Cansurvivor wrote:Anyone have this type of cancer? Or know someone who does?I see your message is about a year old but I just had a very dear friend diagnosed with signet ring adenacarcinoma and would love to hear your story. I tried to find yo0ur profile on cancer.org, but was not successful. Hope to hear from you. Annemarie flsunshine1951 Fri, 28 Sep 2007 00:00:00 GMT what was your treatment? what stage were you diagnosed? My mom was diagnosed 1 and 1/2 years ago stage IV and is still on chemo. kdogs Wed, 14 Nov 2007 00:00:00 GMT hello, my father who is 63 year old has just been diagnosed with signet ring carcinoma of the urinary bladder. The doctor says he is already stage 3 and he is recommending chemotherapy. I need your inputs on this since the choices here in our country (Philippines) specifically in our city (Bacolod) is quite limited. Also I learned thru the internet that this is a very rare kind of cancer and very aggressive. My siblings and I are very confused. Please help. You can email me <--Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html-- ) Thanks Rose   cherdie Sun, 15 Jun 2008 00:00:00 GMT