CancerCompass message board discussion started by Patricia P. on 7/20/2003 http://www.cancercompass.com/message-board/message/all,732,0.htm Sat, 11 Oct 2008 00:00:00 GMT Sat, 11 Oct 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Has IP6 been effective in fighting Multiple Myeloma? Patricia P. Sun, 20 Jul 2003 00:00:00 GMT I was wondering the same thing. Also, would any of Mannatech's products help. OR, add fuel to the fire? If MM is a plasma cell gone outta control, would supplements that are supposed to increase cell communication help or hurt??? Dudley C. Tue, 31 Aug 2004 00:00:00 GMT On 8/31/2004 Dudley C. wrote:I was wondering the same thing. Also, would any of Mannatech's products help. OR, add fuel to the fire? If MM is a plasma cell gone outta control, would supplements that are supposed to increase cell communication help or hurt??? Let me know if you find anything out. My partner has been diagnosed and is searching for anything on the subject! He is just 37!!!! Many Thanks my Angel Fri, 30 Mar 2007 00:00:00 GMT What exactly is IP6 and why should/could it have any effect on MM?  Thanks, Cath poppy/cath Mon, 10 Dec 2007 00:00:00 GMT please add me to your list on any information you may receive on this subject. My partner has been diagnosed with mm and is 46 years of age.Apart from a high igg and increased bone marrow he has remained stable and in good health for the past two years. however he feels like a ticking time bomb as no one can tell him if or indeed when things will change for him. Many thanks, Gillian. GillyB Sun, 27 Jan 2008 00:00:00 GMT Sorry to hear your news... know exactly what you mean about the ticking time bomb... pretty scary stuff really!!! We dont have any Family tissue type matches for my partner so it's just a wait and see game at the mo. BLAHHHH.... my Angel Mon, 28 Jan 2008 00:00:00 GMT  On 8/31/2004 Dudley C. wrote:I was wondering the same thing. Also, would any of Mannatech's products help. OR, add fuel to the fire? If MM is a plasma cell gone outta control, would supplements that are supposed to increase cell communication help or hurt??? I am very familiar with Mannatech products.  I believe they help your body's ability to fight cancer.  I have spoken to the lead research physician and he has seen amazing results in mulitiple myeleoma patients.  I take classic ambrotose two tablespoons twice daily, PLUS 2times daily, AO 2 times daily, PHYTOALOE 3 caps twice daily, PHYTOMATRIX, 2 times daily.  I also take ginger caps daily, tumeric caps daily.  The ginger and tumeric are not MANNATECH products but help with the inflammatory parts of the disease.  So far my Myleoma has stayed inactive.  It is my personal belief that alternative supplementation of vitamins and trace elements can only enhance out body's ability to correct the disease.  The new reasearch from John's Hopkins that found cancer stem cells in myleoma patients is amazing.  I believe that enhanced cell communication with help fight our disease.  Please let me know if you have other questions. Cindy d Thu, 31 Jan 2008 00:00:00 GMT  On 1/27/2008 GillyB wrote:please add me to your list on any information you may receive on this subject. My partner has been diagnosed with mm and is 46 years of age.Apart from a high igg and increased bone marrow he has remained stable and in good health for the past two years. however he feels like a ticking time bomb as no one can tell him if or indeed when things will change for him. Many thanks, Gillian. I am in the same situation as your partner.  I completely understand the ticking time bomb feeling.  On the other hand it does give a special appreciation of everyday we feel good.  I can't tell how much I took health granted and I am a nurse!! I should have known better.  Keep vigilant and yet we can't let it run our lives or the cancer wins before the battle begins.  I take supplements to help my body fight.  Some of those include ginger caps and tumeric.  My doctor at Mayo in Rochester feels that inflammation much like Rhuematoid fuels the fire for Myleoma.  They have done extensive research and clinical trials for patients with Smoldering Myleoma.  That is what the stage I is called.  I also take glyconutrients to help my cells communicate and correct damaged cells on its own.  I also believe that supplements help to prevents some of the side effects of medication given to fight this disease.  I hope this helps.Cindy Cindy d Thu, 31 Jan 2008 00:00:00 GMT Dear CindyMany thanks for your kind reply. We will give your advice a try. To be honest it's a comfort to be in contact with someone else who understands how you feel. Best wishesGillian. GillyB Thu, 31 Jan 2008 00:00:00 GMT