CancerCompass message board discussion started by Red2891 on 10/25/2006 http://www.cancercompass.com/message-board/message/all,7448,0.htm Wed, 08 Oct 2008 00:00:00 GMT Wed, 08 Oct 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ my best friend is a 42 year old brave women who has been diagnosed with cholangiocarinoma she has lost 64 pounds in 4 months does anyone no anything about this cancer and the survial rate life excepteicy they have told her sugeory is not possible the tumor has grown to the size of her liver i am so scared for her the funny thing is she isn't scared at all if you know anything about it please let me know thank you!! Red2891 Wed, 25 Oct 2006 00:00:00 GMT My wife Dawn (48 yrs) was diagnosed with cholangiocarcinoma December of 05, had liver resection done Jan 12th 06. There is a couple on good discussion groups on the web for cholangiocarcinoma. Cholangiocarcinoma dot org, and one at the John Hopkins site under bile duct and gallbladder cancer. Cholangiocarcinoma is considered a rare cancer and a difficult one to treat. I wish your friend the best in this situation. Evan14 Thu, 26 Oct 2006 00:00:00 GMT My mother was diagnosed with this and did not make it, She passed away 16 days later, three weeks after surgery. It is a very rare cancer. Only 2 in 100,000 people get this. I wish you all the best and suggest you spend all the time with this person you can, life is very short. my Moms Daughter Mon, 30 Oct 2006 00:00:00 GMT cholangiocarcinoma.org is probably the best website to visit. my mother was diagnosed in june and is putting up a brave fight. surgery was not an option for her either as the tumor was pressing up against her liver, killing many of the blood vessels on the liver so resection would have been too complicated. it also appears to have spread to the lymphnodes for her. it's been heartbreaking at times but she's currently doing chemo. i recommmend marijuana brownies if your friend is not eating. but read everything on the internet about it. it's A VERY tough cancer and survival in the long term seems like a long shot but stuff does go into remission at random. look at lance armstrong!! stay positive for her and or you. peace- david Daviddistant Fri, 10 Nov 2006 00:00:00 GMT pray for your friend and do all the things that you ever wanted to do with her now, its awful. my dad died 3 weeks after diagnosis, he had secondaries in his liver and pancreas and also suffered acute renal failure, they told us he had in excess of 30 tumours in his liver, he was only 58. good luck Bigjoge Fri, 10 Nov 2006 00:00:00 GMT I am so sorry for your loss my friend hasn't eat anything in days she stays so medicated that we can't do much but talk and pray look through pictures and cry but thank you for your message if you need to talk i am a good listner thanks lady bug Red2891 Fri, 10 Nov 2006 00:00:00 GMT  On 11/10/2006 Red2891 wrote:I am so sorry for your loss my friend hasn't eat anything in days she stays so medicated that we can't do much but talk and pray look through pictures and cry but thank you for your message if you need to talk i am a good listner thanks lady bugHappy New Year,How is your friend , please god she is getting by. In the 4 and a half months since losing my dad I really think i am losing my mind, every day he is there in my thoughts, nobody knows how i miss him, since he passed away we have had his birthday in november, christmas, the birth of our 2nd child ( dads 8th grandchild ) and new year, i pray that it will get easier soon, i have a void that wont fill and i have a pain that wont go away, i visit his graveside and talk to him regularly, just wish he could talk back, i pray that you are staying strong and that you will be given help to get through this terrible ordeal.god bless Bigjoge Mon, 08 Jan 2007 00:00:00 GMT