CancerCompass message board discussion started by Carlineann on 11/6/2006 http://www.cancercompass.com/message-board/message/all,7645,0.htm Fri, 10 Oct 2008 00:00:00 GMT Fri, 10 Oct 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I had a mastectomy in August with three lymph node positive. I had decided to try other alternatives besides chemo and radiation. I am taking Paw Paw and have had the amalgam in my teeth removed. I take many other supplements as well as eat very healthfully such as eating black grapes continuously all day long. I would like to try the Vitamin C IV but would like to hear more info about it such as the amount to take and how often. Carline Carlineann Mon, 06 Nov 2006 00:00:00 GMT t vit c. Well there are confliciting views about using vitamin c but I myself use it with 1000 to 1500mg per day. what does pawpaw do? Watchout Tue, 07 Nov 2006 00:00:00 GMT I heard that some vitamins are synthetic so i take The Greatest Vitamin In The World I got It from a friend. Aaron Tue, 07 Nov 2006 00:00:00 GMT Are you taking the chemo and radiation or just the alternate treatment? Janetv Thu, 09 Nov 2006 00:00:00 GMT I am presently not taking chemo or radiation. I was given 50grams of ascorbate vitamin C intravenouly while I was having my 4 1/2 hour amalgams with mercury taken from my old fillings. I had no side effects from the mercury from my teeth being taken out and nor from the C. I am going to start a program for vitamin C 50 grams three times a week for three months. I felt great during and after the first C treatment was given for my teeth procedure. I am looking to buy vitamin C NOT made from corn so that I can take it intravenously myself. Paw paw is a supplement that is made from tree bark and supposedly kills cancer cells. It can make you nauseous if you take too many. Carlineann Thu, 09 Nov 2006 00:00:00 GMT I try to take good vitamins, and I have heard of the Greatest Vitamin in the world. I have an organic vegetable garden year round and try to rely on vegetables, fruit, nuts, and seeds for vitamins. Oh, something I've been trying are Chia seeds. They are very remarkable. I have everyone at work trying them. Carlineann Thu, 09 Nov 2006 00:00:00 GMT I have a recurrence of breast cancer that came back as inflammatory. 2 years ago I was diagnosed with occult cancer -ie, no tumor. It was found in the lymph nodes and 13 out of 14 were positive. I had chemo and radiation and went to a naturopath in Canada for herbs and IV Vit C treatments -- 50 grams 3x/wk for one month. The recurence is inflammatory in the breast and 2 small spots in the sacrum and pelvis. so far all else is good. I am undergoing chemo - avastin and abraxane - going on week 7. I really want to do VIT C IV !! but am having a hard time finding someone in Central NY State that does it. Does anyone know of an MD who does this? Naturopaths aren't allowed to do it in NY. Thanks - I am also taking avemar and a lot of other vit/suppl;ements. Liz Lizdep Tue, 21 Nov 2006 00:00:00 GMT  On 11/6/2006 Carlineann wrote:I had a mastectomy in August with three lymph node positive. I had decided to try other alternatives besides chemo and radiation. I am taking Paw Paw and have had the amalgam in my teeth removed. I take many other supplements as well as eat very healthfully such as eating black grapes continuously all day long. I would like to try the Vitamin C IV but would like to hear more info about it such as the amount to take and how often. CarlineI had a right mastectomy 3 weeks ago and chose not to do chemo or radiation, along with that I have changed my diet drastically to a more alkaline diet, colonics 3x per week, IV vit c 4x per week, poly mva with coq10. During the iv I have increased urination and thirst due to the diuretic effect of the vitamin c sometimes i feel a bit shakey and nauseas, my doctor feels it may be effecting my blood sugar during treatment, this feeling usually resolves within 1 hour and does not typically happen to most patients, at least according to my doctor. I am curious to know how you are doing with your alternative treatment, are they following your tumor markers or anything else to check your cancer status? It is nice to find other people who are treating alternatively and to find what is working for them. I wish you great success in your journey. Please feel free to email me any time. Donna Dozer Sat, 03 Feb 2007 00:00:00 GMT Don't know about the IV but from numerous sources studies have found that you can take up to 10,000mg a day without any toxic reations.  But ou DO want to have a quality substance and I have been told by my nurse advocate that you MUST drink plenty of water since Vit C is water soluble.  Try looking up Linus Pauling on the internet.  Also Ralph Moss Sattamander Tue, 22 May 2007 00:00:00 GMT Hi,I apologize for not responding to your email about the vitamin C IV. I decided against taking the IV but have done some other types of alternative treatments. My newest treatment is three enemas a day, the first one distilled water, second is coffee, and the third is wheat sprout and probiotics. I also take a Kylo drink daily, fruit smoothies with wheat grass, and aloe with coral calcium. The aloe and calcium has brought up my ph to 6.2 as of today. It has always been around 5.5. I take a ph daily with a special meter first thing in the morning after 5 a.m.I still eat fresh veggies(parsley and swiss chard or whatever available from my garden) and fruits, eggs, some nuts and seeds, some wild caught fish. I take some supplements still like Paw paw, glutamine and glutathione, beta glucan 500mg, coq10 when no paw paw and I do liver and parasite  cleanses. God Bless you.Carline Carlineann Fri, 01 Jun 2007 00:00:00 GMT Hi Donna,I just now saw your email. How exciting to find someone else that is using alternative treatments. I have had a hard time finding other people like you. I would love to get a board of us together so that we can share and record and document our findings. I decided against the vitamin C IV but I did take 50 g while I had my teeth and cavatations taken care of and I felt great. No drying of my mouth, etc that you experienced. I hope you can read my other email of the things I am now doing with my treatments as far as nutrition and enemas and cleanses.  I was wondering how you got a doctor to give you an IV? I live near Austin, TX and there is an internal medicine doctor in Austin and a doctor in Wimberly that will give the IVs.( I hope this answers the other message that was before your message) I just did not feel comfortable about having the IV done continuously. Call it intuition I guess.  I have not done anything for markers but I did order the AMAS test which was sent to me from a group out of Houston. Now I need a doctor to give it to me. It is a blood test for cancer. I will try the doctor in Wimberly. The one in Austin wants me to do Chelatan and vitamin C IV first.Please keep in touch and let me know how you are doing and what you are doing. God Bless.Carline  Carlineann Fri, 01 Jun 2007 00:00:00 GMT Hi Donna,I just now saw your email. How exciting to find someone else that is using alternative treatments. I have had a hard time finding other people like you. I would love to get a board of us together so that we can share and record and document our findings. I decided against the vitamin C IV but I did take 50 g while I had my teeth and cavatations taken care of and I felt great. No drying of my mouth, etc that you experienced. I hope you can read my other email of the things I am now doing with my treatments as far as nutrition and enemas and cleanses.  I was wondering how you got a doctor to give you an IV? I live near Austin, TX and there is an internal medicine doctor in Austin and a doctor in Wimberly that will give the IVs.( I hope this answers the other message that was before your message) I just did not feel comfortable about having the IV done continuously. Call it intuition I guess.  I have not done anything for markers but I did order the AMAS test which was sent to me from a group out of Houston. Now I need a doctor to give it to me. It is a blood test for cancer. I will try the doctor in Wimberly. The one in Austin wants me to do Chelatan and vitamin C IV first.Please keep in touch and let me know how you are doing and what you are doing. God Bless.Carline  Carlineann Fri, 01 Jun 2007 00:00:00 GMT  On 6/1/2007 Carlineann wrote:Hi Donna,I just now saw your email. How exciting to find someone else that is using alternative treatments. I have had a hard time finding other people like you. I would love to get a board of us together so that we can share and record and document our findings. I decided against the vitamin C IV but I did take 50 g while I had my teeth and cavatations taken care of and I felt great. No drying of my mouth, etc that you experienced. I hope you can read my other email of the things I am now doing with my treatments as far as nutrition and enemas and cleanses.  I was wondering how you got a doctor to give you an IV? I live near Austin, TX and there is an internal medicine doctor in Austin and a doctor in Wimberly that will give the IVs.( I hope this answers the other message that was before your message) I just did not feel comfortable about having the IV done continuously. Call it intuition I guess.  I have not done anything for markers but I did order the AMAS test which was sent to me from a group out of Houston. Now I need a doctor to give it to me. It is a blood test for cancer. I will try the doctor in Wimberly. The one in Austin wants me to do Chelatan and vitamin C IV first.Please keep in touch and let me know how you are doing and what you are doing. God Bless.Carline Hi Carline,  I did not get to see which treatments you are doing, I found this message board by accident (not very computer savvy!) so I have only been receiving responses to my initial post. I am starting to wean off the Vit C, it still makes me feel ill, my tumor markers have come down but there is no specific test for breast cancer. I have heard of the AMAS but for some reason my doctor does not want to do it. He works with a naturopath who does recommend it though.I am finding  there is alot of people into natural therapies, the more I network the more people I meet. I met a woman who is a professor, she has some friends into research who have recommended something called Zeolite, (I think that's the name) I will send you the website. If you would like I will give you my email address and we can share info. please let me know what and how you are doing. What type of cancer do you have?     Take Care, talk to you soon-Donna Dozer Sat, 02 Jun 2007 00:00:00 GMT  On 6/1/2007 Carlineann wrote:Hi,I apologize for not responding to your email about the vitamin C IV. I decided against taking the IV but have done some other types of alternative treatments. My newest treatment is three enemas a day, the first one distilled water, second is coffee, and the third is wheat sprout and probiotics. I also take a Kylo drink daily, fruit smoothies with wheat grass, and aloe with coral calcium. The aloe and calcium has brought up my ph to 6.2 as of today. It has always been around 5.5. I take a ph daily with a special meter first thing in the morning after 5 a.m.I still eat fresh veggies(parsley and swiss chard or whatever available from my garden) and fruits, eggs, some nuts and seeds, some wild caught fish. I take some supplements still like Paw paw, glutamine and glutathione, beta glucan 500mg, coq10 when no paw paw and I do liver and parasite  cleanses. God Bless you.CarlineHi Carline,        It's Donna again I just found your posting on what you are doing, I will go back and read it again more thoroughly, thanks for responding to my post. Take care-Donna  Dozer Sat, 02 Jun 2007 00:00:00 GMT  On 6/1/2007 Carlineann wrote:Hi,I apologize for not responding to your email about the vitamin C IV. I decided against taking the IV but have done some other types of alternative treatments. My newest treatment is three enemas a day, the first one distilled water, second is coffee, and the third is wheat sprout and probiotics. I also take a Kylo drink daily, fruit smoothies with wheat grass, and aloe with coral calcium. The aloe and calcium has brought up my ph to 6.2 as of today. It has always been around 5.5. I take a ph daily with a special meter first thing in the morning after 5 a.m.I still eat fresh veggies(parsley and swiss chard or whatever available from my garden) and fruits, eggs, some nuts and seeds, some wild caught fish. I take some supplements still like Paw paw, glutamine and glutathione, beta glucan 500mg, coq10 when no paw paw and I do liver and parasite  cleanses. God Bless you.CarlineHi Carline,        It's Donna again I just found your posting on what you are doing, I will go back and read it again more thoroughly, thanks for responding to my post. Take care-Donna  Dozer Sat, 02 Jun 2007 00:00:00 GMT Donnna and Carline,  Hello, I am Terry Durham from TN and I just saw your posts on vit c iv.  Must have meant to be....I had my first iv therapy today at the oncologists office.  I will receive 8 more treatments one a week.  Dr. Mitchell Gaynor Onclolgist from New York (google him) ordered after I finished 12 chemo treatments.  Stage iv lung.  Feel great.  Take over 35 nutritional supplements a day prescribed by Dr. Gaynor.  Please email me with any questions if you have any.  I am so excited to finally find someone that is interested in alternative therapy.  Thanks, Terry Thomascade Tue, 12 Jun 2007 00:00:00 GMT  On 6/1/2007 Carlineann wrote:Hi Donna,I just now saw your email. How exciting to find someone else that is using alternative treatments. I have had a hard time finding other people like you. I would love to get a board of us together so that we can share and record and document our findings. I decided against the vitamin C IV but I did take 50 g while I had my teeth and cavatations taken care of and I felt great. No drying of my mouth, etc that you experienced. I hope you can read my other email of the things I am now doing with my treatments as far as nutrition and enemas and cleanses.  I was wondering how you got a doctor to give you an IV? I live near Austin, TX and there is an internal medicine doctor in Austin and a doctor in Wimberly that will give the IVs.( I hope this answers the other message that was before your message) I just did not feel comfortable about having the IV done continuously. Call it intuition I guess.  I have not done anything for markers but I did order the AMAS test which was sent to me from a group out of Houston. Now I need a doctor to give it to me. It is a blood test for cancer. I will try the doctor in Wimberly. The one in Austin wants me to do Chelatan and vitamin C IV first.Please keep in touch and let me know how you are doing and what you are doing. God Bless.Carline  Carline, Just saw your post on Vit c and alternative treatments.  I am very interested in joining the group who want to discuss and track any treaments that patients are taking.  I am lung stage IV, 8 PET scans are clear and am on Tarceva for maintenance.   I have an oncologist in my town and one in New York.  He is the nutrition and Vit.C guy.  Alot more to share if someone is interested.  I would love to share all info I have if it might help someone else with cancer.  Blessings, Terry Thomascade Tue, 12 Jun 2007 00:00:00 GMT Carline, Where did you purchase the PH monitor? Thanks, Terry Thomascade Tue, 12 Jun 2007 00:00:00 GMT  On 11/21/2006 Lizdep wrote:I have a recurrence of breast cancer that came back as inflammatory. 2 years ago I was diagnosed with occult cancer -ie, no tumor. It was found in the lymph nodes and 13 out of 14 were positive. I had chemo and radiation and went to a naturopath in Canada for herbs and IV Vit C treatments -- 50 grams 3x/wk for one month. The recurence is inflammatory in the breast and 2 small spots in the sacrum and pelvis. so far all else is good. I am undergoing chemo - avastin and abraxane - going on week 7. I really want to do VIT C IV !! but am having a hard time finding someone in Central NY State that does it. Does anyone know of an MD who does this? Naturopaths aren't allowed to do it in NY. Thanks - I am also taking avemar and a lot of other vit/suppl;ements. LizHi Liz,I know someone in Queens who'll do the VitC drip. My mom is tarting it tomorrow. The only thing is, she needs an okay from the oncologist. If you're interested I'll get you the address, # and name of the clinic.~Suyzanna suyzanna Tue, 18 Sep 2007 00:00:00 GMT