CancerCompass message board discussion started by Maggie l on 11/12/2006 http://www.cancercompass.com/message-board/message/all,7757,0.htm Fri, 05 Sep 2008 00:00:00 GMT Fri, 05 Sep 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I am suffering Neuropathy as a result of a 3rd Cycle of Velcade. Has anyone out there had it? Does it go away? How long did it last if it did go away? Is someone out there using something other than pain killers that help. I switch between Codine and Extra Strength Asprin. I find my One a Day Vitamins help and am considering a B suppliment. Maggie Maggie l Sun, 12 Nov 2006 00:00:00 GMT SEE "GOOD NEWS" MESSAGE.....Developed Perpherial Neuropathy (PN) in Jan'05 after six months of chemo, from using different chemo drugs than yours.....Was treated one year with Gabapenten (Pfzier) with no help.....While searching the INTERNET came across a new drug, Lyrica also from Pfizer.....It is suppose to treat PN due to Diabetes.....Will be asking my Neurologist about it.....Am told that PN sometimes goes away on its own. However, I met a nurse who has had PN for over seven years.....Anthony, Largo, FL --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- Antpnd Thu, 16 Nov 2006 00:00:00 GMT Please see my post on peripheral Neuropathy. Feel free to contact me for more information. Scip111 Thu, 30 Nov 2006 00:00:00 GMT Dear Scip111 I've searched everywhere and cannot find the subject Peripheral Neuropathy. What are you under? Are you under Multiple Myeloma, because that is where I am looking. I am now in the hospital having my transplant. This is day +8 and am just starting to feel a bit better. My nurse has me on Gabapentin....40 mg's 3 times a day. Still need Codeine every so often though. Maggie l Fri, 01 Dec 2006 00:00:00 GMT http://www.delloninstitutes.com/ I put my message under "side effects" and the "after treament" sections. Essentially, I am recommending people check out the above website and the work Dr. Lee Dellon. I am a reporter who has interviewed patients he has helped and I think the results are impressive to say the least. I hope it works out for you. http://www.delloninstitutes.com/ Scip111 Tue, 05 Dec 2006 00:00:00 GMT I feel for you no pun intended.  I have been thru the peripheral neuropathy thing for over 4 yrs. now.  First of all that is a very broad diagnosis.  I traveled twice to the "best of the best" in neurosurgery in the US and got no answers.  One surgeon after allowing his residents to "practice" medicine on me with a very painful EMG, said that he would cut me open for some exploratory surgery guaranting nothing but a scar from the middle of my chest to my elbow.  The next MD performed no tests Thank God, he only suggested a $45,000 electrostimultion box with a %41 success rate. No Thanks.  Meanwhile I was offered methadose- synthetic morphine which my pain management MD assured me I would become functional on just like some of the surgeons in towm that were taking it and operating.  I took neurontin up to 3200 mg per day (the more you take the less it works- the nature of the rx).  Finally I am on Lyrica which has by far worked the best for me and Topamax.  They are both anti-convulsants, with their share of side effects ( blurred vision, short-term memory loss being the worst to me).  Benefits outweigh the shortcomings.  Check out those drugs if you get a chance.  Let me suggest something else.  Look into RSD- Reflex Sympathetic Dystrophy, it is what Paula Abdul has.  I had never heard of it until my internist here in town mentioned it and neurologist who has dealt with it for over 10 years diagnosed me with it.  First and foremost be informed, be your own advocate, and if it doesn't feel right to you then it probably isn't.  Hopefully I offered you some useful info.  Lyrica. penni sue Sat, 22 Sep 2007 00:00:00 GMT