CancerCompass message board discussion started by Noland D. on 12/9/2003 http://www.cancercompass.com/message-board/message/all,801,0.htm Sat, 11 Oct 2008 00:00:00 GMT Sat, 11 Oct 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My Atypical Chronic Lymphocytic Leukemia (CLL)is being treated with 3 mg of Low Dose Naltrexone (LDN) taken nightly between the hours of 9 PM -3 AM with excellent results being achieved. Since LDN works on many cancer types, is anyone else taking it and what results are being obtained? Noland D. Tue, 09 Dec 2003 00:00:00 GMT I have CLL. I was diagnosed, stage 4, in 2002. I had four months of treatment. The first day -- Rituxan, Cyclophosphamide and Fludarabine -- all via my implanted port (my veins are not strong enough) -- second day Cyclophosphamide and Fludarabine -- third day Cyclophosphamide and Fludarabine -- seventh day Rituxan. This was the first month. Next treatment -Rituxan every three months. I am happy you only have to take pills. I also get an infusion of Gamma Globlin once a month to boost my immune system. I have some side affects from the Gamma Globlin --- blood clots in my legs. I had major surgery March this year -- LE Arterial Thrombus & Commonlice Artery Stenoris --blood clots removed from by right leg. Only one week of hospital stay. I now take blood thinners. All is good -- I still have all ten toes on both feet!!! Count your blessings. I count mine every day. Paula F. Grand Prairie, TX Paula F. Wed, 26 May 2004 00:00:00 GMT On 12/9/2003 Noland D. wrote:My Atypical Chronic Lymphocytic Leukemia (CLL)is being treated with 3 mg of Low Dose Naltrexone (LDN) taken nightly between the hours of 9 PM -3 AM with excellent results being achieved. Since LDN works on many cancer types, is anyone else taking it and what results are being obtained? I am considring treating my CLL with low-dose naltrexone. Are you still reading this message board? Is there anyone out there who is on this medication? I would be very interested in knowning how it's worked on CLL. Thanks! - D denarodg Wed, 08 Aug 2007 00:00:00 GMT  On 12/9/2003 Noland D. wrote:My Atypical Chronic Lymphocytic Leukemia (CLL)is being treated with 3 mg of Low Dose Naltrexone (LDN) taken nightly between the hours of 9 PM -3 AM with excellent results being achieved. Since LDN works on many cancer types, is anyone else taking it and what results are being obtained?For my very aggressive form of CLL, I began LDN 9 months ago, 4.5 mg, after my second round of chemo therapy brought my white cell count from 148K to 3.9K, however after a few weeks the WBC began to double & triple in spite of taking LDN every night. I have just been to the Hemalology Department at Stanford University Cancer Center & they have  a new protocol ready for me to begin which includes 3 types of chemo & 3 prescription drugs. I was supposed to begin today but have postponed it for a couple of weeks as I  am afraid of all the damage that will be done to my body & the new cancers that CLL patients seem to get after being treated with chemo.. After the initial treatment, they plan to keep me on a maintenance plan for years. I have been a vegan for 10 years & all my food is organic & about 70% raw. I take the super anti-oxidents "Noni" & "Mangosteen" I take "ECGC" a component of green tea which the Mayo clinic has shown reduces theWBC in CLL patients. I have done Dr. Schulze's"Incurables" program, 4 weeks of flushing the liver, kidney, bowels. I have attended "The Optimum Health Institute" (OHI) in San Diego, after which my WBC went down about 10,000 & stayed down for a few weeks until my life became extremely stressful & full of anxiety (unrelated to my CLL) & the numbers went back up. I do yoga & meditation to try to control the anxiety.  I am just starting Essaic Tea & a modified macrobiotic diet. I have energy work & Reiki done each month, also accupuncture & massage.  You can't say I'm not trying. Except for low energy (could also be due to depression) I don't feel bad. No night sweats. I do have bulky lymph nodes, The ones in my neck & jaw are smaller since I did the "Schulze" program. My immune system is not weak, as  people  around me have colds & I don't get them - I attribute this to "Host Defense", a blend of Japanese mushrooms that I take daily.I had pinned all my hopes on the LDN when I first heard about it & I still haven't given up on it. It may be that it will take longer to work on me as my disease is so aggressive & comes back more aggressive after chemo.  My system is so pure right now (apart from the disease) I DO NOT WANT TO POISON IT WITH MORE CHEMO & DRUGS. Friends say how well I look.Cordelia    cordelia Mon, 02 Jun 2008 00:00:00 GMT