CancerCompass message board discussion started by Musiclover on 12/15/2006 http://www.cancercompass.com/message-board/message/all,8299,0.htm Tue, 02 Dec 2008 00:00:00 GMT Tue, 02 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Looking for treatment in Mexico after friends cancer spread to liver and lungs, he's had three chemo regimens and nothing's worked.  Dr. said "chemo is not working."  No kidding.  Now want to put him on trial with Erbitux and something called E7820.  Not much home that traditional methods will suddenly work and concerned that more will just do in him.  Already tired constantly with back pain and no appetite. Has anyone our there with stage IV and mets gone into remission?  Tired of the promises and worsening health problems.   Kathryn http://www.acscsn.org/webpages/view    Musiclover Fri, 15 Dec 2006 00:00:00 GMT  On 12/15/2006 Musiclover wrote:Looking for treatment in Mexico after friends cancer spread to liver and lungs, he's had three chemo regimens and nothing's worked.  Dr. said "chemo is not working."  No kidding.  Now want to put him on trial with Erbitux and something called E7820.  Not much home that traditional methods will suddenly work and concerned that more will just do in him.  Already tired constantly with back pain and no appetite. Has anyone our there with stage IV and mets gone into remission?  Tired of the promises and worsening health problems.   Kathryn http://www.acscsn.org/webpages/view   Hi Kathryn,Conventional medicine doesn't have many Stage IV survival stories. There is a nonprofit/nontoxic center that has a 65 year history of successfully treating late stage conditions.  I believe every cancer patient should embrace the therapy that was perfected at this center.  Here's the web address:www.gerson.org             (888) 443-7766        (619) 685-5353 PSTAnother nonprofit/nontoxic center with a 30 year history of successfully dealing with critically ill patients is at the following address:www.Brightspot.org         (316) 682-3100  CSTIf economically feasible...I would embrace both of these therapies.Morgan Fairbite Fri, 15 Dec 2006 00:00:00 GMT Kathryn,I was diagnosed with stage IV cancer of the tongue that had spread to my lymph nodes in September 2004. I had surgery followed by radiaiton and chemo. And so far so good. I have had testing done every 3 months and so far I am clear of cancer .Sue Sue63 Fri, 15 Dec 2006 00:00:00 GMT Kathryn,As a response to Morgan's email, I say "Be careful".  Alternative therapies are dubious.  They can point to a few survivors, but so can conventional medicine.Most alternative clinics are just out for your money.  If they could cure even 5% of stage IV cancers, there would be a stampede to get into their clinic.Look hard at their claims.  Look hard at the condition of your friend.  I hope you can find a cure.  Your friend is lucky to have you.Rick Wamba138 Fri, 15 Dec 2006 00:00:00 GMT Please read all material you can get your hands on regarding IV Vitamin C therapy as an alternative or adjunct treatment to chemo. There is currently clinical safety trials going on showing some promising results. It would certainly be worth a try. Lemondrop Fri, 15 Dec 2006 00:00:00 GMT I have been using alternative therapy for my cancer for over two and a half years and have never felt healthier in my life. When I was diagnosed in May 2004 with non Hodgkin's lymphoma, a cancerous lymph node on the heart and a large mass in my chest which had caused the partial collapse of my right lung, the onc I was referred to told me I would need the strongest chemo available in order to "perhaps" save myself. Instead, I did lots of research and opted for an alternative path. I follow a regimen for detoxification and regeneration which I will gladly supply free of charge for anyone interested. In actuality, there are many many people flocking to the doors of reputable alternative clinics. If you look up the statistics, over 60% of Americans and about the same percentage of Canadians are using alternative medicine for many conditions. There is a worlwide movement towards this modality and other modalities as well one very important one being the mind/body connection. Anyone interested in doing their own research on this subject should feel free to contact me and I can supply you with some very informative websites. There is ALWAYS hope! Shemay On 12/15/2006 Wamba138 wrote: Quote Kathryn,As a response to Morgan's email, I say "Be careful".  Alternative therapies are dubious.  They can point to a few survivors, but so can conventional medicine.Most alternative clinics are just out for your money.  If they could cure even 5% of stage IV cancers, there would be a stampede to get into their clinic.Look hard at their claims.  Look hard at the condition of your friend.  I hope you can find a cure.  Your friend is lucky to have you.Rick -----end quote------ Shemay Fri, 15 Dec 2006 00:00:00 GMT I am a stage IV survivor.  I had colon cancer with mets to the liver.  By my initial Dr.'s I was told I could die at any minute and could live for 18 months with surgery.  I kept doing research and looked for good Dr.'s.My new Dr.'s said although stage IV is bad, they thought they could cure me.    I could not believe I was that sick, when I seemed so healthy.  Even after my annual physical, I was told I was healthy.  It was a total fluke that I even had a colonoscopy.  I was diagnosed in July of '04, I finished my chemo in June of '05 and am doing quite well.  I started off with dismal odds of 5% chance of survival, up to 80%.  I'm cancer free and extremely greatful.   Cptmac Fri, 15 Dec 2006 00:00:00 GMT  On 12/15/2006 Shemay wrote:I have been using alternative therapy for my cancer for over two and a half years and have never felt healthier in my life. When I was diagnosed in May 2004 with non Hodgkin's lymphoma, a cancerous lymph node on the heart and a large mass in my chest which had caused the partial collapse of my right lung, the onc I was referred to told me I would need the strongest chemo available in order to "perhaps" save myself. Instead, I did lots of research and opted for an alternative path. I follow a regimen for detoxification and regeneration which I will gladly supply free of charge for anyone interested. In actuality, there are many many people flocking to the doors of reputable alternative clinics. If you look up the statistics, over 60% of Americans and about the same percentage of Canadians are using alternative medicine for many conditions. There is a worlwide movement towards this modality and other modalities as well one very important one being the mind/body connection. Anyone interested in doing their own research on this subject should feel free to contact me and I can supply you with some very informative websites. There is ALWAYS hope! Shemay On 12/15/2006 Wamba138 wrote: Quote Kathryn,As a response to Morgan's email, I say "Be careful".  Alternative therapies are dubious.  They can point to a few survivors, but so can conventional medicine.Most alternative clinics are just out for your money.  If they could cure even 5% of stage IV cancers, there would be a stampede to get into their clinic.Look hard at their claims.  Look hard at the condition of your friend.  I hope you can find a cure.  Your friend is lucky to have you.Rick -----end quote------Shemay, you talk about alternative medicine in your story, i was wondering if you could let me know what you did in your regiment for detoxification. My husband has cancer of the pancreas and now has moved to the lungs. he has done chemo for 8 months and the cancer in the pancreas has stayed the same, but the nodes in the lungs seem to be getting bigger. we just start using alternative treatments and would love some more info on it..I thank you for you time and info..all the best vic Victerina Fri, 15 Dec 2006 00:00:00 GMT Who is your doctor?  Everyone's given up on Mark.  He's at County hospital in Los Angeles.Thanks!Kathryn  Musiclover Fri, 15 Dec 2006 00:00:00 GMT This is my oncologisthttp://www.med.umn.edu/hot/faculty/greeno/home.html He can get you through the system.  However he works with gastreointestinal cancers.  I didn't see where Mark's original cancer came from.  Here is the phone number for the scheduling desk800-688-5252 Ask for the Masonic Cancer CenterThe non-800 is 612-625-5411 x2 x1The triage nurse's number is Triage nurse 612-626-9627My Primary Care Physician up there is http://www.med.umn.edu/gim/faculty/macomberd.html His number is 612-624-9499 x2The Mayo clinic is also a great place to go to.  I chose to go to the U of M because Dr. Rothenburger is one of America's Top Doctors for colon surgery. I'll be gone for the weekend, but I'm always happy to answer any questions.  I know when I was first diagnosed, I was desperate to find what worked for other Stage IV colon cancer survivors.  Sadly, no one was on the board to help me.  Let me know how I can be of help. Cptmac Fri, 15 Dec 2006 00:00:00 GMT Here is a site that lists the best hospitals.  http://www.usnews.com/usnews/health/best-hospitals/rankings/ What it won't tell you is where the super Dr.'s are.  Afterall, Lance Armstrong went to M.D. Anderson and was given dismal odds.  He saw a Dr. in Indiana, and I'm sure you know the rest of the story.Good luck and keep searching.  I'm glad I did. Cptmac Fri, 15 Dec 2006 00:00:00 GMT Hi Kathryn,My husband is a Stage IV survivor -- he was originally diagnosed (in June 2005) with Stage III Colon cancer, but it was discovered during the colon resection that he was a Stage IV -- he underwent 12 rounds of Folfox/5FU and Avastain then had the liver resection in April 2006.  He has been cancer-free since then -- All of his blood work has shown CEA levels in normal range and next month he starts with the scans (we're just a little nervous)We also did nutrional/vitamin supplements as well (we had his oncologist's okay on everything he was taking)Survivors are out there -- don't ever give up hope -- you just may have to fight for what you want and even go to a different doctor.God Bless -- I will keep you & your friend in my prayers.Lori Lorid Fri, 15 Dec 2006 00:00:00 GMT On 12/15/2006 Musiclover wrote:Looking for treatment in Mexico after friends cancer spread to liver and lungs, he's had three chemo regimens and nothing's worked.  Dr. said "chemo is not working."  No kidding.  Now want to put him on trial with Erbitux and something called E7820.  Not much home that traditional methods will suddenly work and concerned that more will just do in him.  Already tired constantly with back pain and no appetite. Has anyone our there with stage IV and mets gone into remission?  Tired of the promises and worsening health problems.   Kathryn http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view    Oasis of Hope in Mexico or Gerson Therapy. My wife has stage three breast cancer, she will be going to Gerson Center on Big Island, Hawaii for two week treatment from end of this month. she has kept it under control for two years with strict diet and supplements. she started taking arimidex 6 months ago with no side effects so far. her CA15-3 marker doubled from 15.9 to 34.9 recently along with tumor flattening out. all other markers remain stable indicating to her oncologist that the cancer is dying. told her to keep doing whatever she is doing. we believe, the two week gerson treatment will finish the job. Bronzecat Fri, 15 Dec 2006 00:00:00 GMT There is a Dr. Burzynski in Houston,Texas. Web sight is cancermed.com.Doing some great things using a non toxic approach. Called antineoplastons. The mainstream medical community do not talk about him much. But he is presently in stage 3 clinical trails with this drug. He is someone who really cares. It would be worth your time to at least check him out. The Burzynski Clinic @ 713-335-5697 Leon jr Fri, 15 Dec 2006 00:00:00 GMT The Gerson Institute is a good valid treatment center in Mexico.  It is expensive but what is a life worth?  My nephew shrunk his large brain tumor using the Gerson method at home with the help of his Dad.  It is a strict regimen but absolutely a health building one.  My nephew refused to have any of the conventional treatments of chemo or radiation and it was a blessing that he did refuse those treatments.  There are many web sites for alternative methods of fighting cancer.  Try www.beating-cancer-gently.com Good luck and God Bless Triker Sat, 16 Dec 2006 00:00:00 GMT  On 12/15/2006 Bronzecat wrote: On 12/15/2006 Musiclover wrote:Looking for treatment in Mexico after friends cancer spread to liver and lungs, he's had three chemo regimens and nothing's worked.  Dr. said "chemo is not working."  No kidding.  Now want to put him on trial with Erbitux and something called E7820.  Not much home that traditional methods will suddenly work and concerned that more will just do in him.  Already tired constantly with back pain and no appetite. Has anyone our there with stage IV and mets gone into remission?  Tired of the promises and worsening health problems.   Kathryn http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view  " target="_blank" rel="nofollow">http://www.acscsn.org/webpages/view    Oasis of Hope in Mexico or Gerson Therapy. My wife has stage three breast cancer, she will be going to Gerson Center on Big Island, Hawaii for two week treatment from end of this month. she has kept it under control for two years with strict diet and supplements. she started taking arimidex 6 months ago with no side effects so far. her CA15-3 marker doubled from 15.9 to 34.9 recently along with tumor flattening out. all other markers remain stable indicating to her oncologist that the cancer is dying. told her to keep doing whatever she is doing. we believe, the two week gerson treatment will finish the job. The Gerson Institute is a good valid treatment center in Mexico.  It is expensive but what is a life worth?  My nephew shrunk his large brain tumor using the Gerson method at home with the help of his Dad.  It is a strict regimen but absolutely a health building one.  My nephew refused to have any of the conventional treatments of chemo or radiation and it was a blessing that he did refuse those treatments.  There are many web sites for alternative methods of fighting cancer.  Try www.beating-cancer-gently.com Good luck and God Bless Triker Sat, 16 Dec 2006 00:00:00 GMT Go online and find out all you can about IP6. There are a couple of great books about IP6. I think you can order them on Amazon.comDon Noel Self Sat, 16 Dec 2006 00:00:00 GMT SO, here is where I say it all depends on the specific cancer, and the person. Cancer is a personal disease, and what workd a miracle for one will fail for another. All that we have are statistics to go by, but the good news is that stats do not account for the unexplainable remissions that occur. I would encourage you to explore every option including homeopathic medicine, and medicine outside of this country, such as in the UK. They are making great strides with experimental therapies that are not permitted here in this country because of politics. Don't give up, fight the good fight, and know that you are not alone, There are some major universities that so have great experimental treatments, so I would check out Johns Hopkins in Baltimore Maryland, and Duke University In North Carolina.Thoughts and PrayersShawna Wepayhopkins Sat, 16 Dec 2006 00:00:00 GMT On 12/15/2006 Victerina wrote: On 12/15/2006 Shemay wrote:I have been using alternative therapy for my cancer for over two and a half years and have never felt healthier in my life. When I was diagnosed in May 2004 with non Hodgkin's lymphoma, a cancerous lymph node on the heart and a large mass in my chest which had caused the partial collapse of my right lung, the onc I was referred to told me I would need the strongest chemo available in order to "perhaps" save myself. Instead, I did lots of research and opted for an alternative path. I follow a regimen for detoxification and regeneration which I will gladly supply free of charge for anyone interested. In actuality, there are many many people flocking to the doors of reputable alternative clinics. If you look up the statistics, over 60% of Americans and about the same percentage of Canadians are using alternative medicine for many conditions. There is a worlwide movement towards this modality and other modalities as well one very important one being the mind/body connection. Anyone interested in doing their own research on this subject should feel free to contact me and I can supply you with some very informative websites. There is ALWAYS hope! Shemay On 12/15/2006 Wamba138 wrote: Quote Kathryn,As a response to Morgan's email, I say "Be careful".  Alternative therapies are dubious.  They can point to a few survivors, but so can conventional medicine.Most alternative clinics are just out for your money.  If they could cure even 5% of stage IV cancers, there would be a stampede to get into their clinic.Look hard at their claims.  Look hard at the condition of your friend.  I hope you can find a cure.  Your friend is lucky to have you.Rick -----end quote------Shemay, you talk about alternative medicine in your story, i was wondering if you could let me know what you did in your regiment for detoxification. My husband has cancer of the pancreas and now has moved to the lungs. he has done chemo for 8 months and the cancer in the pancreas has stayed the same, but the nodes in the lungs seem to be getting bigger. we just start using alternative treatments and would love some more info on it..I thank you for you time and info..all the best vic Here is the regimen you requested. Hopefully it will be of help to others as well. A REGIMEN FOR REGENERATION AND DETOXIFICATION 1st thing in morning ESSIAC tea-----one hour later 6 to 8 oz carrot juice before lunch----- 6 to 8 oz concord grape juice before dinner---- 6 to 8 oz carrot juice 2 hrs after dinner---- 6 to 8 oz concord juice Last thing at night--- ESSIAC tea-------VERY IMPORTANT ALSO VERY IMPORTANT......Take 1,000mg natural source Vitamin C with each meal and before bedtime. All juices should be consumed on an empty stomach and should be organic if possible. If you are not familiar with ESSIAC tea I shall send you the recipe for homemade. FOODS TO INCLUDE IN DIET Beverages Herbal teas (green especially good), soya, sesame or nut milks Dandelion coffee Bread Only whole grains, free of all preseratives. (I personally use only Ezekiel Bread 4:9.......completely flourless) Cereals Millet, oatmeal,brown and wild rice, buck-wheat groats, barley, cornmeal and 7 grains. Freshly ground only. Cheese None....NO DAIRY PRODUCTS Tofu (soya cheese) Desserts Fresh whole fruits, fruit cocktails, stewed fruits, natural fruit gelatin, whole tapioca. Sweeten with honey or STEVIA. Eggs NONE-----FORBIDDEN Fat Most cold-pressed unsaturated oils such as canola, safflower, sesame, walnut, corn, soya, avocados. Nut butters, walnut butter, almond butter, sesame seed butter. Fish Fresh water and sea fish, (very fresh) Broiled, baked or poached. Fruits Organically grown whenever possible. Use citrus sparingly except for the Peelings of oranges not the pulp. Fresh fruits, apples, apricots, bananas, cherries, currants, grapes, guava, mangoes, berries, melon, nectarines, papaya, peaches, pineapple, pears, plums,persimmons,tangerines. Meats Chicken, small amounts of lean beef FOODS TO AVOID Alcohol, cocoa, coffee, milk, soft drinks. Any baked products made out of WHITE FLOUR Processed cereals which are flaked, puffed etc. NO WHITE RICE Canned or frozen fruits . All pastires, Jello, custards, sauces, ice cream, candy except those made with suggested health ingredients. Butter, shortening, margerine, saturated oils and fats, cottonseed oil. Rancid and continuously-heated oils . Smoked and salted fish. Fish preserved in antibiotics. NO SHELL FISH. NO PORK. Sprayed and sulfured fruit or canned and frozen Eat ALL foods, as much as possible in their natural, uncooked or undercooked state. Eat only foods that will rot, but eat them in the most fresh state available. Have BTA testing done by a Naturopath to ascertain what supplements are needed to bring your system into balance. Also very important do deep breathing exercises along with meditation and visualization several times a day. Shemay Sun, 17 Dec 2006 00:00:00 GMT How do you contact someone.......you said "email me and I will forward the information........I don't know how??? Farmer Sun, 17 Dec 2006 00:00:00 GMT Sorry the Regimen for Detoxification and Regeneration came through so compacted it is hard to follow. Please contact me at my e mail address and I shall re send it in it's proper form. Shemay Shemay Sun, 17 Dec 2006 00:00:00 GMT  On 12/17/2006 Farmer wrote:How do you contact someone.......you said "email me and I will forward the information........I don't know how??? my E mail address is --- Message edited by CancerCompass staff: for personal protection, email address removed.  Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- Shemay Sun, 17 Dec 2006 00:00:00 GMT  On 12/15/2006 Shemay wrote:I have been using alternative therapy for my cancer for over two and a half years and have never felt healthier in my life. When I was diagnosed in May 2004 with non Hodgkin's lymphoma, a cancerous lymph node on the heart and a large mass in my chest which had caused the partial collapse of my right lung, the onc I was referred to told me I would need the strongest chemo available in order to "perhaps" save myself. Instead, I did lots of research and opted for an alternative path. I follow a regimen for detoxification and regeneration which I will gladly supply free of charge for anyone interested. In actuality, there are many many people flocking to the doors of reputable alternative clinics. If you look up the statistics, over 60% of Americans and about the same percentage of Canadians are using alternative medicine for many conditions. There is a worlwide movement towards this modality and other modalities as well one very important one being the mind/body connection. Anyone interested in doing their own research on this subject should feel free to contact me and I can supply you with some very informative websites. There is ALWAYS hope! Shemay On 12/15/2006 Wamba138 wrote: Quote Kathryn,As a response to Morgan's email, I say "Be careful".  Alternative therapies are dubious.  They can point to a few survivors, but so can conventional medicine.Most alternative clinics are just out for your money.  If they could cure even 5% of stage IV cancers, there would be a stampede to get into their clinic.Look hard at their claims.  Look hard at the condition of your friend.  I hope you can find a cure.  Your friend is lucky to have you.Rick -----end quote------ dear shemay, i hope your are the one with the alternative medicine.i would like you to write me what your regimen was with your detoxification. i had in 2003 a colon operation and did not need chemo after. i was released with 90 % surviver status but in almost 2006 the colon cancer had metst.to the lung. i had blood tests done every 3 month for almost 3 years and all were negatgive. than the colon cancer showed up in the lung.i was told the blood tests are only 70% accurate. why did nobody told me this and why were there no scans and xrays orderd in.i would have looked after my self much better  all the years after my colon operation.i have taken alternatiive medicine since last october when the metast cancer was discovered. i am scared of chemo, to many horror stories, permanent organ damage and reacurrance of new cancers.the suffering is not ending. my radiation killed maybe half of the old tumor and grew about 1/4 inch.i am trying as long as i can to hold on to my quality of life.i would appreciate any information what your procedure was etc.thank you, freya 63 - canada   Freya63 Sun, 17 Dec 2006 00:00:00 GMT I have been stage IV since 1992. I have had many surgeries and anti hormonal treatment. I think you should go to a big cancer center like MD Anderson, MSKCC in NYC or Cedar Sinai in CA, or big cancer center in Seattle, any big city has a cancer center. It has not been a death sentence for me. Foodmaven Sun, 17 Dec 2006 00:00:00 GMT dear shemay, i hope your are the one with the alternative medicine.i would like you to write me what your regimen was with your detoxification. i had in 2003 a colon operation and did not need chemo after. i was released with 90 % surviver status but in almost 2006 the colon cancer had metst.to the lung. i had blood tests done every 3 month for almost 3 years and all were negatgive. than the colon cancer showed up in the lung.i was told the blood tests are only 70% accurate. why did nobody told me this and why were there no scans and xrays orderd in.i would have looked after my self much better all the years after my colon operation. i have taken alternatiive medicine since last october when the metast cancer was discovered. i am scared of chemo, to many horror stories, permanent organ damage and reacurrance of new cancers.the suffering is not ending. my radiation killed maybe half of the old tumor and grew about 1/4 inch.i am trying as long as i can to hold on to my quality of life. i would appreciate any information what your procedure was etc. thank you, freya 63 - canada dear freya 63-canada please contact me at my e mail address and i will supply you with the information. i did post it here but for some reason it came through compacted and hard to follow. e address is --- Message edited by CancerCompass staff: for personal protection, email address removed.  Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- Shemay Sun, 17 Dec 2006 00:00:00 GMT  On 12/17/2006 Foodmaven wrote:I have been stage IV since 1992. I have had many surgeries and anti hormonal treatment. I think you should go to a big cancer center like MD Anderson, MSKCC in NYC or Cedar Sinai in CA, or big cancer center in Seattle, any big city has a cancer center. It has not been a death sentence for me.      Thanks for your email.  What sort of cancer did/do you have?  Mark has rectal cancer that has spread to the liver and lungs.  The doctors have pretty much given up only offering dangerous trials.       I'm working hard to find a treatment that works for rectal cancer.  Been reading about hyperthermia - don't know if he's a candidate for that.  Ozone therapy sounds promising but is not offered in this country.       I called MD Anderson and they told me not to bother sending Mark,s records - there was nothing they could do for him that has not already been done.  Pretty dismal but I described all that he's taken, pretty much all the chemo that they are using for rectal patients these days, and that is all they had to say.  I am on a mission to find a good oncologist here (so far all Mark has seen are Fellows at the County Hospital) that does cutting edge treatments such as vaccine therapy, hyperthermia, etc.  Thanks again for your response. Kathryn Musiclover Mon, 18 Dec 2006 00:00:00 GMT Please take a look at this website. I personally know of several people who have been "cured" using this treatment and I personally have just been tested to see if I am a candidate for it. It is not offered at least here in Canada by traditional medicine but is available through some alternative clinics. My oncologist has told me there is very positive anecdotal evidence regarding this treatment . It is not at all harmful so certainly worth a try. I feel very fortunate to have found a medical doctor who is also trained in the alternative field. He uses alternative treatments first and only the more destructive traditional treatments as a last resort. He took the oath "First do no harm" and works hard to follow that oath. http://www.knowledgeofhealth.com/report.asp?story=Intra venous%20Vitamin%20C%20Kills%20Cancer%20Cells Shemay Shemay Mon, 18 Dec 2006 00:00:00 GMT Please take a look at this website. I personally know of several people who have been "cured" using this treatment and I personally have just been tested to see if I am a candidate for it. It is not offered at least here in Canada by traditional medicine but is available through some alternative clinics. My oncologist has told me there is very positive anecdotal evidence regarding this treatment . It is not at all harmful so certainly worth a try. I feel very fortunate to have found a medical doctor who is also trained in the alternative field. He uses alternative treatments first and only the more destructive traditional treatments as a last resort. He took the oath "First do no harm" and works hard to follow that oath. http://www.knowledgeofhealth.com/report.asp?story=Intra venous%20Vitamin%20C%20Kills%20Cancer%20Cells Shemay Shemay Mon, 18 Dec 2006 00:00:00 GMT  On 12/15/2006 Cptmac wrote:I am a stage IV survivor.  I had colon cancer with mets to the liver.  By my initial Dr.'s I was told I could die at any minute and could live for 18 months with surgery.  I kept doing research and looked for good Dr.'s.My new Dr.'s said although stage IV is bad, they thought they could cure me.    I could not believe I was that sick, when I seemed so healthy.  Even after my annual physical, I was told I was healthy.  It was a total fluke that I even had a colonoscopy.  I was diagnosed in July of '04, I finished my chemo in June of '05 and am doing quite well.  I started off with dismal odds of 5% chance of survival, up to 80%.  I'm cancer free and extremely greatful.   I hope I didn't already ask you this - emails get lost sometimes.  What kind of cancer did you have and where were you treated?  Trying to find a good doctor in Los Angeles.Thanks!  Musiclover Mon, 18 Dec 2006 00:00:00 GMT  On 12/15/2006 Shemay wrote:I have been using alternative therapy for my cancer for over two and a half years and have never felt healthier in my life. When I was diagnosed in May 2004 with non Hodgkin's lymphoma, a cancerous lymph node on the heart and a large mass in my chest which had caused the partial collapse of my right lung, the onc I was referred to told me I would need the strongest chemo available in order to "perhaps" save myself. Instead, I did lots of research and opted for an alternative path. I follow a regimen for detoxification and regeneration which I will gladly supply free of charge for anyone interested. In actuality, there are many many people flocking to the doors of reputable alternative clinics. If you look up the statistics, over 60% of Americans and about the same percentage of Canadians are using alternative medicine for many conditions. There is a worlwide movement towards this modality and other modalities as well one very important one being the mind/body connection. Anyone interested in doing their own research on this subject should feel free to contact me and I can supply you with some very informative websites. There is ALWAYS hope! Shemay On 12/15/2006 Wamba138 wrote: Quote Kathryn,As a response to Morgan's email, I say "Be careful".  Alternative therapies are dubious.  They can point to a few survivors, but so can conventional medicine.Most alternative clinics are just out for your money.  If they could cure even 5% of stage IV cancers, there would be a stampede to get into their clinic.Look hard at their claims.  Look hard at the condition of your friend.  I hope you can find a cure.  Your friend is lucky to have you.Rick -----end quote------ Please send me any and everything you are willing to send. I'll read it and research.  Thanks! Musiclover Mon, 18 Dec 2006 00:00:00 GMT No worries mate.  I know that this time of your  life is stressful.  Don't hesitate to reask anything.I had colon cancer in  my sigmoid colon that spread to my liver. I had colon surgery on August 13, 2004.  It was important that I healed in 1 month, and I did, so that I could have my liver surgery on September 13, 2004.  I also had an HAI pump installed.  Don't know if that will work for Mark. Here is information that I posted previously. Here is a site that lists the best hospitals.  http://www.usnews.com/usnews/health/best-hospitals/rankings/ What it won't tell you is where the super Dr.'s are.  Afterall, Lance Armstrong went to M.D. Anderson and was given dismal odds.  He saw a Dr. in Indiana, and I'm sure you know the rest of the story.Good luck and keep searching.  I'm glad I did.This is my oncologisthttp://www.med.umn.edu/hot/faculty/greeno/home.html He can get you through the system.  He works with gastreointestinal cancers.  Here is the phone number for the scheduling desk.  800-688-5252 Ask for the Masonic Cancer CenterThe non-800 is 612-625-5411 x2 x1The triage nurse's number is Triage nurse 612-626-9627My Primary Care Physician up there is http://www.med.umn.edu/gim/faculty/macomberd.html His number is 612-624-9499 x2The Mayo clinic is also a great place to go to.  I chose to go to the U of M because Dr. Rothenburger is one of America's Top Doctors for colon surgery. Dr. Rothenburger and Dr. Greeno helped write the American Cancer Society's new book on colon cancerLet me know how I can be of help.  Cptmac Mon, 18 Dec 2006 00:00:00 GMT ---- Please send me any and everything you are willing to send. I'll read it and research.  Thanks! -----end quote------ If you contact me at my E mail address I will gladly send what I have found helful. Much too large a file for this forum. --- Message edited by CancerCompass staff: for personal protection, email address removed.  Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- Shemay Mon, 18 Dec 2006 00:00:00 GMT  On 12/17/2006 Shemay wrote:Sorry the Regimen for Detoxification and Regeneration came through so compacted it is hard to follow. Please contact me at my e mail address and I shall re send it in it's proper form. ShemayCould you please send me a more understandable form of this regimen. I would appreciate it so much. Thanks Joymary Mon, 18 Dec 2006 00:00:00 GMT JOYMARY......I'll gladly send it if you give me an E address to do so or should I do it via private message? shemay Shemay Mon, 18 Dec 2006 00:00:00 GMT  On 12/18/2006 Shemay wrote:JOYMARY......I'll gladly send it if you give me an E address to do so or should I do it via private message? shemay I'm sorry, I forgot to include my e-mail,  thanks, JoyMary Joymary Tue, 19 Dec 2006 00:00:00 GMT  On 12/18/2006 Shemay wrote:JOYMARY......I'll gladly send it if you give me an E address to do so or should I do it via private message? shemayCould you please send the detoxification list to me via cancercompass. Thank you.  JoyMary Joymary Wed, 20 Dec 2006 00:00:00 GMT I have breast cancer stage IV my Drs told me 6 mons , Iam on 1 year.chemo + rad treatments, cancer to my liver , head , spine , bone , I want to live longer, you have to eat and be strong, fight the fight !! chemo is keeping me alive, I had breast cancer for 3 years it was missed ! Keep the faith and fight don't give up!! Good Luck DD Debbie d. Sat, 23 Dec 2006 00:00:00 GMT  On 12/15/2006 Shemay wrote:I have been using alternative therapy for my cancer for over two and a half years and have never felt healthier in my life. When I was diagnosed in May 2004 with non Hodgkin's lymphoma, a cancerous lymph node on the heart and a large mass in my chest which had caused the partial collapse of my right lung, the onc I was referred to told me I would need the strongest chemo available in order to "perhaps" save myself. Instead, I did lots of research and opted for an alternative path. I follow a regimen for detoxification and regeneration which I will gladly supply free of charge for anyone interested. In actuality, there are many many people flocking to the doors of reputable alternative clinics. If you look up the statistics, over 60% of Americans and about the same percentage of Canadians are using alternative medicine for many conditions. There is a worlwide movement towards this modality and other modalities as well one very important one being the mind/body connection. Anyone interested in doing their own research on this subject should feel free to contact me and I can supply you with some very informative websites. There is ALWAYS hope! Shemay On 12/15/2006 Wamba138 wrote: Quote Kathryn,As a response to Morgan's email, I say "Be careful".  Alternative therapies are dubious.  They can point to a few survivors, but so can conventional medicine.Most alternative clinics are just out for your money.  If they could cure even 5% of stage IV cancers, there would be a stampede to get into their clinic.Look hard at their claims.  Look hard at the condition of your friend.  I hope you can find a cure.  Your friend is lucky to have you.Rick -----end quote------  Cccat Wed, 27 Dec 2006 00:00:00 GMT Testimony of Burton GoldbergHydrazine Sulfate Alternative Cancer Treatment Comparison Heavenmyrealhome Thu, 28 Dec 2006 00:00:00 GMT Hello Everyone,My mother is a stage IV cancer patient. She is scheduled to start chemo on Jan 22. She had surgery to remove the tumor in her colon. She has two tumors on her liver and some spots on her lungs. She is supposed to start the folfox regimen which consists of bevacizummab ( Avastin) oxaliplatin, 5-fluorouracil (5FU) and leucovorin. The oncologist just sent her info regarding a clinical study that she can participate in. If she does agree, she would receive a regimen called FOLF-CB which would be similar except the oxaliplatin would come out and be replaced with cetuximab (Erbitux). I was wondering if anyone has had this regimen or knows of any positive outcomes with Erbitux. Thanks very much,EB  Harley4 Tue, 09 Jan 2007 00:00:00 GMT  On 12/15/2006 Cptmac wrote:This is my oncologisthttp://www.med.umn.edu/hot/faculty/greeno/home.html He can get you through the system.  However he works with gastreointestinal cancers.  I didn't see where Mark's original cancer came from.  Here is the phone number for the scheduling desk800-688-5252 Ask for the Masonic Cancer CenterThe non-800 is 612-625-5411 x2 x1The triage nurse's number is Triage nurse 612-626-9627My Primary Care Physician up there is http://www.med.umn.edu/gim/faculty/macomberd.html His number is 612-624-9499 x2The Mayo clinic is also a great place to go to.  I chose to go to the U of M because Dr. Rothenburger is one of America's Top Doctors for colon surgery. I'll be gone for the weekend, but I'm always happy to answer any questions.  I know when I was first diagnosed, I was desperate to find what worked for other Stage IV colon cancer survivors.  Sadly, no one was on the board to help me.  Let me know how I can be of help. Hi,My name is Jim Pocock. It seems we have the same doctors at the u of mn.  I am stage IV rectal ca.  Mets to liver.  I had an APR from Rothenberger 5 weeks ago.  I see Greeno again this week as well as the livber surgeon.  I had a complete response to the chemo radiation as they found no cancer in the colon, rectum or remnants of the tumor.  But they found two small tumors on the left lobe of the liver after the chemo/radiation was completed.  They were going to remove that lobe of the liver during my APR surgery but I had been on the table too long already.  Did your cancer mets to the liver?  How are they treating it?  I would appreciate any correspondence.  Take care. Jim Aa247 Mon, 26 Feb 2007 00:00:00 GMT Hi Jim, It's so nice to meet you.  When were you diagnosed?   Do you know who your liver surgeon is?  I started off as stage IV with mets to the liver.  So I had several options.  I could have both surgeries at the same time or I could have my colon surgery, wait a month to heal, and then have my liver surgery with an HAI pump inserted to put chemo directly into my pump.   I chose to go with the pump.  Unfortunately, Dr. Rothenburger was out when I came in, so I had Dr. Kelli Bullard do my colon surgery.  I thought that since she trained under Dr. Rothenbuger, and the same team would be in the operating room that I would be okay.  I had my colon surgery on August 13, 2004.  Yes, it was Friday the 13th.  I was somewhat creeped out, but they told me it's the best day for surgery, since most people don't want in then. It was important for my treatment, that I recover and have my liver surgery and HAI pump inserted exactly 4 weeks later.  I had my liver surgery by Dr. Todd Tuttle on September 13th, 2004.  I had some complications and was able to start my chemo by the end of the year.  I had my last chemo in June of '05.  So far, no evidence of disease. Your liver regenerates, and mine has grown back to 95% of it's previous size.  After the liver surgery, it was important for me to eat as much protein as possible.  So I had eggs, bacon and sausage every morning.  I always take a tape recorder in with me and record all of their answers.  They were all quite comfortable with me doing this.Since I didn't have a chance to be with Dr. Rothenburger, I would be curious to know about your experience with him.  Let me know how I can be of help.   Cptmac Mon, 26 Feb 2007 00:00:00 GMT Dear Shemay, please contact me with the alternative therapy treatment protocol and relevant websites. I have stage IV inflammatory breast cancer and I am truly frightened. Thank you so much. On 12/15/2006 Shemay wrote:I have been using alternative therapy for my cancer for over two and a half years and have never felt healthier in my life. When I was diagnosed in May 2004 with non Hodgkin's lymphoma, a cancerous lymph node on the heart and a large mass in my chest which had caused the partial collapse of my right lung, the onc I was referred to told me I would need the strongest chemo available in order to "perhaps" save myself. Instead, I did lots of research and opted for an alternative path. I follow a regimen for detoxification and regeneration which I will gladly supply free of charge for anyone interested. In actuality, there are many many people flocking to the doors of reputable alternative clinics. If you look up the statistics, over 60% of Americans and about the same percentage of Canadians are using alternative medicine for many conditions. There is a worlwide movement towards this modality and other modalities as well one very important one being the mind/body connection. Anyone interested in doing their own research on this subject should feel free to contact me and I can supply you with some very informative websites. There is ALWAYS hope! Shemay On 12/15/2006 Wamba138 wrote: Quote Kathryn,As a response to Morgan's email, I say "Be careful".  Alternative therapies are dubious.  They can point to a few survivors, but so can conventional medicine.Most alternative clinics are just out for your money.  If they could cure even 5% of stage IV cancers, there would be a stampede to get into their clinic.Look hard at their claims.  Look hard at the condition of your friend.  I hope you can find a cure.  Your friend is lucky to have you.Rick -----end quote------ Naturegirl Wed, 28 Feb 2007 00:00:00 GMT  On 12/15/2006 Cptmac wrote:I am a stage IV survivor.  I had colon cancer with mets to the liver.  By my initial Dr.'s I was told I could die at any minute and could live for 18 months with surgery.  I kept doing research and looked for good Dr.'s.My new Dr.'s said although stage IV is bad, they thought they could cure me.    I could not believe I was that sick, when I seemed so healthy.  Even after my annual physical, I was told I was healthy.  It was a total fluke that I even had a colonoscopy.  I was diagnosed in July of '04, I finished my chemo in June of '05 and am doing quite well.  I started off with dismal odds of 5% chance of survival, up to 80%.  I'm cancer free and extremely greatful. I have stage iv colon cancer with mets to the liver.  The doctors tell me it is terminal and I have only a few months to live and that is with chemo. Please tell me who you used and what they did. Thank you Bob Howell robertohowell@hotmail.com  Roberto1 Wed, 21 Mar 2007 00:00:00 GMT You can read my previous post.  But, this was my treatment, I went to the Unviersity of Minnesota.  I started off as stage IV with mets to the liver.  So I had several options.  I could have both surgeries at the same time and take my choice of chemo's or I could have my colon surgery, wait a month to heal, and then have my liver surgery with an HAI pump inserted to put chemo directly into my pump.   I chose to go with the pump.  Dr. Rothenburger is one of the top colon surgeons in the US.  I had my colon surgery on August 13, 2004.  Yes, it was Friday the 13th.  I was somewhat creeped out, but they told me it's the best day for surgery, since most people don't want in then. It was important for my treatment, that I recover and have my liver surgery and HAI pump inserted exactly 4 weeks later.  I had my liver surgery by Dr. Todd Tuttle on September 13th, 2004.  I had some complications and was able to start my chemo by the end of the year.  I had my last chemo in June of '05.  So far, no evidence of disease. Your liver regenerates, and mine has grown back to 95% of it's previous size.  After the liver surgery, it was important for me to eat as much protein as possible.  So I had eggs, bacon and sausage every morning.  I always take a tape recorder in with me and record all of their answers.  They were all quite comfortable with me doing this.Let me know how I can be of help.  Cptmac Wed, 21 Mar 2007 00:00:00 GMT Dear Jim,I sent you a private message.  I'll be in MN on Monday and Tuesday.  I let you know when my appointment with Dr. Greeno is.   I didn't want to post it on here, you never know who might be reading and lurking.    Cptmac Thu, 29 Mar 2007 00:00:00 GMT  Thank you for this information. Would you please be more specific, though, about your husband's nutrional/vitamin regime?I hope the good news continues.Best,Judy On 12/15/2006 Lorid wrote:Hi Kathryn,My husband is a Stage IV survivor -- he was originally diagnosed (in June 2005) with Stage III Colon cancer, but it was discovered during the colon resection that he was a Stage IV -- he underwent 12 rounds of Folfox/5FU and Avastain then had the liver resection in April 2006.  He has been cancer-free since then -- All of his blood work has shown CEA levels in normal range and next month he starts with the scans (we're just a little nervous)We also did nutrional/vitamin supplements as well (we had his oncologist's okay on everything he was taking)Survivors are out there -- don't ever give up hope -- you just may have to fight for what you want and even go to a different doctor.God Bless -- I will keep you & your friend in my prayers.Lori  Judylauren Thu, 12 Jul 2007 00:00:00 GMT My husband was diagnosed with stage 4 rectal cancer two years ago.He is now cancer free.He had a hemoglobin of 4 when he was admitted to roswell park hospital in Buffalo,ny.He went through a trial for some new drugs.They were absolutely wonderful there.The tumor was so large he only had a pin hole for any fecal material to pass.He had chemo,radiation,surgery and more chemo.He did not have any lymph node involvement when they did the surgery.This we think was a miracle in itself.WE have alot of faith and feel that is why he did so well.I encourage you to believe you will get well and do everything the doctors tell you to do,he did.Also while he went through chemo he took a vitamin that had three  differnent mushrooms in it that was supossed to attack the tumor.The doctors said this was ok.We know God healed my husband but He used prayer and doctors to do it.Believe you will be healed.                          zeph314 zeph314 Sat, 08 Dec 2007 00:00:00 GMT Since 1992! I have wide meteistatic disease =, lungs liver, lymph nodes told i will be fortunate to leve 2 years  ARMYSSG Tue, 22 Jan 2008 00:00:00 GMT When were you diagnosed with the wide meteistatic disease, spread to the lymph nodes?I am hoping to seek encouraging news from stage IV survivors. Thank you. afreedm Sun, 13 Apr 2008 00:00:00 GMT Thanks,What are  you doing as far as treatment, diet, lifestyle and how is your quality of life. Robert ARMYSSG Tue, 05 Aug 2008 00:00:00 GMT Kathryn, Im sorry for your situation. My wife is stage 4 rectal cancer with 2 mets to lungs.She is on Xeloda and 4 herb tea (essiac), for 2 weeks and will be until ct scan 1/09. A very good friend of mine had colon cancer with liver mets, and melanoma with mets to lungs. They gave him chemo,which did noy work and told him he has less than one year.A next door neighbor a nurse told him to get this tea, at last resort he did 6oz a day. He did this for three months,went back to his oncologist and had pet scan done. All tumors gone except for two in lungs which shrunk. His Dr. now considers him cancer free. I put my wife on it because I personally  have proof it works. He is now cancer free 5 years. Go to this website: herbalhealer.com and click on 4herb tea. My wife is being treated at Sloan Kettering in NYC, one of the best. Our oncologist we asked about the tea,he said; Get her on the tea asap.Please read up on essiac tea on any search engine,and good luck. Power of prayer also does wonders LAKOTA Sun, 02 Nov 2008 00:00:00 GMT