CancerCompass message board discussion started by Callia46 on 12/28/2006 http://www.cancercompass.com/message-board/message/all,8478,0.htm Tue, 02 Dec 2008 00:00:00 GMT Tue, 02 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Oh, I am so thankful I have found the messages that you have written previously.  I have been so concerned about the tremors that my husband is having and can't control.  They are getting more and more severe to the point that sleeping with him is becoming hard, but I can't leave him as I am afraid if he needed me I wouldn't hear him.  He had hand and arm motion and talks rambling all night long.  Bill had surgery for rectal melanoma a year ago and has not had chemo or radiation.  The doctor has not done any MRI's or scans since then.  He has scheduled some in February, but I am concerned why they are not done more reguarly.  Bill had a colostomy done and his rectum removed.  There was a tumor that was removed.  He complains of severe back pain in the lower regions of his back.  I am seeing his thought processes becoming cloudy and his rational thinking at times confused.  He doesn't remember things from one day to the next.  And yet when he goes to the oncologist, he acts as though he is trying out for a comedy act and tries to make it sound as though everything is just fine.  If I try to tell the oncologist the problems I am seeing, Bill gets upset with me and the doctor himself seems distant with me.  I fear from what I have read on the internet what is ahead.  I read that the average survival rate is only 2 years and he has already lived one of those.  Is this why the doctor seems so unconcerned?  He realizes there really isn't much he can do?  I am not afraid of what is ahead as I am a Christian and I know that no matter what I face, I am not alone.  But I want to know it so I can prepare, not just be ignored.    Am I wrong in wanting this?  Callia46 Thu, 28 Dec 2006 00:00:00 GMT