CancerCompass message board discussion started by Yacheezes on 1/24/2007 http://www.cancercompass.com/message-board/message/all,9072,0.htm Fri, 10 Oct 2008 00:00:00 GMT Fri, 10 Oct 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ my husband was dg. with anal melanoma last feb.06 in april he had resectioning abdoimal surgury a stoma, they send him home and told him to wait no other treatment because it usu. don't help . he was having pains in his side at 6 mo. checkup and a pet scan revealed nodules in his lungs .now on feb. 8th we go back to ann arber for options . he said he is refusing treatment of any more majors surgury, from everything i have read which is not a lot because most doctors have never heard of anal malanoma maybe 500 cases reported nothing shows any promise. i do try to keep faith and i also try to be strong for my husband who really seems to be ok. i dont want him to go thought more surgurys if they dont help. he has already been though a major one and it was not fun, but on the other hand what if by some miracle it would help, because it is so rare the information is limited with the average life span at 15 months.i do pray for god to give us all strenght because this is bad stuff and i do believe the mind can help heal if we keep the faith Yacheezes Wed, 24 Jan 2007 00:00:00 GMT  On 1/24/2007 Yacheezes wrote:my husband was dg. with anal melanoma last feb.06 in april he had resectioning abdoimal surgury a stoma, they send him home and told him to wait no other treatment because it usu. don't help . he was having pains in his side at 6 mo. checkup and a pet scan revealed nodules in his lungs .now on feb. 8th we go back to ann arber for options . he said he is refusing treatment of any more majors surgury, from everything i have read which is not a lot because most doctors have never heard of anal malanoma maybe 500 cases reported nothing shows any promise. i do try to keep faith and i also try to be strong for my husband who really seems to be ok. i dont want him to go thought more surgurys if they dont help. he has already been though a major one and it was not fun, but on the other hand what if by some miracle it would help, because it is so rare the information is limited with the average life span at 15 months.i do pray for god to give us all strenght because this is bad stuff and i do believe the mind can help heal if we keep the faithi should have put down metastic anal melanoma because i guess there ia a differents anal melanoma is much more aggressive and does not respond to chem or rad.  the just keep cutting it out. they want to try interferon but it will prob. not do any good .  so do you try to enjoy the days you have let or get treatments that you know are going to make you sick..we have been seen in AnArbor a few times but we are just a number to be pushed on to the next dr. to see if he has any new ideas. not that they are bad there, but they figure they know the outcome so they just try to help the patients they think have a better outcome the more logical medical way of thinking.anal melanoma is very rare and is usually mistaken for hemorroidsa  often more in women.  Yacheezes Fri, 09 Feb 2007 00:00:00 GMT  On 1/24/2007 Yacheezes wrote:my husband was dg. with anal melanoma last feb.06 in april he had resectioning abdoimal surgury a stoma, they send him home and told him to wait no other treatment because it usu. don't help . he was having pains in his side at 6 mo. checkup and a pet scan revealed nodules in his lungs .now on feb. 8th we go back to ann arber for options . he said he is refusing treatment of any more majors surgury, from everything i have read which is not a lot because most doctors have never heard of anal malanoma maybe 500 cases reported nothing shows any promise. i do try to keep faith and i also try to be strong for my husband who really seems to be ok. i dont want him to go thought more surgurys if they dont help. he has already been though a major one and it was not fun, but on the other hand what if by some miracle it would help, because it is so rare the information is limited with the average life span at 15 months.i do pray for god to give us all strenght because this is bad stuff and i do believe the mind can help heal if we keep the faith anal melanoma bad stuff and no info. out there... Yacheezes Fri, 09 Feb 2007 00:00:00 GMT My 67 year old mother was recently diagnosed with rectal metastatic melanoma with mets to the liver.  If you could provide any information on what treatments you have pursued that you felt were worthwhile, please let me know!  Thanks so much. Stefhef Thu, 01 Mar 2007 00:00:00 GMT  On 3/1/2007 Stefhef wrote:My 67 year old mother was recently diagnosed with rectal metastatic melanoma with mets to the liver.  If you could provide any information on what treatments you have pursued that you felt were worthwhile, please let me know!  Thanks so much.i really wish i could give you great advice but i have researched and anal melanoma is rare and pretty much noncureable my husband has opted out of all treatment because he feels good now and dont want to spend what time he has left in the hosiptals. chemo ,radation, and interferon have little effect on this cancer .i would go to a place that treata melanomas only they have lots of info . i hear texas has a great hospital and new york i wish i could help you more ,but do pray and try to get answers it is hard because drs. do not want to alway be up front. my husband refuses to travel or do any thing .i hope your mom finds the cure i will pray for her . try to live each day to the fullest and not get totally engulfed by the disease it is very hard   Yacheezes Thu, 01 Mar 2007 00:00:00 GMT  On 2/9/2007 Yacheezes wrote: On 1/24/2007 Yacheezes wrote:my husband was dg. with anal melanoma last feb.06 in april he had resectioning abdoimal surgury a stoma, they send him home and told him to wait no other treatment because it usu. don't help . he was having pains in his side at 6 mo. checkup and a pet scan revealed nodules in his lungs .now on feb. 8th we go back to ann arber for options . he said he is refusing treatment of any more majors surgury, from everything i have read which is not a lot because most doctors have never heard of anal malanoma maybe 500 cases reported nothing shows any promise. i do try to keep faith and i also try to be strong for my husband who really seems to be ok. i dont want him to go thought more surgurys if they dont help. he has already been though a major one and it was not fun, but on the other hand what if by some miracle it would help, because it is so rare the information is limited with the average life span at 15 months.i do pray for god to give us all strenght because this is bad stuff and i do believe the mind can help heal if we keep the faithi should have put down metastic anal melanoma because i guess there ia a differents anal melanoma is much more aggressive and does not respond to chem or rad.  the just keep cutting it out. they want to try interferon but it will prob. not do any good .  so do you try to enjoy the days you have let or get treatments that you know are going to make you sick..we have been seen in AnArbor a few times but we are just a number to be pushed on to the next dr. to see if he has any new ideas. not that they are bad there, but they figure they know the outcome so they just try to help the patients they think have a better outcome the more logical medical way of thinking.anal melanoma is very rare and is usually mistaken for hemorroidsa  often more in women.  Please check out DCA. It might be a cure for melanoma that you are looking for. go to www.thedcasite.com (info re: supply, dispensing instructions, past results, recent earth shattering news about its incredible anti-cancer actions, etc.). Good luck to you and your husband and please keep us posted should you decide to try DCA. Others are trying it now and everyone is waiting to hear their good news (in the next few weeks, we hope). Lietuva Sat, 03 Mar 2007 00:00:00 GMT