CancerCompass message board discussion started by Peifferbackkaye on 1/29/2007 http://www.cancercompass.com/message-board/message/all,9187,0.htm Thu, 21 Aug 2008 00:00:00 GMT Thu, 21 Aug 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My name is Kaye, and my husband had luekima mylio displashia syndrum, and he is dying. chemo and blood transphusions did not work. I need some one to talk with or write to, please, I wrote 3 weeks ago and got no response, If u can help out please write me back, thank u, he is only 45 yrs old, kaye Peifferbackkaye Mon, 29 Jan 2007 00:00:00 GMT  On 1/29/2007 Peifferbackkaye wrote:My name is Kaye, and my husband had luekima mylio displashia syndrum, and he is dying. chemo and blood transphusions did not work. I need some one to talk with or write to, please, I wrote 3 weeks ago and got no response, If u can help out please write me back, thank u, he is only 45 yrs old, kaye Hi kaye!My husband has GBM ( most malignant brain cancer) sometimes called terminator. 1-3% survive 5 yrs and and are flukes. He's going into 1 yr since dx, had two surgeries went through standard therapy, clinical trial and now standard therapy for reccurrence. Past year has been tough physically and financially. Right now he's looking OK with very minimal deficits since the second surgery. But the disease is like a time bomb that could go off anytime. Everyone's asking if I'm ready should it happen. I'll never be ready. I want him with me in this life for as long as it takes as normal as possible. What can I tell you that's different from others that will make an impact? The "be strong, hang-on,pray.."bit? I'm getting weary.But I have my chance to laugh too. Cancer humor. Sometimes only I could understand and others may find gross. It is my coping. Got to go. He's awake now. Gigi- Tue, 06 Feb 2007 00:00:00 GMT