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Adoyle's Message Board Messages

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Thanks very much for your reply. Since my last post I have seen a gatroenterologist and the diagnosis is indeed radiation proctitis.  He tried a colonscopy procedure where he planned to use an argon plasma coagulator to seal the bleeding vessels but my tissue was in very poor shape and he did not want to make the situation worse.  So, I have been on Canasa suppositories for about 10 weeks.  They are going to try another colonoscopy this Tuesday and see if there has been enough healing to use the argon coagulator.

I have had some relief of symptoms with the Canasa, less urgency, etc.  But, I the bleeding is just as bad as it ever was and my hemoglobin count keeps dropping, now at 9.7.  The dr. said they would need to transfuse at 9.0.

Did you have any experiencce with the argon plasma coagulator?  If so, was it successful?  I have read about hyberbaric oxygen therapy online but it has not yet been suggested in my case.

 Also, an incidental finding popped up - I now need thyroid surgery to remove an extremely enlarged thyroid (which appears benign).   Yuck!

One thing after another, I tell you.  Thanks again for your reply and please share any information you have on radiation proctitis.

 Warm Regards,

 Angi 

On 1/31/2008 nancysews45 wrote:

I too have radiation proctitis and cytitis, have had for about 3 years and have had various treatments.  The latest suggestion is hyperbaritic oxygen therapy.  Get to a research hospital for treatment.  You need the latest information.  Don't worry about it being cancer,  but it is a side effect of radiation.  I have been being treated by a gastroenterologist, colorectal surgeon and urolo9gist.  Its a long haul.

On 12/2/2007 Adoyle wrote:

It seems like I might finally have an answer to the problems  I have been experiencing since my radiation therapy.  I went to my family doctor yesterday and she has referred me to a gastroenterologist for possible radiation proctitis.  Has anyone had this?  Do you know what the testing and treaments are like?  Are they usually successful in curing the problem?   I feel so frustrated b/c it just seems like one thing after another and I can't just get better.  My cancer is in remission though, so that is great news.  I worry that this rectal bleeding is colon cancer (metastatic) rather than proctitis...HELP!


 


 

It seems like I might finally have an answer to the problems  I have been experiencing since my radiation therapy.  I went to my family doctor yesterday and she has referred me to a gastroenterologist for possible radiation proctitis.  Has anyone had this?  Do you know what the testing and treaments are like?  Are they usually successful in curing the problem?   I feel so frustrated b/c it just seems like one thing after another and I can't just get better.  My cancer is in remission though, so that is great news.  I worry that this rectal bleeding is colon cancer (metastatic) rather than proctitis...HELP!
It seems like I might finally have an answer to the problems  I have been experiencing since my radiation therapy.  I went to my family doctor yesterday and she has referred me to a gastroenterologist for possible radiation proctitis.  Has anyone had this?  Do you know what the testing and treaments are like?  Are they usually successful in curing the problem?   I feel so frustrated b/c it just seems like one thing after another and I can't just get better.  My cancer is in remission though, so that is great news.  I worry that this rectal bleeding is colon cancer (metastatic) rather than proctitis...HELP!
 was treated with chemotherapy (taxol and carboplatin 1 infusion per week x 4 mos) and radiation & chemotherapy (cisplatin + 35 external and 5 internal) for vaginal cancer that was originally thought to be unknown primary.  Dx. was September of 2006 and after many, many checks, no cancer has ever been found elsewhere.  I had a 4cm tumor in my middle right vaginal wall - it also looked like one lymph node in the inguinal chain was involved.  No one would stage the cancer, however, when I pushed my oncologist, she said "well, I suppose we would have to call it stage III b/c of the lymph node involvement".

My last treatment was radiation in April. At the end of the treatment plan I was declared cancer-free.  The tumor has completely resolved.  I am in active remission.  I have had checkups every three months (so far a total of 2, one in June and one in September).  The pap smears and biopsies obtained from the tumor site are clear.  I am scheduled for my next follow up in January.  So far, only one CAT scan has been performed, about three weeks after treatment stopped in April although there were many imaging studies taken before treatment began as well as other diagnostic tests, colonoscopy, GI studies, LEEP, etc.

BUT, here's the problem.  I have fairly constant pain in my thighs, buttocks, and abdomen (this is the area that was treated with radiation).  This pain is often around a level 5 of 10. It is pain that seems to be muscular or pain in tissue.  I also have fibromyalgia and it is like that type of pain.  Sometimes, for a day or two, it improves but generally it is bothering me most of the time.  I asked the radiation oncologist and he says that "it wasn't him".  I talked with the gyn oncologist and she says that "it wasn't her".  Which I guess rules out the chemo and radiation although I think that is what is causing it - one or the other.  Or perhaps these treatments simply have aggravated and worsened the fibro. 

 The other problem I am experiencing is hemorroids.  They have been bleeding for over a month now.  Is this normal?

 Does anyone have any similar experience or is there a doctor or nurse out there who can recommend what to do?

 Thanks...hoping to hear from someone!

I was treated with chemotherapy (taxol and carboplatin 1 infusion per week x 4 mos) and radiation & chemotherapy (cisplatin + 35 external and 5 internal) for vaginal cancer that was originally thought to be unknown primary.  Dx. was September of 2006 and after many, many checks, no cancer has ever been found elsewhere.  I had a 4cm tumor in my middle right vaginal wall - it also looked like one lymph node in the inguinal chain was involved.  No one would stage the cancer, however, when I pushed my oncologist, she said "well, I suppose we would have to call it stage III b/c of the lymph node involvement".

My last treatment was radiation in April. At the end of the treatment plan I was declared cancer-free.  The tumor has completely resolved.  I am in active remission.  I have had checkups every three months (so far a total of 2, one in June and one in September).  The pap smears and biopsies obtained from the tumor site are clear.  I am scheduled for my next follow up in January.  So far, only one CAT scan has been performed, about three weeks after treatment stopped in April although there were many imaging studies taken before treatment began as well as other diagnostic tests, colonoscopy, GI studies, LEEP, etc.

BUT, here's the problem.  I have fairly constant pain in my thighs, buttocks, and abdomen (this is the area that was treated with radiation).  This pain is often around a level 5 of 10. It is pain that seems to be muscular or pain in tissue.  I also have fibromyalgia and it is like that type of pain.  Sometimes, for a day or two, it improves but generally it is bothering me most of the time.  I asked the radiation oncologist and he says that "it wasn't him".  I talked with the gyn oncologist and she says that "it wasn't her".  Which I guess rules out the chemo and radiation although I think that is what is causing it - one or the other.  Or perhaps these treatments simply have aggravated and worsened the fibro. 

 Does anyone have any similar experience or is there a doctor or nurse out there who can recommend what to do?

 Thanks...hoping to hear from someone!

 

I have been diagnosed with vaginal cancer.  Well, I guess that's the final dx, although intially it was cancer of unknown primary.  It was felt that the vaginal lesion had metasticized from another area.  In spite of continued testing and searching, no primary site has been found.  I have only the vaginal lesion and possibly one lymph node in the iliac chain involved. I was first diagnosed last September.  I have had 6 months of chemo (taxol and carboplatin) and am now having 35 external and five internal radiation treatments with chemo (cisplatin).  I have had a really hard tmie getting any info b/c everyone seems to think that this type of cancer is rare.  I have adenocarcinoma but it is not related to DES exposure.  I am writing to see if there is anyone else out there who may have had a similar experience.  I also am not able to get a stage or prognosis.  The doctors just keep telling me it is unusual and they don't know what to expect,,,during chemo my tumor (initally 4cm) completely resolved.  I am in the middle of the radiatin cycle and finding it hard to stay positive about the outcome.  Does anyone have any info they can share regarding their experience with vaginal cancer?
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Vaginal Cancer

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