Amcf1

Amcf1's Recent CancerCompass Activity

• Amcf1 has replied to a post on the message board

  My husband sees dr. Raizer at northwestern. On a side note, every third Monday of the month we go to support group there (21st floor) - most patient are treated at NW but not everyone. Why don't you and your sister come on Monday 5pm and you could get more info for your questions. All the best, Annie

  January 18 at 3:26 PM view post

• Amcf1 has replied to a post on the message board

  John, Thank you for your encouraging post. To be honest, I search out posts like yours in order to believe that there is hope. My husband presented in march of 2011 and was diagnosed on June with a GBM. I give thanks to God that his scans have been good and that he's been feeling well. I cherish each day. May you continue to post on this site for many more 25 month intervals! Annie

  November 15 at 6:30 PM view post

• Amcf1 has replied to a post on the message board

  No, definitely not. Dr. Sul is the lead investigator for this trial.

  October 12 at 12:32 AM view post

• Amcf1 has replied to a post on the message board

  One needs to have completed *at least* 4 rounds of adjuvant Temodar following radiation, etc.   So - not eligible after having done just chemoradiation, but certaintly eligible if having done Temodar for 12 months plus.  You need to have the right HLA markers though (50% of the population).  All the criteria for the trial are spelled out on the clinicaltrials.gov website. Hope this helps.

  October 11 at 2:58 PM view post

• Amcf1 has created a new message board discussion

  Hi all, I just wanted to share this clinical trial with the folks on this message board. My husband was diagnosed in June of 2011 with a GBM (he presented with a grand mal seizure following a hemorrhagic stroke in march of 2011). He's completed 12 cycles of TMZ and his scans have been very good. This is a trial for patients who are not newly diagnosed nor have had recurrence. http://clinicaltrials.gov/ct2/show...

  October 09 at 5:36 PM view discussion

• Amcf1 has replied to a post on the message board

  Dear Jen, Congratulations on reaching this milestone! May God bless you with many more years! And thank you so much for sharing your information - many times I read the posts on this site and get very depressed but your uplifting post gave me hope that my spouse too will beat the beast. Blessings, Annie

  September 12 at 11:17 PM view post

• Amcf1 has replied to a post on the message board

  Barb, My heart goes out to you. I pray that you find peace after your devastating loss. Annie

  August 02 at 2:34 AM view post

• Amcf1 has replied to a post on the message board

  Allyson, First of all, congratulations on your marriage. May it be a long and happy one! We live in the Chicago suburbs now but last year when my husband was diagnosed with a tumor we lived elsewhere and we researched for the best surgeon & oncologist around. The neurologist that we visited at Hopkins recommended someone at university of Chicago and so we went there, met up with the neurosurgeon & neuro-oncologist ...

  April 26, 2012 view post

• Amcf1 has replied to a post on the message board

  Hi Bernadette, Thought I would give you an update from yeaterday's MRI. The nodule is stable (my husband's NO thinks it's scar tissue since the perfusion scans show no blood flow to it) and the flair around it is improving. We thank God for the absence of bad news. Please keep me updated on your husband too. All the best, Annie

  November 11, 2011 view post

• Amcf1 has replied to a post on the message board

  Hello Bernadette, I read your post the other week and couldn't get you out of my mind and so here I am posting my first reply.  My husband too had surgery on June 7th and finished his radiation and low-dow Temodar on August 25th.  His surgery was performed at the NIH by Dr. Park who was recommended to us by Dr. Fine and Dr. Park removed everything that was visible on the MRI; the histological report came b...

  November 06, 2011 view post