Loading...

Amcf1's Recent CancerCompass Activity

  • Amcf1 has replied to a post on the message board

    Hi there. My husband has been doing the accutane although he's not taking it as regularly at the moment since it dries out the skin quite a bit. He was diagnosed with a GBM following surgery in June 2011 and has had no recurrence to date.

    January 03 at 6:44 PM view post
    • Amcf1 has replied to a post on the message board

      My husband sees dr. Raizer at northwestern. On a side note, every third Monday of the month we go to support group there (21st floor) - most patient are treated at NW but not everyone. Why don't you and your sister come on Monday 5pm and you could get more info for your questions. All the best, Annie

      January 18, 2013 view post
      • Amcf1 has replied to a post on the message board

        John, Thank you for your encouraging post. To be honest, I search out posts like yours in order to believe that there is hope. My husband presented in march of 2011 and was diagnosed on June with a GBM. I give thanks to God that his scans have been good and that he's been feeling well. I cherish each day. May you continue to post on this site for many more 25 month intervals! Annie

        November 15, 2012 view post
        • Amcf1 has replied to a post on the message board

          No, definitely not. Dr. Sul is the lead investigator for this trial.

          October 12, 2012 view post
          • Amcf1 has replied to a post on the message board

            One needs to have completed *at least* 4 rounds of adjuvant Temodar following radiation, etc.   So - not eligible after having done just chemoradiation, but certaintly eligible if having done Temodar for 12 months plus.  You need to have the right HLA markers though (50% of the population).  All the criteria for the trial are spelled out on the clinicaltrials.gov website. Hope this helps.

            October 11, 2012 view post
            • Amcf1 has created a new message board discussion

              Hi all, I just wanted to share this clinical trial with the folks on this message board. My husband was diagnosed in June of 2011 with a GBM (he presented with a grand mal seizure following a hemorrhagic stroke in march of 2011). He's completed 12 cycles of TMZ and his scans have been very good. This is a trial for patients who are not newly diagnosed nor have had recurrence. http://clinicaltrials.gov/ct2/show...

              October 09, 2012 view discussion
              • Amcf1 has replied to a post on the message board

                Dear Jen, Congratulations on reaching this milestone! May God bless you with many more years! And thank you so much for sharing your information - many times I read the posts on this site and get very depressed but your uplifting post gave me hope that my spouse too will beat the beast. Blessings, Annie

                September 12, 2012 view post
                • Amcf1 has replied to a post on the message board

                  Barb, My heart goes out to you. I pray that you find peace after your devastating loss. Annie

                  August 02, 2012 view post
                  • Amcf1 has replied to a post on the message board

                    Allyson, First of all, congratulations on your marriage. May it be a long and happy one! We live in the Chicago suburbs now but last year when my husband was diagnosed with a tumor we lived elsewhere and we researched for the best surgeon & oncologist around. The neurologist that we visited at Hopkins recommended someone at university of Chicago and so we went there, met up with the neurosurgeon & neuro-oncologist ...

                    April 26, 2012 view post
                    • Amcf1 has replied to a post on the message board

                      Hi Bernadette, Thought I would give you an update from yeaterday's MRI. The nodule is stable (my husband's NO thinks it's scar tissue since the perfusion scans show no blood flow to it) and the flair around it is improving. We thank God for the absence of bad news. Please keep me updated on your husband too. All the best, Annie

                      November 11, 2011 view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About Amcf1

                      Caregiver
                      Brain Cancer

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.