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AnneLilja's Recent CancerCompass Activity

  • AnneLilja has replied to a post on the message board

    I just wrote a reply but it seems to have disappeared. For diarrhea I recommend an old ulcer medicin which goes by the name Andapsin in Sweden where I live. It's generic name is sukralfat and it forms a protective layer over the mucous membranes of the digestive tract. Sincerely, Anne

    February 21, 2013 view post
    • AnneLilja has replied to a post on the message board

      It's a very sad situation, but I definitely agree with you; let him eat and drink and smoke what he wants and as much as he wants. If he's not complaining of pain, perhaps he truly doesn't have any. That's a blessing at least. I wish you both the best.

      February 02, 2013 view post
      • AnneLilja has replied to a post on the message board

        I'm in Stockholm, Sweden, and things are organized differently here. I have an oncologist and an infusion nurse and get CT scans and chemo treatment at a universital hospital, but I am also enrolled in Advanced Home Care and have an oncologist and a nurse there. This nurse comes to my home and disconnects the 5FU infusion pump. The Advanced Home Care Team also do hospice care so their perspective is different from th...

        January 27, 2013 view post
        • AnneLilja has replied to a post on the message board

          Thanks, Bao, I'll definitely try it.

          January 23, 2013 view post
          • AnneLilja has replied to a post on the message board

            I'm so sorry to hear about your very difficult and complex situation, but happy to hear that you and your husband love each other so much. I don't have any practical advice for you except to try to get help through a social worker. I wish you both the best of luck.. Sincerely, Anne

            January 23, 2013 view post
            • AnneLilja has replied to a post on the message board

              Bao, Do you mean rinse with an entire pot of cold green tea each time?? Sincerely, Anne

              January 23, 2013 view post
              • AnneLilja has replied to a post on the message board

                Jinane, I just wrote a reply, but by mistake I made it into a private message. You can answer either way. Anne

                January 06, 2013 view post
                • AnneLilja has replied to a post on the message board

                  Hi, I just thought I'd add my story since I'm in a similar place to the people who have posted in this thread. In January 2012, ie just about a year ago, I was diagnosed with colon cancer stage 4 with around 30 mets to my liver, the largest ones measuring between 4-5 cm. It was later discovered that I also had one metastasis to a rib. I was considered inoperable. Taking out my primary tumor would only weaken me and d...

                  January 06, 2013 view post
                  • AnneLilja has replied to a post on the message board

                    Hi, I don't have any real answers to your question but wanted to tell you what I heard from another daughter the other day. I was telling this woman about my own cancer (colon stage 4), my reactions to i, how I feel the quality of my life is more important than the quantity etc. She then told me about her mother who had passed away from cancer, the same kind of cancer that your mother has. She told me that she had be...

                    January 06, 2013 view post
                    • AnneLilja has commented on a news story

                      Rick, It must be so trying on your patience to have to be so careful when eating. We do a lot of socializing when we eat, but that's obviously hard for you now. Just wanted to say "hang in there!" Sincerely, Anne

                      January 03, 2013 view news story
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                      About AnneLilja

                      Patient
                      Colon Cancer
                      Alternative Treatments, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diagnostic Imaging, Diet, Massage Therapy, Physical Therapy, Side Effects, Support

                      I'm a Swedish woman living in Stockholm. I have colon cancer stage 4 with a few cancerous lymph nodes and around 30 metastases in all sections of my liver making me inoperable. Plus one small metastasis in a rib (go figure). I was diagnosed in January of this year (2012), turned 56 in February. I am considered inoperable. I have received 9 treatments of FU5 + Irinotecan + Avastin plus some other agents that help and reduce side-effects. This concoction reduced the size of mets by about 20%. I am currently on maintenance therapy with only Avastin. I have lived in the States (NYC) and was married to an American, divorced since 1999. We have two boys aged 17 and 20.

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