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Aoife's Recent CancerCompass Activity

  • Aoife has replied to a post on the message board

    I had my son just before I was a 4 year survivor and my daughter before I was a 5 year survivor.  I had chemo then ta total oesophagectomy.  The first year was the toughest but I am my weight before it all happened a few years now.  I turned a 9 year survivor in October and 41 earlier in the year.

    December 02 at 6:40 AM view post
    • Aoife has replied to a post on the message board

      I still get dumping syndrome the odd time and I had the surgery in February 2007.  I still have to be careful what I eat, milk was a no no until I became pregnant with my daughter when I was just over a 4 year survivor (she is 4 now and I have a 5 year old as well), and even still low fat millk makes me ill.  It takes a long time to get used to the new normal with this surgery and even that changes over tim...

      November 24 at 7:49 AM view post
      • Aoife has replied to a post on the message board

        Mine was finally found when I was unable to swallow even water - (I was 32 at the time and am 41 at this stage) - there is no point in speculating - get the scope and then see, if nothing else you will be kept an eye on.

        November 24 at 7:43 AM view post
        • Aoife has replied to a post on the message board

          I was 32 when I was in a similar position to your boyfriend, I was stage 3 and had the chemo then surgery but I did have a total response to the surgery.  I amd ober 8.5 years since surgery at this stage and am a 9 year survivor and mother of a 4 and 5 year old born post surgery.  At only 2 months out I was not up to anything much, I was in severe agony, I had a bad cough, found it hard eating but it did g...

          October 18 at 8:43 AM view post
          • Aoife has replied to a post on the message board

            I was stage 3 squamous cell EC, a non smoker, light drinker at best.  I am a type 1 diabetic and have an underactive thyroid and was diagnosed with sarcoidosis post treatment.  I am a 9 year survivor today and was diagnosed when I was 32 and have gone on to marry and have a 4 and 5 year old born to be post treatment. Best wishes, Aoife

            October 02 at 6:13 PM view post
            • Aoife has replied to a post on the message board

              Hi Vish, my surgery was 3 stage open surgery and it worked well for me, Best wishes to you and your dad, Aoife

              September 30 at 5:18 AM view post
              • Aoife has replied to a post on the message board

                I was stage 3 squamous oeosphageal cancer but did respond to chemo but also had the surgery - if it were me in that situation I would have the surgery and then try another chemo afterwards as the risk of it turning to stage 4 while you have another chemo would be too high for me.  I am an 8 year 11 month and 3 week survivor and mother of a 4 and 5 year old born to me post surgery.

                September 27 at 9:44 AM view post
                • Aoife has replied to a post on the message board

                  Sorry about the delay, my 4 year old daughter was just admitted to hospital, she was having extreme high temperatures.  I know the cause and it was due to radiation I had a child for another illness which runs in my family.  I had a few things for chemo, sorry it is a long time ago, I had the chemo before the surgery. Aoife

                  September 25 at 7:39 PM view post
                  • Aoife has replied to a post on the message board

                    I had oesophogeal cancer so not the same but in the same general area, I was also 32 when diagnosed and was stage 3.  I am now 41 and had a 4 and 5 year old post surgery. The chemo was hard, the surgery harder but I am still here.

                    September 24 at 6:26 PM view post
                    • Aoife has replied to a post on the message board

                      it does take time to be able to eat, it was 6 months before I started to eat more than a few things and even then I felt very sick.  It does get a lot easier with time.  My trigger foods at first was milk, that made me very ill. Please reasure your husband that it does get a lot easier with time - I am an 8 year 11.5 month survivor at thisg stage and am mother to a 4 and 5 year old born to me post surgery....

                      September 17 at 5:38 AM view post
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                      About Aoife

                      Patient
                      Esophageal Cancer

                      Am a 41 year old Oesophageal cancer survivor who was diagnosed 2nd October 2006, I got married late 2006 just after chemo and had surgery 9th February 2007 and had a beautiful little son 2nd April 2010. I had our daughter on 1st June 2011. I sort of skipped my 4 year scan and had my 5 year oneish on the on 2nd of September which was fine and I have been advised to have no more scans. My Mother in law passed away on the 12th of February 2013 of late stage lung cancer. I also have a cousin who is being treated for esophageal cancer at the moment.

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