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Aoife's Recent CancerCompass Activity

  • Aoife has replied to a post on the message board

    I forgot about the blood trasnfusion, opps, I had 7 units, not easy when I am just over 5ft tall!  It took me a while to be able to eat again - we actually had a wedding to go to abroad a few months post surgery and I started eating fish pate, not much but it was a start.  It went on from that to tapas (small starters), then it went to to two small starters.  It does take time, by 6 months I went back ...

    Yesterday at 8:33 AM view post
    • Aoife has replied to a post on the message board

      I was stage 2/3 and had chemo for 3 months, married then had the three stage surgery.  I got double pneumonia, then my kidneys had issues and I was on dialysis for a while during which time I had to be resusitated 3 times, I was in ICU about 2 months.  That was over 7 years ago and I have gone on to have a son and a daughter and I just turned 40.  I am busy and have a good life. I hope that this reasu...

      Thursday at 7:51 PM view post
      • Aoife has replied to a post on the message board

        I am so sorry to hear of your loss, my heart goes out to you and your family at this difficult time.

        Wednesday at 5:55 PM view post
        • Aoife has replied to a post on the message board

          I am really sorry that you lost your daughter. I was diagnosed in 2006 when I was 32, my husband and I got married 2 weeks after chemo, he has crohns, I have type 1 diabetes (brittle after the surgery, sarcoidosis, thyroid issues).  I had the surgery Feb 2007 and got double pneumonia then was on dialysis for a while and had to be revived 3 times.  We then went on to have 6 heartbreaking miscarriages and th...

          April 07 at 6:07 AM view post
          • Aoife has replied to a post on the message board

            No harm to go to a gastroenterologist.  If it were me I would not wait.  I was never a smoker but was diagnosed at a similar age to yourself.  Best wishes.

            March 31 at 9:04 PM view post
            • Aoife has replied to a post on the message board

              I feel that it depends on the age of the patient at diagnosis - I had radiation treatment for something else in early childhood and if you live long enoug you may get some other cancer as a result as I did.  I had an uncle that had radiation treatment in his early 40's and then got cancer again inhis 80's. I was only 32 when diagnosed.  I also had a complete response to chemo and to the surgery and also wan...

              March 28 at 7:52 AM view post
              • Aoife has replied to a post on the message board

                Can only speak from personal experience - I had chemo and then the surgery.  Still here over 7 years later. 

                March 27 at 8:34 AM view post
                • Aoife has replied to a post on the message board

                  I was 32 at diagnosis, when I started chemo I could not even swallow more than a tiny bit of water, most of it came back up.  I was able to eat after the first batch of chemo.  They hoped that I could have the surgery which I had Feb 2007.  I recently turned 40.  Keep on fighting this.

                  March 25 at 9:08 PM view post
                  • Aoife has replied to a post on the message board

                    Was 32 when I had my total oesophagectomy afteing chemo first.  I had my children when I was 36 and 37 so did not wait for the 5 years clear but I am just turned 40 now and I have a life - I know that we do not go out in the evening but I think that some of that is due to having a 2 and a 3 year old.  Yes, you have to make some adaptations but I have a life.  Yes, for me the first 6 months post surgery...

                    March 24 at 7:58 AM view post
                    • Aoife has replied to a post on the message board

                      I was doing really badly for quite a while - I could not tolerate milk for about 3 years post surgery which did not help.  I had to go to a wedding abroad a few months post surgery and started to eat fish paste/pate - not exciting but it was a start.  Now I only occasxionally misjudge food.  The hunger is more a choking sensation except for chocolate or really nice smelling food.  I had the surger...

                      March 23 at 7:30 PM view post
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                      About Aoife

                      Patient
                      Esophageal Cancer

                      Am a 39 year old Oesophageal cancer survivor who was diagnosed 2nd October 2006, I got married late 2006 just after chemo and had surgery 9th February 2007 and had a beautiful little son 2nd April 2010. I had our daughter on 1st June 2011. I sort of skipped my 4 year scan and had my 5 year oneish on the on 2nd of September which was fine and I have been advised to have no more scans. My Mother in law passed away on the 12th of February 2013 of late stage lung cancer.

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