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Aoife's Recent CancerCompass Activity

  • Aoife has replied to a post on the message board

    All that I can really say is that it takes time - i found it very difficult for the first 6 months post surgery but if I looked back even then it was getting better slowly. I am back at my normal weight. It does take time, i had the surgery early 2007.

    Yesterday at 8:17 PM view post
    • Aoife has replied to a post on the message board

      I was 32 when I had the surgery (I had chemo first), I also had squamous cell.  I got double pneumonia then my body started to shut down, I went on dialysis and had to be resussitated 3 times.  I had a bad scare at my 18 month scan as it looked like it had spread to my liver (thankfully it was sarcoidosis). I had dumping syndrome for a long time and still do occasionally.  I managed to become pregnant...

      Monday at 7:32 PM view post
      • Aoife has replied to a post on the message board

        Opps, yes they did a needle biopsy to determine that,

        December 13 at 9:47 AM view post
        • Aoife has replied to a post on the message board

          Hopefull like me the enlarged lymph nodes are sarcoidosis, my lymph nodes that they took from the surgery were all like that and they were just the sarcoidosis. Hold in there - I know that it is scary but I really think that this maybe the explanation.

          December 13 at 9:46 AM view post
          • Aoife has replied to a post on the message board

            When I had the surgery I had 20 lymph nodes removed and they were all negative.  At the 18 month scan the CT showed issues with my liver, then they did a PET scan and then a needle biopsy - they determined from the needle biopsy that it was the sarcoidosis.  It occured indepently of everything else. Best wishes, Aoife

            December 12 at 7:06 AM view post
            • Aoife has replied to a post on the message board

              Hi, I had enlarged lymph nodes and a shadow on my liver on the 18 month scan - I was lucky and it was sarcoidosis.  I am an 8+ year survivor now and have a 3 and 4 year old that I had post surgery (I also turned 40 this year).

              December 11 at 7:26 PM view post
              • Aoife has replied to a post on the message board

                I do find that colds really get very bad with me - I am an 8+ year survivor.  I find that the join in my throat irritates everything and I get a very bad cough. I did have double pneumonia post surgery and I always have to be careful and take action straight away.

                December 11 at 7:22 PM view post
                • Aoife has replied to a post on the message board

                  It is a lot to go through and I can relate to being like your son after the surgery - I do remember being thrilled to be still alive but then I went in and out of consciousness for over 2 weeks as I got pneumonia in both my lungs then I was on dialysis for a while and was then very ill.  The morphine can do strange things to people but the pain at first can be very bad. Reasure your son that the pain gets les...

                  December 06 at 10:25 AM view post
                  • Aoife has replied to a post on the message board

                    When I was being diagnosed I could not even swallow water - I hope that you can see that it can and does get better.  I was stage 3 at diagnosis, I only had chemo (as i had radioiodine as a child) and then the surgery. It is a challenge but your son can have a good life afterwards. Aoife

                    November 26 at 6:33 AM view post
                    • Aoife has replied to a post on the message board

                      It is not always that straight forward - I had the chemo first because I was too ill to have the surgery as it took a long time to be diagnosed.  I am lucky, it is 8 years since I was having chemo and I had the surgery in 2007 after marrying my husband first.  I am now 40 and we have a 3 and 4 year old. I know that it is tough but they are trying to do the best for your son.

                      November 25 at 7:45 PM view post
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                      About Aoife

                      Patient
                      Esophageal Cancer

                      Am a 40 year old Oesophageal cancer survivor who was diagnosed 2nd October 2006, I got married late 2006 just after chemo and had surgery 9th February 2007 and had a beautiful little son 2nd April 2010. I had our daughter on 1st June 2011. I sort of skipped my 4 year scan and had my 5 year oneish on the on 2nd of September which was fine and I have been advised to have no more scans. My Mother in law passed away on the 12th of February 2013 of late stage lung cancer.

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