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Aoife's Recent CancerCompass Activity

  • Aoife has replied to a post on the message board

    I just saw about the low sugar - I am lucky that I am a type 1 diabetic so only have to count carbs not have low carb and can take insulin to balance the sugar.  It does make life interesting though as dumping syndrome makes me very ill when I get it.  My weight is about the same as when I was 18 so my BMI is about 21/22 which is fine, Aoife

    Thursday at 1:45 PM view post
    • Aoife has replied to a post on the message board

      The first 2 years are the toughest - it really does get easier with time - the first 6 months post surgery are worse than the first year and the first year is worse than the first 5 years.  I still can not eat as much as I like and there are some foods that I love that I can not have such as brocoli and cabbage but it really does get easier.  I had the surgery with the 3 scars and the broken ribs and I find...

      June 29 at 5:37 PM view post
      • Aoife has replied to a post on the message board

        It is pronounced Eeefaa, yes, it is my name.  I have my 4 and 5 year old playing here - my husband and I married 2 weeks post chemo, he has crohns and his consultant diagnosed me.  I am loving being a mother, I have wanted my two all of my life.  It does get easier with time - I can even eat a full main course now which is great :) Aoife

        June 27 at 7:30 PM view post
        • Aoife has replied to a post on the message board

          I have none of my food pipe remaining at all.  I had my surgery over  years ago though and was diagnosed on 2nd  October 2006 with stage 3 and had chemo with the hope of surgery. I was only 32 when diagnosed but I also had type 1 diabetes since I was 10.  I had 2 children post surgery, when I was pregnant with my youngest I was able to have milk again as long as it is full fat.  I do always ...

          June 27 at 7:10 PM view post
          • Aoife has replied to a post on the message board

            I had my husband to fight for me when I did not have the strenght, I was 32 when I was diagnosed with stage 3, married 2 weeks post chemo and am 41 now and have a 4 and 5 year old born to me post surgery.  This is a tough fight but you can beat it. Aoife

            June 24 at 5:33 AM view post
            • Aoife has replied to a post on the message board

              I eat curries but that is about as far as it goes - I make a conscious decision to have tumeric 1-2+ times a week.

              June 24 at 5:27 AM view post
              • Aoife has replied to a post on the message board

                I am so sorry to hear this - you are the same age as me and I also have young children so this has reallt hit me - you can be in the percentage that beats this, there is always hope and you can make it.

                June 23 at 7:00 PM view post
                • Aoife has replied to a post on the message board

                  I just wanted to say that I am sorry to hear that happened to you - I have a few other medical conditions including 30+ years type 1 diabetes (which is brittle due to the surgery), sarcoidosis, pernicious anemia, regular anemia and an underactive thyroid but do not wear a medalert bracelet, I will look into it.  I never thought about the effects on our lungs of the surgery, I will have to, I have a 4 and 5 year ...

                  June 23 at 6:40 PM view post
                  • Aoife has replied to a post on the message board

                    They used radioiodine on me for an overactive thyroid when I was 3, I was diagnosed with stage 3 oesophageal cancer when I was only 32, luckily still here and have a 4 and 5 year old now and am an 8.5 year survivor.

                    June 21 at 9:54 AM view post
                    • Aoife has replied to a post on the message board

                      I am so sorry for your loss.  I am 41 now and have young children (4 and 5) and your post really hit me.  One of my cousin's passed way at the same age as your husband and she had young children too.  Grief counselling for your whole family will help, I am sorry for your loss, Aoife

                      June 11 at 6:05 AM view post
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                      About Aoife

                      Patient
                      Esophageal Cancer

                      Am a 41 year old Oesophageal cancer survivor who was diagnosed 2nd October 2006, I got married late 2006 just after chemo and had surgery 9th February 2007 and had a beautiful little son 2nd April 2010. I had our daughter on 1st June 2011. I sort of skipped my 4 year scan and had my 5 year oneish on the on 2nd of September which was fine and I have been advised to have no more scans. My Mother in law passed away on the 12th of February 2013 of late stage lung cancer. I also have a cousin who is being treated for esophageal cancer at the moment.

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