Aoife

Aoife's Recent CancerCompass Activity

• Aoife has replied to a post on the message board

  I had the surgery over 6 years ago having had 3 months of intense chemo before hand.  The chemo is something that I do not remember (though my husband does and still finds it upsetting), I was very ill post surgery but I have gone on to have a son who is 37 months and a daugher who is 23 months old so I very much have a life and there are two people here that would not have been.  it did make me prioritise ...

  May 03 at 6:12 AM view post

• Aoife has replied to a post on the message board

  Low blood preassure and high blood pressure is different.  I personally feel that it would be a very bad idea to go off pain meds - to say that the pain is extreme and everywhere is an understatement. I do hope that the original poster is having an easier time of it now - I went through a rough time myself and am only remembering that time so that I can help her and her husband.

  April 29 at 6:10 AM view post

• Aoife has replied to a post on the message board

  I do know that I had to get 4 units of blood post surgery.  I had a total oesophagectomy and my stomach was restitched into being a food pipe and stomach.  I do remember that my back was really sore where they cut throught my ribs and that I was on strong painkillers for a while.  I was not allowed food for quite a while. It was not an easy time and you are not out of the woods yet but people can and ...

  April 28 at 6:23 PM view post

• Aoife has replied to a post on the message board

  I was 6-7 days on the ventilator and almost 3 weeks in total in ICU, it was a real battle and I remember some but not all of it.  I am still here over 6 years later.  Yes, this is not good but people can and do move on from this.  Be encouraging to your husband and give him hope. Best wishes, Aoife

  April 28 at 4:59 PM view post

• Aoife has replied to a post on the message board

  Exactly the same thing happened to me post surgery - I do not normally like to talk about it as I do not want to put people off the surgery which is very much necessary.  In my case I ended up having to be resussitated 3 times.  Yes, this will be a very challenging time - what you need to do is remind him what you plan to do when he is over this and how much you love him.  I do remember my them new hus...

  April 28 at 10:04 AM view post

• Aoife has replied to a post on the message board

  I felt exactly like you did for the first year and I had the surgery over 6 years ago now. I hope that this helps, Aoife

  April 27 at 8:25 AM view post

• Aoife has replied to a post on the message board

  Your husband sounds similar to me, I was like that and they will need to closely monitor him.  I was only 32 when I had the surgery.  All that I will say is that I am 39 now and am still here. It can be a long and difficult journey post surgery but it is needed to have any chance of living the new normal. Best wishes, Aoife

  April 26 at 6:05 AM view post

• Aoife has replied to a post on the message board

  I had that exact problem and would still have blood pressure on the lower side of normal.  It does take a long time to get over this - he needs to be carefully monitored for now.  I got 4 units of blood post sugery but I have gone on to become a mother and it is over 6 years since my surgery now. Aoife

  April 25 at 6:34 PM view post

• Aoife has replied to a post on the message board

  I asked my hubby, he said that i had teh feeding tube briefly after the surgery - ie a day or two.  I would have been borderline underweight before it and it took me years to be a healthy weight again but it happens over time.  Dumping was a big issue for me for the first 2 years post surgery, now it happens less often and I have learned to avoid the triggers for me.  I know that I was lactose intolera...

  April 22 at 6:29 PM view post

• Aoife has replied to a post on the message board

  I had one week in four of chemo for 3 months then a break (I married) then the surgery.  I lost all of my hair after the first batch and do not remember most of it now, I was sick for most of it but I was stronger than it. The surgery is not easy but I do feel that it is necessary. Hope that this helps, Aoife

  April 21 at 8:11 PM view post