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Bee_Rich's Recent CancerCompass Activity

  • Bee_Rich has replied to a post on the message board

    Is your husband able to do cardio exercise? I've had onew course of radiation, having LT fx and find cardio to help tremendously. hth

    Monday at 7:41 PM view post
    • Bee_Rich has replied to a post on the message board

      try this link smaju: http://goo.gl/2WM6wx

      April 15 at 12:20 AM view post
      • Bee_Rich has replied to a post on the message board

        I've been tapering keppra from 3000mg, but have stopped at 1500mg when i started getting pre seizure symptoms. May start titrating my vimpat soon too. both in combination have stopped all seizure activity since dec. 2012, and only side fx are fatigue. I usually take a 2-4 hr nap during daytime and all is good. Epileptologist says both have very low tox profile. my shortterm memory is going to hell, but likely is ...

        April 14 at 1:10 AM view post
        • Bee_Rich has replied to a post on the message board

          I could say much the same with my journey. I have diffuse/infiltrative gr 2 + astrocytoma. did the std. photon radiation & 12 mo. temo.  Good MRI results so far. Been having memory issues lately likely from the radiation.

          April 13 at 1:09 AM view post
          • Bee_Rich has replied to a post on the message board

            here's the journal article the above refers to: http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0091216

            April 12 at 2:39 PM view post
            • Bee_Rich has replied to a post on the message board

              holy moly joseph! , calendula was one of the otc's that my dermatologist recommended during my last visit. I thought I would remember it, haha silly mortal, what was I thinking, I'm such a ditz now bc of long term radiation fx. thanks

              March 18 at 6:18 PM view post
              • Bee_Rich has replied to a post on the message board

                wow. petitioned signed and i sent a pic too. thanks karyn

                March 18 at 6:04 PM view post
                • Bee_Rich has replied to a post on the message board

                  my NO would probably say you will do very well after the chemo and rads. He sees many II and III's chugging along. May you be one too!

                  March 14 at 12:24 PM view post
                  • Bee_Rich has replied to a post on the message board

                    I still do outpatient PT 15mos. after a brain biopsy bled, leaving my left side immobile. did inpatient rehab hospital for a couple weeks then started 3x/wk outpatient PT..I don't look disabled to most. Stiil have fine motor deficiencies, but I will overcome those eventually. plus my body is becoming a fine sculpted piece of art! 

                    March 11 at 2:21 PM view post
                    • Bee_Rich has replied to a post on the message board

                      I take keppra and vimpat plus a couple others. yes, i've had rashes and severe itching even w/o rash . My dermatologist prescribed a few steroid ointments tha help quite a bit. Good 'ol calamine works too, plus moisturizers. I occasionly take oral prednisone too, when it gets crazy itchy. oh, and contact with some clothing like pj bottoms makes the itching much worse too.i just wear shorts then.

                      March 11 at 2:11 PM view post
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                      About Bee_Rich

                      Patient
                      Brain Cancer
                      Alternative Treatments, Cancer Nutrition, Cancer Prevention, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Emotional Support, Insurance, Local Hyperthermia, Massage Therapy, Physical Therapy, Radiation, Side Effects, Supplements, Surgery

                      51 y/o ex-scientist. 9/24/12:GR2-3 parietal+ diffuse/infilt Astrocytoma dx 11/16/12:post-biopsy hemorrhage&seizures requiring inpatient rehab.
                      12/12:left arm myoclonus(tremors)
                      12/12-01/22/13 rad/temodar
                      now in outpatient PT&OT
                      03/13-present:on 5/24 Temodar cycles.tolerating 'well enough'
                      06/13: Titrating off of Dilantin anti-seizure med.
                      07/13 Titrated off of Dilantin. next is Klonopin
                      no seizures...yet
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                      please excuse my spelling & use of no caps. Left arm/hand still not 100% after post biopsy bleed
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                      3/13 "I hope have enough time here to instill a sense of life (and death) appreciation in my boy, a will to live with vigor, intent and meaning. To accept the risks with gusto, and to keep fighting with all ye' got!"
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