Bee_Rich

Bee_Rich's Recent CancerCompass Activity

• Bee_Rich has replied to a post on the message board

  I am seeing a therapist . 2nd appt. is this afternoon. She knows the brain tumor center personnel and is very knowledgable with cancer patients. I think the sessions will be helpful to me. maybe helpful for your mom? don't forget yourself as caregiver as well

  April 11 at 5:46 PM view post

• Bee_Rich has replied to a post on the message board

  interesting. my NO said to be very careful with it and to even store it in a locked cabinet,

  April 11 at 12:27 AM view post

• Bee_Rich has replied to a post on the message board

  My thoughts are with you.

  April 11 at 12:22 AM view post

• Bee_Rich has replied to a post on the message board

  I'm experiencing nausea on my maint. rounds of temodar(400mg)I take an 8mg. zofran 1 hour b/f the temodar. Wake up 7 hours later with the "urge to purge" Take a dissolving zofran but its too late by then. Also fatigue. i need to find some more weed. works great. If these are the extent of my symptoms and the treatment is working, I'm more than willing to continue ad infinitum.

  April 09 at 2:52 PM view post

• Bee_Rich has replied to a post on the message board

  i've had chronic pain and know the frustration. I had one nerve block work out of 3, so maybe when he is elgible he try again. pain was gone after the one that worked!. Also since Ive been on my 4 anti-epileptics, my pain has reduced greatly. And I was on cyymbalta, which helped too, but had side-fx for me. Also have opiates, but they just seem to mask the pain, not real relief for chronic. wonder if cannabinoid wou...

  April 06 at 8:47 PM view post

• Bee_Rich has replied to a post on the message board

  In November, I had a hemmoraghic stroke after my brain needle biopsy.First one in several years at this major tumor center I was told.. My left arm was completely flaccid for ten days. Left leg has deficit too.Did inpatient rehab and now do outpatient PT/OT 3X/weektumors are hig hly vascular.

  April 03 at 5:28 PM view post

• Bee_Rich has replied to a post on the message board

  well that gave this ornery old man a smile!

  April 02 at 10:15 PM view post

• Bee_Rich has replied to a post on the message board

  Yes , experienced similar after my dad had a stroke. I think people get uncomfortable, don't know what to do.

  March 27 at 1:54 AM view post

• Bee_Rich has replied to a post on the message board

  mumplus, re:PSK, I was told by an alernative phamacist that mushrooms in gerneral are very good, but the asian one(can't remember name) is best. maybe bigsky can chime in w/ name. Anyway PSK is the active ingredient i think, so if you take that you don't have to take other mushroom supplements., per this pharmacist. I still try to eat fresh shrooms every day though.

  March 26 at 1:42 PM view post

• Bee_Rich has replied to a post on the message board

  Consider a supplement regimine , ala Ben Williams. Also, google search "supplements for gbm'. about 1/2 way down the results ,is a link to another forum post with much detail and links. Also, consider a 'calorically restricted diet' and possibly a ketogenic diet. google 'Thomas Seyfried' and his research plus philosophy of brain tumors.

  March 26 at 1:16 PM view post