Bee_Rich

I am seeing a therapist . 2nd appt. is this afternoon. She knows the brain tumor center personnel and is very knowledgable with cancer patients.

I think the sessions will be helpful to me.

maybe helpful for your mom?

don't forget yourself as caregiver as well

interesting. my NO said to be very careful with it and to even store it in a locked cabinet,

My thoughts are with you.

I'm experiencing nausea on my maint. rounds of temodar(400mg)I take an 8mg. zofran 1 hour b/f the temodar. Wake up 7 hours later with the "urge to purge" Take a dissolving zofran but its too late by then.

Also fatigue.

i need to find some more weed. works great.

If these are the extent of my symptoms and the treatment is working, I'm more than willing to continue ad infinitum.

i've had chronic pain and know the frustration.

I had one nerve block work out of 3, so maybe when he is elgible he try again. pain was gone after the one that worked!. Also since Ive been on my 4 anti-epileptics, my pain has reduced greatly. And I was on cyymbalta, which helped too, but had side-fx for me. Also have opiates, but they just seem to mask the pain, not real relief for chronic. wonder if cannabinoid would help. I've just recently found the real stuff helpful.

In November, I had a hemmoraghic stroke after my brain needle biopsy.First one in several years at this major tumor center I was told.. My left arm was completely flaccid for ten days. Left leg has deficit too.Did inpatient rehab and now do outpatient PT/OT 3X/weektumors are hig

hly vascular.

On Mar 13, 2013 2:59 AM jpearson472 wrote:

id vote for Red Hook ESB or maybe mac n jacks

well that gave this ornery old man a smile!

Yes , experienced similar after my dad had a stroke. I think people get uncomfortable, don't know what to do.

mumplus, re:PSK, I was told by an alernative phamacist that mushrooms in gerneral are very good, but the asian one(can't remember name) is best. maybe bigsky can chime in w/ name. Anyway PSK is the active ingredient i think, so if you take that you don't have to take other mushroom supplements., per this pharmacist.

I still try to eat fresh shrooms every day though.

Consider a supplement regimine , ala Ben Williams. Also, google search "supplements for gbm'. about 1/2 way down the results ,is a link to another forum post with much detail and links.

Also, consider a 'calorically restricted diet' and possibly a ketogenic diet. google 'Thomas Seyfried' and his research plus philosophy of brain tumors.