51 y/o ex-scientist. 9/24/12:GR2-3 parietal+ diffuse/infilt Astrocytoma dx 11/16/12:post-biopsy hemorrhage&seizures requiring inpatient rehab.
12/12:left arm myoclonus(tremors)
now in outpatient PT&OT
03/13-02/14:on 5/24 Temodar cycles.tolerated 'well enough'
06/13: Titrating off of Dilantin anti-seizure med.
07/13 Titrated off of Dilantin. next is Klonopin
01-14-03/14:Titrated down Keppra to 1500mg/day
03/14: Post temodar MRI show reduction of 'hot spots'. now on 3 mo. MRI schedule..yea!
04/14: considering titrating Vimpat
please excuse my spelling & use of no caps. Left arm/hand still not 100% after post biopsy bleed
3/13 "I hope have enough time here to instill a sense of life (and death) appreciation in my boy, a will to live with vigor, intent and meaning. To accept the risks with gusto, and to keep fighting with all ye' got!"