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Bulley1's Recent CancerCompass Activity

  • Bulley1 has replied to a post on the message board

    Cynthia - so happy the surgery worked so well!! Always great to see good news.

    January 07 at 2:53 AM view post
    • Bulley1 has replied to a post on the message board

      Deb, So sorry to hear the tumor is growing so quickly after surgery. Brain cancer is a beast!! Every journey is unique.......My husband, Dan, was diagnosed Sept 2010. He drew the long straw in location - frontal lobe. The surgeon was able to get all there was to see. He had standard of care with 6 weeks radiation and Temodor. On Temodor, as I remember, 8 cycles. Growth a few MRI's after stopping. Neuro oncol...

      January 05 at 7:33 PM view post
      • Bulley1 has replied to a post on the message board

        Kim, I've begun to read your blog. In fact I bookmarked it. Wish I'd seen your post earlier when life wasn't so busy. The way you bring humor into hospice is amazing during a not funny season.....We're 5 plus years into GBM and heading that direction. Thanks for the reminder to Stay upbeat. Blessings to you and your daughter in this new phase of life. Keep blogging Pam

        December 25 at 7:11 PM view post
        • Bulley1 has replied to a post on the message board

          Aggie, So sorry to read your sad news. Sometimes I wonder why the good people leave us while the nasty ones -yes GBM patients - last and make life so challenging for caretakers. I hope and pray your memories bring you and your children comfort. Blessing to you, Pam

          November 15 at 10:22 PM view post
          • Bulley1 has replied to a post on the message board

            My husband is on Avastin /CCNU. His tumor has shrunk on the combination. Duke and Cleveland Clinic are two well known BT treatment centers who use CCNU in conjunction with other chemotherapy. I'm confident the use of CCNU is basically "last ditch". Best wishes, Pam

            October 07 at 11:44 PM view post
            • Bulley1 has replied to a post on the message board

              My husband starts his 4th cycle of CCNU Tuesday assuming his blood numbers are within range. He has been slightly nauseous the first few days - zofran works wonders. Weeks 4 and 5 he's weak. Side effects of CCNU - for him weakness - are cumulative. He's on his 4th reoccurrence in 5 years. Prior treatments of Carboplatin/Avastin and radiation/temodor caused fatigue and weakness before his NO began CCNU. Best wis...

              August 30 at 11:15 PM view post
              • Bulley1 has replied to a post on the message board

                My husband is on CCNU with Avastin. First MRI showed "significant improvement". I understand CCNU works well with Avastin. Time will tell how well it works over time.

                June 25 at 11:25 PM view post
                • Bulley1 has replied to a post on the message board

                  My husband is on CCNU with Avastin. First MRI showed "significant improvement". I understand CCNU works well with Avastin. Time will tell how well it works over time.

                  June 25 at 10:37 PM view post
                  • Bulley1 has replied to a post on the message board

                    Dodger Blue, you are my hero !!

                    June 18 at 4:59 AM view post
                    • Bulley1 has replied to a post on the message board

                      Wow, he's way to young to be in this battle!! I am not a Novocure fan - sorry to be so blunt. My husband just started Avastin, again, for the third time. Had it twice with Carboplatin for reoccurrence. Now the doctor hitting growth with CCNU and Avastin after nearly one year with tumor stable. Seems like he needs something different since he's having symptoms with Novocure alone. Please keep in touch. I do ha...

                      May 31 at 3:14 AM view post
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                      About Bulley1

                      Caregiver
                      Brain Cancer, Leukemia
                      Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research

                      I'm new on this site, though I've been a "voyeur" since discovering it in Oct following my husband's surgery for GBM on Sept 14, 2010. We're very grateful for this time to get our affairs in order. He has done well post surgery. Hoping and praying for more good MRI's. His 5/23 temodor has become a challenge keeping the pills down.

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