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Bulley1's Recent CancerCompass Activity

  • Bulley1 has replied to a post on the message board

    In my observation only another brain tumor patient or caregiver truly understands. For that reason I have made an effort to support BT caregivers. We get it. So sorry for all you have gone thru dealing with your BT. I pray you don't give up. You are an inspiration to those people watching how you deal with adversity. Every day is a precious gift. Hugs, Pam

    Yesterday at 11:00 PM view post
    • Bulley1 has replied to a post on the message board

      It's no wonder you're sick and have a horrible headache! Sounds like your medical care leaves much room for improvement. So sorry....................

      March 03 at 6:22 PM view post
      • Bulley1 has replied to a post on the message board

        Wildrose, What a lovely offer from your pastor's wife. In my experience people say, "call me if you need help". Naturally you won't call. Hope you do allow her to help when you're unable to do everything yourself. Pam

        March 03 at 6:02 PM view post
        • Bulley1 has replied to a post on the message board

          Glitzy, Wishing I were able to give you a hug - a real hug. You have seen more than any 30 year old should have to witness. Blessings to you and your two hear old. Pam

          February 24 at 3:47 AM view post
          • Bulley1 has replied to a post on the message board

            Mary Anne, I don't know anyone personally who has been treated at CTCA, however have read journals of a few people who are being treated at the one in Scottsdale - have nothing but praise. One young mother in particular with colon cancer is grateful for the "time" they have given her to be here to watch her children grow. So sorry for what your brother and his family are experiencing!

            November 21 at 3:31 AM view post
            • Bulley1 has replied to a post on the message board

              JQ, So sorry you are having to deal with recurrence!  When Dan was diagnosed we went to UCSD for a second opinion, check for trials and explore option of Novo Cure.  Our out of pocket expenses were considerably more than Cedars Sinai - closer to 3 visits.  Which we were happy to pay and grateful we had resources to pay. Our first visit with the NO post surgery was lengthy with the doctor&nb...

              November 04 at 6:41 PM view post
              • Bulley1 has replied to a post on the message board

                I did report it first thing. Thanks for the reminder. Just hope and pray no one falls for her bull!

                October 16 at 2:13 AM view post
                • Bulley1 has replied to a post on the message board

                  First thing I did was report it. I pray no one falls for her bull s----!!!

                  October 16 at 2:10 AM view post
                  • Bulley1 has created a new message board discussion

                    I hate hate hate people who try to take advantage of the elderly and people in medical crisis who might have their guard down. Received a Private Message today from an Elizabeth Dixon who claims to have terminal esophageal cancer and wants to donate her estate to the poor and orphans. Please contact her at this email address................I hope no one else was burdened with her scam. Just thought I should pass...

                    October 16 at 1:51 AM view discussion
                    • Bulley1 has replied to a post on the message board

                      How did you find the doctor? Great idea!

                      October 14 at 4:49 AM view post
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                      About Bulley1

                      Caregiver
                      Brain Cancer, Leukemia
                      Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research

                      I'm new on this site, though I've been a "voyeur" since discovering it in Oct following my husband's surgery for GBM on Sept 14, 2010. We're very grateful for this time to get our affairs in order. He has done well post surgery. Hoping and praying for more good MRI's. His 5/23 temodor has become a challenge keeping the pills down.

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