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Bulley1's Recent CancerCompass Activity

  • Bulley1 has replied to a post on the message board

    My husband starts his 4th cycle of CCNU Tuesday assuming his blood numbers are within range. He has been slightly nauseous the first few days - zofran works wonders. Weeks 4 and 5 he's weak. Side effects of CCNU - for him weakness - are cumulative. He's on his 4th reoccurrence in 5 years. Prior treatments of Carboplatin/Avastin and radiation/temodor caused fatigue and weakness before his NO began CCNU. Best wis...

    August 30 at 11:15 PM view post
    • Bulley1 has replied to a post on the message board

      My husband is on CCNU with Avastin. First MRI showed "significant improvement". I understand CCNU works well with Avastin. Time will tell how well it works over time.

      June 25 at 11:25 PM view post
      • Bulley1 has replied to a post on the message board

        My husband is on CCNU with Avastin. First MRI showed "significant improvement". I understand CCNU works well with Avastin. Time will tell how well it works over time.

        June 25 at 10:37 PM view post
        • Bulley1 has replied to a post on the message board

          Dodger Blue, you are my hero !!

          June 18 at 4:59 AM view post
          • Bulley1 has replied to a post on the message board

            Wow, he's way to young to be in this battle!! I am not a Novocure fan - sorry to be so blunt. My husband just started Avastin, again, for the third time. Had it twice with Carboplatin for reoccurrence. Now the doctor hitting growth with CCNU and Avastin after nearly one year with tumor stable. Seems like he needs something different since he's having symptoms with Novocure alone. Please keep in touch. I do ha...

            May 31 at 3:14 AM view post
            • Bulley1 has replied to a post on the message board

              Fabulous squared !!! Got the site bookmarked

              April 22 at 3:27 AM view post
              • Bulley1 has replied to a post on the message board

                My husband will be 5 years in September. We continue to live life large. We've taken 4 trips this year - Florida - to see the darling grandkids - Arizona twice and Utah - Zion National Park which we love. FYI our year begins in the fall when kids return to school. Fatigue is the enemy - oh well. Attitude is a friend or an enemy.

                April 22 at 3:14 AM view post
                • Bulley1 has replied to a post on the message board

                  Jon4156, What a pleasant surprise to see the palm tree !! Went thru my pictures and discovered only have 1 of my husband without someone else in the photo. Will email it and a duo photo. We are still in the battle. Will be five years in September. We realize we are blessed. Pray you are keeping busy living as you continue with "firsts". Pam

                  April 22 at 2:05 AM view post
                  • Bulley1 has replied to a post on the message board

                    Dan, My husband has been on Avastin/ Carboplatin twice for recurrence. For him the only side effect was high blood pressure. His NO stressed the importance of not sitting too long to prevent blood clots when we took a road trip. We feel blessed. He will hit 5 year survival in September. Best wishes to you and your wife. Pam

                    April 02 at 4:07 PM view post
                    • Bulley1 has created a new message board discussion

                      I've been asked my opinion from an acquaintance whose father just finished his 12th Temodor treatment for GBM. His Oncologist offered him: 1. No treatment 2. Trial at Duke. 3. Trial at Sloan Kettering. My initial reaction why go on a trial if stable? I believe there is no evidence of tumor at this time. Any wisdom out there? Thanks in advance. Pam

                      March 04 at 8:44 PM view discussion
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                      About Bulley1

                      Caregiver
                      Brain Cancer, Leukemia
                      Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research

                      I'm new on this site, though I've been a "voyeur" since discovering it in Oct following my husband's surgery for GBM on Sept 14, 2010. We're very grateful for this time to get our affairs in order. He has done well post surgery. Hoping and praying for more good MRI's. His 5/23 temodor has become a challenge keeping the pills down.

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