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Bulley1's Recent CancerCompass Activity

  • Bulley1 has replied to a post on the message board

    Fabulous squared !!! Got the site bookmarked

    April 22 at 3:27 AM view post
    • Bulley1 has replied to a post on the message board

      My husband will be 5 years in September. We continue to live life large. We've taken 4 trips this year - Florida - to see the darling grandkids - Arizona twice and Utah - Zion National Park which we love. FYI our year begins in the fall when kids return to school. Fatigue is the enemy - oh well. Attitude is a friend or an enemy.

      April 22 at 3:14 AM view post
      • Bulley1 has replied to a post on the message board

        Jon4156, What a pleasant surprise to see the palm tree !! Went thru my pictures and discovered only have 1 of my husband without someone else in the photo. Will email it and a duo photo. We are still in the battle. Will be five years in September. We realize we are blessed. Pray you are keeping busy living as you continue with "firsts". Pam

        April 22 at 2:05 AM view post
        • Bulley1 has replied to a post on the message board

          Dan, My husband has been on Avastin/ Carboplatin twice for recurrence. For him the only side effect was high blood pressure. His NO stressed the importance of not sitting too long to prevent blood clots when we took a road trip. We feel blessed. He will hit 5 year survival in September. Best wishes to you and your wife. Pam

          April 02 at 4:07 PM view post
          • Bulley1 has created a new message board discussion

            I've been asked my opinion from an acquaintance whose father just finished his 12th Temodor treatment for GBM. His Oncologist offered him: 1. No treatment 2. Trial at Duke. 3. Trial at Sloan Kettering. My initial reaction why go on a trial if stable? I believe there is no evidence of tumor at this time. Any wisdom out there? Thanks in advance. Pam

            March 04 at 8:44 PM view discussion
            • Bulley1 has replied to a post on the message board

              Kim, So sorry for your husband's diagnosis!! My husband's cousin had melanoma diagnosed on his heel. It was stage 4 and had probably been there for quite sometime when. discomfort caused him to check his heel. He also had whole brain radiation followed by Temador when the melanoma metastasized to his brain. He did not have any issues with the radiation. A little nausea and the ever present constipation from Tem...

              March 04 at 8:32 PM view post
              • Bulley1 has replied to a post on the message board

                I want every day I can have with my husband........He agrees Pam

                October 24 at 4:49 PM view post
                • Bulley1 has replied to a post on the message board

                  Funny how brain cancer seems everywhere following diagnosis........I know of a woman who was talked into treatment 2 years ago. She just attended a baby shower for her daughter. Another man who I know of is playing golf and fishing after one year. It's not all doom and gloom - attitude really helps. Praying for wisdom........

                  September 06 at 3:15 AM view post
                  • Bulley1 has replied to a post on the message board

                    Sorry my last post was for Aaron13.......One would think I would know how to use this sight after 4 years. With wisdom of 4 years I concur with Donna - A caringbridge site saves a lot of phone calls and explanation. Friends and family can follow the six weeks of radiation/Temodor and the treatment that follows. The most valuable support we have found in our journey is knowing other brain tumor patients. I can'...

                    September 06 at 2:55 AM view post
                    • Bulley1 has replied to a post on the message board

                      Wow! Make A Wish is the best. And to play 2 sports during treatment is beyond wonderful. May it never rear it's ugly head. Hope he has a wonderful college experience. Pam

                      September 06 at 2:22 AM view post
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                      About Bulley1

                      Caregiver
                      Brain Cancer, Leukemia
                      Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research

                      I'm new on this site, though I've been a "voyeur" since discovering it in Oct following my husband's surgery for GBM on Sept 14, 2010. We're very grateful for this time to get our affairs in order. He has done well post surgery. Hoping and praying for more good MRI's. His 5/23 temodor has become a challenge keeping the pills down.

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