Bulley1

Bulley1's Recent CancerCompass Activity

• Bulley1 has replied to a post on the message board

  Avastin worked for my husband in conjunction with Carboplatin. Currently off treatment 2 1/2 years out. Next MRI Saturday so will see.......Feeling good. Feeling very grateful for the time we've been given. Best wishes! Pam

  March 28 at 3:56 AM view post

• Bulley1 has replied to a post on the message board

  Ratish My husband was stunned at how little pain/discomfort he experienced with surgery. Sorry your family and your father are having to deal with this awful cancer. Pam

  March 14 at 3:38 AM view post

• Bulley1 has replied to a post on the message board

  Karen, My 4 year old grandson who is being treated for leukemia had an IVIG treatment after missing four weeks of treatment with low blood numbers. He had pretty much been sick for three months - or at least never healthy. It was a miracle treatment for him. Hope you have same benefit. Pam

  March 14 at 3:27 AM view post

• Bulley1 has replied to a post on the message board

  I know of one other person with similar symptoms. Now that he's off CCNU he's literally a different person. Good luck/best wishes that CCNU is the culprit. Pam

  February 12 at 1:08 AM view post

• Bulley1 has replied to a post on the message board

  Sheri, Previewing my response didn't work so here I go again. First off congratulations for being 2 plus years out. Yes radiation side effects are still presenting 2 years later. Dan's didn't really show up until 18 months out. He had left frontal lobe tumor. I especially notice right hand issues: writing nearly illegible, typing problems, can't carry cup of coffee w/o spilling, eats left handed at times. L...

  February 10 at 4:12 AM view post

• Bulley1 has replied to a post on the message board

  Thanks for all the input. Dan had plantar fasciitis many years ago. We know that isn't the issue. Wishing that were the culprit since I think Huxley is right on. He's on Keppra. Not a high dose, but for over 2 years. He's seeing the podiatrist tomorrow. Not his first visit. Don't hold out much hope for relief. I hurt watching him walking, but hey he's here 2 plus years following diagnosis. Keeping everyone...

  January 29 at 2:27 AM view post

• Bulley1 has replied to a post on the message board

  The 1 issue I can relate to is the lack of filter when talking. My darling husband says things he never ever would have said prior to GBM. I think "I can't believe he just said that" regularly. Must say I agree with others - sounds like she is unable to care for herself any longer. Brain cancer really sucks!

  January 27 at 3:53 AM view post

• Bulley1 has replied to a post on the message board

  Wonderful news! Hope you have many many more. Do love hearing/reading "no recurrence". Pam

  January 27 at 3:41 AM view post

• Bulley1 has replied to a post on the message board

  Sorry, left frontal lobe. Blame typo on small print.......

  January 20 at 10:00 PM view post

• Bulley1 has created a new message board discussion

  My husband is experiencing pain, mostly in arch of right foot, making walking very painful and short in duration. Began about a year ago. Initially thought it was neuropathy from treatment, but as best he can explain feels like pain from bones not nerve endings. His tumor was left frontal lobs so we are not surprised his right side is the problem. Just wondering if his experience is unique to him...............

  January 20 at 9:58 PM view discussion