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Bulley1's Recent CancerCompass Activity

  • Bulley1 has replied to a post on the message board

    It's heartbreaking that a 38 year old would need assisted living!! So sorry...........I've had 3 parents in asst living over the years. Have never personally seen a young person Pam

    July 25 at 5:24 PM view post
    • Bulley1 has replied to a post on the message board

      Don't know about Stanford........UCSF is a great facility!! It's in the neighborhood. I hear glowing reports from GBM patients in treatment there. Pam

      July 04 at 8:01 PM view post
      • Bulley1 has replied to a post on the message board

        If I have this right the New England Dodger fan was honored at Fenway Park - way cool!! Way to live life large...........The Dodgers are beating our Padres 2-1 as I type this . Tony Gwynn fan

        June 21 at 2:47 AM view post
        • Bulley1 has replied to a post on the message board

          Our grandma Betty died a year ago - not from cancer. The hospice nurse could tell when she was in pain though she was unable to communicate. I was not able to detect discomfort but the nurse sure did. I

          June 04 at 12:10 AM view post
          • Bulley1 has replied to a post on the message board

            It's been awhile. He posted about the MDAnderson fund raiser a few months back. Seems like he's busy raising his family - I hope and pray.

            June 03 at 11:54 PM view post
            • Bulley1 has replied to a post on the message board

              Terrific beyond description!! How is it a "Dodger Blue" did run in Ct? Assume it's LA Dodger Blue............

              June 03 at 5:17 AM view post
              • Bulley1 has replied to a post on the message board

                My husband is generally cold 3 1/2 years into GBM. We credit lack of exercise and a generally tired body with the treatment he has endured. Currently down to Avastin every 4 weeks. We have a 5 yr old grandson in treatment for leukemia. Remembering your son also had leukemia - scary. So sorry for you and your son. Pam

                May 26 at 4:57 AM view post
                • Bulley1 has replied to a post on the message board

                  In my observation only another brain tumor patient or caregiver truly understands. For that reason I have made an effort to support BT caregivers. We get it. So sorry for all you have gone thru dealing with your BT. I pray you don't give up. You are an inspiration to those people watching how you deal with adversity. Every day is a precious gift. Hugs, Pam

                  April 18 at 11:00 PM view post
                  • Bulley1 has replied to a post on the message board

                    It's no wonder you're sick and have a horrible headache! Sounds like your medical care leaves much room for improvement. So sorry....................

                    March 03 at 6:22 PM view post
                    • Bulley1 has replied to a post on the message board

                      Wildrose, What a lovely offer from your pastor's wife. In my experience people say, "call me if you need help". Naturally you won't call. Hope you do allow her to help when you're unable to do everything yourself. Pam

                      March 03 at 6:02 PM view post
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                      About Bulley1

                      Caregiver
                      Brain Cancer, Leukemia
                      Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research

                      I'm new on this site, though I've been a "voyeur" since discovering it in Oct following my husband's surgery for GBM on Sept 14, 2010. We're very grateful for this time to get our affairs in order. He has done well post surgery. Hoping and praying for more good MRI's. His 5/23 temodor has become a challenge keeping the pills down.

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