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Cliffscase's Recent CancerCompass Activity

  • Cliffscase has replied to a post on the message board

    Susan, Thanks so much for the encouragement...Any response from a similar patient is very appreciated...I am very happy to report that although there is not yet an operation or procedure to repair my epiglottis, I have made marked progress still eating only through the peg tube...Nothing through my mouth at all, but am feeling more energetic, and am able to participate in things with my wife that were out of the que...

    July 12, 2012 view post
    • Cliffscase has replied to a post on the message board

      Ryan,  I am deeply sorry you have had this diagnosis.  I had tonsil cancer 17 years ago; obviously, the good news is I am still vertical.  The unfortunate news is that is has been one heck of a ride to get here.  I had 11 teeth pulled before they started the radiation due to them being in the path.  After that healed, the radiation, 2X a day, 5 days a week, for 7.5 weeks.  Lost my saliva...

      July 11, 2012 view post
      • Cliffscase has replied to a post on the message board

        Now I am even more confused...During the bout of speech training and swallowing analysis that I had, they had me tuck my chin down all the way to my chest and told me that was the only way I could swallow...When the aspiration still showed on the computer monitor, they told me it was useless to go on and never mentioned the reverse to that or not tucking your chin at all...I have no medical benefits but the VA is tak...

        May 19, 2012 view post
        • Cliffscase has replied to a post on the message board

          Confidence and motivation are probably the two most important traits you need to make it through this unchartered area of your life...Reading your post, and those of the other folks that have answered, I am now inspired to push further into my options to be able to eat again...My Dr. had told me that the aspirations pneumonia would kill me if I continued to eat, but now I have learned that there are people who are ea...

          May 19, 2012 view post
          • Cliffscase has replied to a post on the message board

            I have not had mine removed, but because of the amount of radiation I had for tonsil and throat cancer, mine is shrinking...This has caused repeated cases of aspiration pneumonia, causing my lungs to fill up with infection...Last October, I agreed to have a feeding tube(peg) put in my stomach so I can not eat or drink through my mouth at all...It has been very difficult to quit eating and only feed myself through the...

            May 17, 2012 view post
            • Cliffscase has replied to a post on the message board

              Dear sir, I am here to tell you that you have an unclear road ahead of you.  I had a mass show up in my throat 17 years ago, cancer, spotted it while brushing my teeth.  Having just lost my father to cancer, I felt as though all the wind had just been pulled from my sails.  I had 2 young children at that time and was scared to death that I was about to close the chapter on "daddy".  I have never f...

              February 27, 2012 view post
              • Cliffscase has replied to a post on the message board

                I also was dianosed with tonsil cancer over 17 years ago.  Prior to massive radiation, I was told that I had to have 11 teeth removed and then the time it would take to ensure the extractions went well would have to pass before I could start the radiation.  I sweated out the extractions for days before the procedure but it went well and I was eating ice cream and soups and pureed items within 1 day after th...

                February 26, 2012 view post
                • Cliffscase has replied to a post on the message board

                  I am on a PEG tube due to aspiration pneumonia occuring each time I swallowed.  This was caused by epiglottis shrinkage due to massive radiation with tonsil cancer.  I have been told on several occasions that anything that you would put through your mouth can be put through your tube as long as you have it smashed enough so that it won't jam up the tube and block the feeding process.  I have put on 17 ...

                  February 26, 2012 view post
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