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Cliffscase's Recent CancerCompass Activity

  • Cliffscase has replied to a post on the message board

    Hi Deb,  My name is Cliff and I have a rather unique angle on this situation.. In 1995, I was diagnosed with tonsilar cancer and was asked by Duke University to be the guinea pig for a new national program they had just rolled out..The main differences in the treatment were the use of a fiberglass mold mask that they built around my head and the radiation treatment being divided into 2 daily treatments that had ...

    May 14 at 3:30 AM view post
    • Cliffscase has replied to a post on the message board

      I was diagnosed with tonsilar cancer in 1995...A new form of radiation treatment had been developed by Duke Univ and they were looking for a head and neck cancer guinea pig...Long story short, 2 rad treatments each day, exactly 6 hours apart, for 7.5 weeks...I am indeed very happy and blessed to still be alive and very active at age 62, 20 years later...However, after losing 11 teeth, and having to go on a stomach fe...

      January 08 at 4:14 AM view post
      • Cliffscase has replied to a post on the message board

        Dea kc, I had tonsilar cancer 20 years ago, the fact that I am still able to write you this email proves success in my treatments...I would be remiss if I did not inform you of some of the "side effects" I live with due to these treatments...I am fully capable of living the way most people do; ride mountain bikes, play doubles tennis, fish quite a bit...However, the amount of radiation I had, caused numerous problem...

        September 05 at 3:15 PM view post
        • Cliffscase has replied to a post on the message board

          Dear cmj, 20 years ago I had tonsilar cancer that had started to spread into my throat...Duke Uniiversity had a new, completely untested program that was designed for head and neck cancer patients and they were looking for a "guinea pig"...When I was told that my chances of recurrence were now going to be around 30% instead of 60%, I volunteered...Although I am blessed to be standing, erect, active in sports, I also...

          August 29 at 6:30 PM view post
          • Cliffscase has replied to a post on the message board

            Susan, Thanks so much for the encouragement...Any response from a similar patient is very appreciated...I am very happy to report that although there is not yet an operation or procedure to repair my epiglottis, I have made marked progress still eating only through the peg tube...Nothing through my mouth at all, but am feeling more energetic, and am able to participate in things with my wife that were out of the que...

            July 12, 2012 view post
            • Cliffscase has replied to a post on the message board

              Ryan,  I am deeply sorry you have had this diagnosis.  I had tonsil cancer 17 years ago; obviously, the good news is I am still vertical.  The unfortunate news is that is has been one heck of a ride to get here.  I had 11 teeth pulled before they started the radiation due to them being in the path.  After that healed, the radiation, 2X a day, 5 days a week, for 7.5 weeks.  Lost my saliva...

              July 11, 2012 view post
              • Cliffscase has replied to a post on the message board

                Now I am even more confused...During the bout of speech training and swallowing analysis that I had, they had me tuck my chin down all the way to my chest and told me that was the only way I could swallow...When the aspiration still showed on the computer monitor, they told me it was useless to go on and never mentioned the reverse to that or not tucking your chin at all...I have no medical benefits but the VA is tak...

                May 19, 2012 view post
                • Cliffscase has replied to a post on the message board

                  Confidence and motivation are probably the two most important traits you need to make it through this unchartered area of your life...Reading your post, and those of the other folks that have answered, I am now inspired to push further into my options to be able to eat again...My Dr. had told me that the aspirations pneumonia would kill me if I continued to eat, but now I have learned that there are people who are ea...

                  May 19, 2012 view post
                  • Cliffscase has replied to a post on the message board

                    I have not had mine removed, but because of the amount of radiation I had for tonsil and throat cancer, mine is shrinking...This has caused repeated cases of aspiration pneumonia, causing my lungs to fill up with infection...Last October, I agreed to have a feeding tube(peg) put in my stomach so I can not eat or drink through my mouth at all...It has been very difficult to quit eating and only feed myself through the...

                    May 17, 2012 view post
                    • Cliffscase has replied to a post on the message board

                      Dear sir, I am here to tell you that you have an unclear road ahead of you.  I had a mass show up in my throat 17 years ago, cancer, spotted it while brushing my teeth.  Having just lost my father to cancer, I felt as though all the wind had just been pulled from my sails.  I had 2 young children at that time and was scared to death that I was about to close the chapter on "daddy".  I have never f...

                      February 27, 2012 view post
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