One patient with glioblastoma still alive nine years later
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by DaddysGrl -
My question is regarding a CA 19-9 number listed on my fathers blood work chart that has went extremely down. My father is 74 with pancreatic cancer started treatment 7 weeks ago with 2 weeks break in between has 1 more week to go before evaluation. He has had a difficult time getting through the treatments(combo of chemo & tarceva)which has left him extremely weak, tired, depressed, dehydrated, times vomiting, lots of diarehea, feeling of nausea, loss of appetite and wieght loss and just overall misserable. On our last visit with the doctor my father expressed interest in stopping treatment all together weighing out the quantity of life with the quality of life at this point. This is when the doctor suggested him contiunue treatment confirming the progress it has made and assured us that treatment is working. He then showed us bood wrk charts taken before treatment and comparing them to current charts taken within last 2 days. He pointed out one in particular...this was called the CA19-9. This specific test jumped from 6330.5(c)h to 1765.6(9). Does anybody understand this test and this decrease in number? Is it normal to make such a large jump down with treatment? Is this a significant difference? If anyone has had experience with this and can explain the normal ranges of numbers or can share your personal numbers of range I would really appreciate the insight. Any bit of information would be helpful and appreciated. God Bless
Funny how you mention the misconception of meal replacement shakes/protein Drinks. Our Doctor also recomended meal replacemnet drinks. Following his recomendation my father purchased case full and after trying this drink he immediately threw up and stayed sick for a few days. He refused to have any more of it and just the thought made him sick. Many times our bodies take care of these toxins that should not be entering on their own. Obviously my fathers body was telling him that was bad stuff and must be thrown up and out immediately. You mentioned your being raised on a farm and the pesticides possibly having it's part in the cancers developement. I think of this often. My father sprayed the open fields for years and tended to crops including alfalfa, corn, oats, ect for many years. We live in the central valley 2 hrs from San Fransisco although our surroundings are not high buildings and corporate industries, instead we are surrounded by farm land, dairy farms, fields with crops and open land only a mile away from the river. We have always felt fortunate to have had the opportunity to enjoy the farm land and the slower pace it has to offer. Avoiding the hustle and bustle would save us from the heart attacks, shootings and dangers of the City. Surprise, surprise....we forgot about the chemicals, pesticides, the horrible stale air thta sits in the valley with nowhere to filter out, instead becomes stagnent. Due to the area our water is also stagnent...bad to drink. My father drank well water for years until finally was told firmly that we were not to drink the water that it was horrible and fulll of chemicals. So did bathing in it make a difference? Nobody mentioned bathing in it? Our understanding was not drink internally this liquid!... apparently the frequent daily contact to our bodies and external skin was not harmful. Or was it? possibly?.. who knows? All these questions..what ifs... run through our heads over and over looking desperately for the answers that we will never come to peace with answers. Leaving us only with another puzzle piece lost and without fit in this game of life that CANCER plays with us and those dearest to our hearts. That in which was thought to be a blessing to our lives, has shown now to have been a contribute to this disease. Always thankful to have had meat on the table, raised and cared for. Was this a blessing or perhaps in fact working against us all along. We will never know the direct answers, one can only make guesses and inform ourselves of the disease and the facts that are available to us. oh...and also, live day to day. Some days bad, some good, all depends on how he feels, then I go about accordingly. Amazing how when loved ones are suffering and pained, you too ache with worry and sufferings. We can only pray and hope. God bless you shemay and those that you love around you .
Loved reading your information and facts regarding foods and proper diet. Although I must say, I am a little confused about the subject on meat. At my fathers last check-up a few days ago the Doctor suggested that he eat more meat..at least once a day, I presume because of the protein meat provides to the body. Suprisingly he did not mention anything regarding processed meats or red meats. I hear much about this subject and living on a farm with cattle, meat has been the center of our table sitting since I can remember. If need be, although difficult, My father would eliminate or cut down on meat if best for his overall health. We're just not sure if it should be encouraged or discouraged a bit. I too have heard processed meats cause cancer as well as red meats. and what about chicken? yes?...no?
My father diag. w/ panc.cancer a couple months ago started chemo-Tri along with the tarceva pills. It will be almost 4 weeks now since he started treatment. I've heard of the nightmares and effects that come with the chemo and prepared myself for the nausea, itchy skin, peeling, burning, constipation, runs, pain, ect. Suprisingly enough..nothing. It's almost as if he feels better after taking the chemo. I'm not sure how to feel about this. Ofcoarse I am happy he is not suffering with these side effects..but...I wonder if the absent of these side effects are possibly because the chemo is working and making him better stopping growth or if we are just managing the pain with pain medication and the symptoms of No Symptoms are an indication of no effect or change in his condition. Anybody with some good results from chemo? I've never heard of chemo making anybody feel better! Is this possible? Any experiences or imput I would appreciate it. thank you for taking the time.
My father 74, has pancreatic cancer, started chemo and tarceva pills 2 weeks ago. within the last 6 months he has lost 40 pds and weighs 129pds. The doctor gave him pills to increase his appetite and he's also taking something for nausea. He has been eating much better and not so much nausea in which I am so happy about!..My problem is- I get confused on all the information I get regarding food and what's best for them. It all starts to sound like everything is bad for you or causes cancer. THey say that protein is good for you but no red meats, then I hear fish is wonderful as specially fresh fish but no processed meats..those are bad..so I gather that the only meat you should eat is chicken and fish?? Also, nothing white is good. for example, no rice, no white potatoe, no bread, no mash potatoe. But, I hear sweet potatoe is very good for cancer patients. and, whole grain bread is good, but not whole wheat or white. Reason is that Sugar is really bad for cancer patients cause it feeds the cancer!(horrible visual, isn't it?) See and all this white food turns into sugar as it breaks down in your body. Then I hear veg and fruit is good for you. Then I hear not too much fruit because that also breaks into sugars if you have too much. and how about dairy products?.. I believe that is good for you in moderation, but, milk makes my father sick and cheese bloats him. He loves ice-cream but is unable to eat that anymore. Poor guy, if I were him I would lose my appetite too with all these rules and confusion after you're done trying to figure it all out it's time to take a nap and me too! Help....anybody with some easy to follow info? I'm desperate for some information I could follow..like the good ol days! Or just any answers to my confusion. THankyou so much for taking the time to read my post.
My brothers friend who had PC somehow discovered this miracle drug only available in Mexico so drove there to pick some up. The chemo was not wking for him he had nothing to lose. Well, it's beem almost 4 years and he still is taking and feeling great. Then just yesterday I heard of another similiar story with the same thing only to be purchased in mexico because not yet passed by FDA. Has anyone heard of this..know what it's called, any info at all....Before I drive to Mexico thankyou
My father 74, spent most of his life time outdoors, working on the farm, checking his cattle, or walking through the alfalfa. He was blessed with good health through his life, last wk was the first time he had ever stayed at a Hospital. IThis did not sit well with him. they did not encourage him to walk or move around, so his body got more and more used to that, Due to the many days spent sitting has made him unwilling to move around much at all . Yesterday, I noticed he was picking up his feet and then slowly stepping down almost as if he was concentrating on walking or like a child first learning how to walk. This bothered me. Possibly his legs are getting stiff from sitting all day and not moving throughout the day. When this first started i encouraged him to walk, but have stopped for fear it might do him worse due to the pain. I'm not sure what to do! Any advice or words of wisdom? Do I get the whip out(The little one) and push the poor guy so he doesn't lose his ability to walk..or do i leave him be and give hime peace with possible regrets later. ahh help...I appreciate it.
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