Diamond_David's Recent CancerCompass Activity
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I have not had tongue but tonsil cancer. I had chemo and 35 radiation treatments.
I was given a pill for appetite. To help. It didn't help and now I have to take a pill to keep me from goign to teh bathroom in the middle of the night. Wouldn't take a pill for enhanced appeitite.
I was given something for dry mouth, didn't work. Nothing works from what I've seen. After about 12 months it won't be AS botherso...
April 26 at 1:06 AM
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Both my cancer doctors told me they'd have to wait a bit after having radiation and checmo to do a scan (6 months) as there are HOT SPOTS and get too many false positives.
But don't worry, they'll scan you soon enough.
I've been scanned so many times I can no longer play Hide & Seek with my 2 neices. I glow in the dark. :-)
David
March 21 at 5:01 PM
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Its very simple, the machiens cost a million + and many doctors steer you to their facility. My rdaiologist only had one machine, he couldn't reccomend the other hospital across the street. 3 years later he moved to that hospital.
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The hardest thing for me to comprehend was how any oncologist could tell me they were both equally efficient. NO THEY ARE NOT! ...
March 15 at 12:44 PM
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Diana mentioned this here a while back and I investigated it as I have a nephew going thru tongue cancer.
IMRT is made for areas that MOVE, like a ling, kidneys.TOMA is designed and is better for areas that don't move while being radiated (tonsils)
I have a cousin that had tonsil cancer had TOMA and he does NOT carry a water bottle as I do. Diana is right, it saves your salitory glands.
I also take a pill fo...
March 15 at 12:27 PM
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Diana mentioned this here a while back and I investigated it as I have a nephew going thru tongue cancer.
IMRT is made for areas that MOVE, like a ling, kidneys.TOMA is designed and is better for areas that don't move while being radiated (tonsils)
I have a cousin that had tonsil cancer had TOMA and he does NOT carry a water bottle as I do. Diana is right, it saves your salitory glands.
I also take a pill fo...
March 15 at 12:27 PM
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Your story is almost word for word with mine 5 years ago. Lymph node, antibiotics, sore throat went away. Took out node, cancer.
Radiaion & chemo.
its 90% curable. Tonsils taken out might still have an area to trap cancer.
Look into TOMA radiation its less dmagaing to the mouth than IMRT from what I read. I had imrt and now carry a bottle of water everywhere-dry mouth.
Different doctors-diffeerent plans. I se...
March 14 at 5:57 PM
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I had tonsil caner 5 years ago, had a peg tube for 4 months. A freind gave me a Gatorade Nutritonal drink. Its just like a chochalate milkshake, 360 calaries, all of teh viatmins and minerals you need (or most)
This is where I order mine, less than what amazon.com charges:
http://www.schoolhealth.com/g-series-pro-nutrition-shake-01-prime
I still drink it for breakfast every day and if I'm too busy ...
February 28 at 4:09 AM
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I had tonsil cnacer, popped to a lymph node. They took out both tonsils and one lymph node.
Oral cancer has SURGED in recent years with lots more oral sex.
You mention refineries. I worked as a jeweler, using a propane torch and other checmical 1 foot from my nose.
Then their's artifical sweetners.
have a 38 year old nephew with tongue cancer. Just terrible operation. But doing OK. Never smoked. Most folk...
February 07 at 7:12 PM
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Gary.Sylavia probably will get a tad better, not much. I carry a bottle of water ervywhere. I have to eat my meat medium rare, can't eat white emat chicken unless there's sauce.
tatse buds will come back almost 100% but spicey will slowly decrease. After teatment mustard and ketchup was spicey!. now OK.
Teeth are important. I use a waterpick after brushing, important.
I get yeast on mt tongue once a year a...
February 07 at 2:20 PM
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SUGAR:
I had tonsil cancer 5 years ago. 1 year ago my wife had breast cancer, voluntary double mastectomy/reconstruction. Only had and takes an oral chemo pill. Doing fine
But...........
We all 4 other clsoe friends have always used spelnda or sweet and low. Never Egual as it has aspartaime, known bad stuff.
Two months ago a freind of my wife's husband told us about their trip to MD Anderson. ...
February 06 at 12:30 PM
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About Diamond_David
Patient
Head and Neck Cancer, Breast Cancer