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Dlynn1210's Recent CancerCompass Activity

  • Dlynn1210 has replied to a post on the message board

    Jenni  I can only tell you what I would do under the circumstances.  Since the two ENT's are so far apart in their perception I would go to a different ENT for third opinion.  It would be worth the price of an office visit for peace of mind.  Stress can play havoc on your all around health so not something you want to let continue on.  I am a little less concerned about it being cancer with ...

    Yesterday at 6:08 PM view post
    • Dlynn1210 has replied to a post on the message board

      Yerday - I would like to mention one thing that I think the majority of us do when we hear the word "cancer".  It has been 7 years since I saw my ENT and was told I most likely had tonsil cancer.  I wan't officially diagnosed until the following Monday after they were removed and biopsied.  Word must have traveled throughout the office before I reached the check out desk because I was already getting ...

      Yesterday at 11:00 AM view post
      • Dlynn1210 has replied to a post on the message board

        Punky - I'm in total agreement with you.  Yerdah -  Everyone who is responding is touching on an important point.  A cancer patient has one job - and one job only - and that is to beat the cancer.  I was engaged to be married when I was diagnosed and it sounds like you are a lot like my now husband.  He started researching and researching how to combat the cancer but i...

        Monday at 11:36 AM view post
        • Dlynn1210 has replied to a post on the message board

          Susan - Without knowing anything about the ENT I'm not sure she/he is jumping the gun.  My ENT was younger (30s) and evidently more aware of the increasing number of tonsil cancer patients being diagnosed.  I saw her on Wed night and she scheduled me for surgery the following Monday morning.  They biopsied the tonsil tissue immediately and I was told before I left the operating room that it was cancer...

          Sunday at 3:55 AM view post
          • Dlynn1210 has replied to a post on the message board

            PopPop You said the exact thing I have said to describe how I felt back then - something was just not right. We know our bodies better than anyone and I got so frustrated going from one doctor to another and hearing they found nothing wrong.  I went to my gynecologist - women think along those lines - and he is a fantastic doctor - son of another fantastic doctor.  He doesn't even accept any new patie...

            Sunday at 3:49 AM view post
            • Dlynn1210 has replied to a post on the message board

              JenniPa - One thing you learn as you get older is that some doctors do not like you to go for to another doctor for a second opinion - it questions how well they know their "stuff".  Now you are going back to your first ENT and telling him that another ENT disagreed with him.  I can totally understand his look of confusion.  How could he admit he might be wrong?  The biopsy wa...

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              • Dlynn1210 has replied to a post on the message board

                Ebenet - I cannot give you any information regarding Proton therapy because that was not available when I went through treatment seven years ago - and I am still cancer free.  Yes, the treatment is brutal but if you have to be diagnosed with cancer, tonsil cancer is the cancer of choice as it is cureable.  Once you get the all clear scan results post treatment it is worth everything you go throug...

                August 29 at 12:37 PM view post
                • Dlynn1210 has replied to a post on the message board

                  JenniPa - If it was cancer, you would see it in one tonsil only - not both.  I have never heard or read about anyone that had tonsil cancer in both - in fact, that is how my ENT described knowing it can be cancer - ONE greatly enlarged tonsil.  We had one person on CC that got so worked up emotionally over treatment (and he did have tonsil cancer) that he wound up in the ER with heart palpitations.&nb...

                  August 29 at 12:11 PM view post
                  • Dlynn1210 has replied to a post on the message board

                    Hi Sweetie - You've got some good advice already but I will give you my take and my husband's take on this since we are looking at it from two different views.  I was the patient and my husband was beside me throughout treatment although he also had to travel from Mon - Thur for his job.  Hubby's comment - "He needs to grow up because it is all about what she is going through and what she n...

                    August 28 at 4:53 PM view post
                    • Dlynn1210 has replied to a post on the message board

                      Jude I believe there are times that we can misunderstand the actions of a loved with who is terminally ill.  Acceptance can look very much like denial to onlookers.  My husband went into a downward spiral and I had his radiation oncologist talk to him - he told Jack that "You live until you die, and the key is you LIVE until you die".  It helped Jack tremendously and while some may have thou...

                      August 27 at 12:44 AM view post
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                      About Dlynn1210

                      Patient
                      Head and Neck Cancer, Tonsils Cancer

                      I am married and the mother of five grown children and 14 grandchildren. I was diagnosed in 2007 with SCC of the left tonsil and have been a member of CC since shortly after beginning treatment. I underwent chemo and radiation at CTCA in Zion, IL and received my last clean scan in Sept 2012. I found a wonderful support system on CC who really understood what I was going through and come back often to offer words of encouragement to those who are now traveling where I have been. I thank God daily for guiding me to CTCA and for guiding me to Cancer Compass. I had a tremendous support system with family and friends but there are not enough words to describe how I feel about my CC family other than to say I would not have made it through as well as I did without you.

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