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Dlynn1210's Recent CancerCompass Activity

  • Dlynn1210 has replied to a post on the message board

    I know TOMO was a huge improvement over IMRT for tonsil cancer.  As the head of radiology at Sitemann in St. Louis told me, for moving organs, she would recommend IMRT but for nonmoving organs like tonsil she would definitely go with TOMO as it is more precise.  I always recommend TOMO over IMRT but mention proton therapy to those recently diagnosed as a newer treatment.  Trying to decid...

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    • Dlynn1210 has replied to a post on the message board

      The thread was started in Aug 2014 so the husband of the woman who started it has already completed treatment.  She has not posted since Oct 2014 - people often drop off once treatment is completed.  I am always interested to hear about anyone who has undergone proton therapy because I would like to know long term results.  I had TOMO radiation and have tremendous salivar...

      Monday at 6:35 PM view post
      • Dlynn1210 has replied to a post on the message board

        Hi Gene I ordered mine through Walgreens as they did not carry it in their store.  I just found it on Amazon also.  Diana

        August 24 at 3:03 PM view post
        • Dlynn1210 has replied to a post on the message board

          Hi Geno56 - This thread is one that has been runnng for a very long time (8 yrs) and the person you responded to first posted in 2007.  She isn't on the public forum so I cannot see if she has ever posted again.  With that said, CTCA ordered a special supplement for me to use in my PEG tube. Also, the same company that manufactures Ensure make Prosure especially for cancer patients.  It has what we ne...

          August 24 at 2:35 PM view post
          • Dlynn1210 has replied to a post on the message board

            What was your husband like before his diagnosis?  Be honest with yourself.  Was he controlling and/or was there verbal abuse?  Was there any physical abuse - even more minor things like a shove? I try to read what you write through both possibilities.  Most of what you describe is indicative of an abuser but also seen with some brain cancer patients.  Have you talked ...

            August 23 at 2:51 AM view post
            • Dlynn1210 has replied to a post on the message board

              What type of cancer does your husand have?  Diana

              August 23 at 2:37 AM view post
              • Dlynn1210 has replied to a post on the message board

                Your hubby is doing absolutely great - better than most of us.  Have you heard of Prosure, it is made by the same company as Ensure but especially for cancer patients.  I ordered mine through Walgreens as they did not carry it in the store. Diana

                August 22 at 10:49 PM view post
                • Dlynn1210 has replied to a post on the message board

                  Arman If I ever started to feel low my grandmother's words from childhood would come back to me, "Look around, you will always find someone worse off".  I went to the brain cancer section on CC and after reading a few of their threads I would realize just how blessed I was to have tonsil cancer which is totally cureable when caught early.  Others are battling a cancer that is only palatable. ...

                  August 22 at 10:43 PM view post
                  • Dlynn1210 has replied to a post on the message board

                    Holly - You have received some excellent advice here - especially from augusta.  I underwent one treatment and told them the minute it was over, you are not getting me in there again - and I meant it!!  I am severaly claustrophobic and being held down on a board with a mask over my face - no way could I handle that.  My oncologist prescribed Ativan one hour before treatment and it helped.  My Dad...

                    August 22 at 4:43 PM view post
                    • Dlynn1210 has replied to a post on the message board

                      Mrekau You made a very good point about continuing to drink as long and as much as you can.  I had my PEG tube for over a year but I believe it was partly my fault because I found it easier to use my tube for supplements, meds, and water than swallowing them.  That is the one thing I would do differently if I had it to do over. I also tried making it without a PEG tube and I also only made it 2 weeks...

                      August 22 at 12:43 AM view post
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                      About Dlynn1210

                      Patient
                      Head and Neck Cancer, Tonsils Cancer

                      I am married and the mother of five grown children and 14 grandchildren. I was diagnosed in 2007 with SCC of the left tonsil and have been a member of CC since shortly after beginning treatment. I underwent chemo and radiation at CTCA in Zion, IL and received my last clean scan in Sept 2012. I found a wonderful support system on CC who really understood what I was going through and come back often to offer words of encouragement to those who are now traveling where I have been. I thank God daily for guiding me to CTCA and for guiding me to Cancer Compass. I had a tremendous support system with family and friends but there are not enough words to describe how I feel about my CC family other than to say I would not have made it through as well as I did without you.

                      UPDATE - I am now
                      7 1/2 years clear of cancer. My oncologist considers me cured of head and neck cancer. No more scans!!!

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