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Dlynn1210's Recent CancerCompass Activity

  • Dlynn1210 has replied to a post on the message board

    Hi Everyone - Cheyenne  had her first treatment on Monday and a PEG tube inserted yesterday.  She is scheduled for one chemo a week and daily radiation with ethiol shots before each treatment.  She was going to eat and go to bed after writing this morning as she is completely wore out which we all can understand.     At this point what she needs from us more than anything is ...

    Yesterday at 2:47 PM view post
    • Dlynn1210 has replied to a post on the message board

      A CT would show up possible cancer - and if the CT scan did show something they would order a PET scan.  We all have cancer cells in our body but it is when they begin to clump together that they become a problem.  A CT scan would pick up the clumping together - a PET scan would show the activity.  They are getting away from scans whenever possible because of later problems due to the scans r...

      Yesterday at 2:32 PM view post
      • Dlynn1210 has replied to a post on the message board

        If the CT Scan shows anything then they go for the PET scan.  They did PET scans for the first couple of years post treatment for my tonsil cancer but then did only CT scans.  Seven years out and they don't do any scans now as long as the blood work stays good. The blood work is the first thing that will indicate a possible reoccurrence.  My oncologist said they are getting away from scans when possibl...

        Yesterday at 2:28 PM view post
        • Dlynn1210 has replied to a post on the message board

          A CT scan will show the outline of an object (tumor) - a PET scan will show whether it is activity due to cancer cells going awry or if it is only dead tissue.  A PET scan would give an excellent observation as to any spreading.  Diana 

          Yesterday at 2:27 AM view post
          • Dlynn1210 has replied to a post on the message board

            Jenny posted 36 times one after another.  I could barely keep up withp osting after her - and reporting her to CTCA on each.  It drives me batty too - this was so apparent that whoever it was wanted personal information and even PHOTOS????  The number os posts and photos requested was one I've never seen before in seven years - ridiculous!!

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            • Dlynn1210 has replied to a post on the message board

              We TOTALLY understand about the mood swings.  It starts to get to you after so long. Congratulations on making it through without a PEG tube - most of us don't make it without one.  I did for two weeks - before losing 20 lbs.  Diana

              Tuesday at 9:27 PM view post
              • Dlynn1210 has replied to a post on the message board

                Cheyenee is on the right path - putting her mind in a better place.  By far the worst for me was being strapped to the board knowing I couldn't move.  Thinking about my Dad and how he would have been even though we shared severe clautrophobia got me through it motionless - which is so important when targeting a small area with radiation.  I'm waiting to see how your first treatment was yesterday....

                Tuesday at 3:40 PM view post
                • Dlynn1210 has replied to a post on the message board

                  Thank you Punky for the kind words.  I have to take an occasional break but God has given me seven years and as someone said in Sunday School class the other day - praying of more. I accept His Will no matter what because I feel so blessed to have those seven years. Love to all Diana

                  Tuesday at 12:45 PM view post
                  • Dlynn1210 has replied to a post on the message board

                    Do not respond to Jenny - a new contributor that has only posted the same message under several blogs on CC.  I have reported this person - whoever they are.  Something does not sound right here - like someone trying to gain personal information.  Diana

                    Tuesday at 11:58 AM view post
                    • Dlynn1210 has replied to a post on the message board

                      Hi Everyone - As I sit here reading over all of your posts, I realize that it has been so much longer than the rest of you since I endured my losses.  My mother passed away 22 years ago and my dad passed away three years ago.  Mom was my heart and my dad was my rock and even though I miss talking to them (at times even more than others), I know they are still with me.  My grandmother used to say ...

                      Tuesday at 11:55 AM view post
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                      About Dlynn1210

                      Patient
                      Head and Neck Cancer, Tonsils Cancer

                      I am married and the mother of five grown children and 14 grandchildren. I was diagnosed in 2007 with SCC of the left tonsil and have been a member of CC since shortly after beginning treatment. I underwent chemo and radiation at CTCA in Zion, IL and received my last clean scan in Sept 2012. I found a wonderful support system on CC who really understood what I was going through and come back often to offer words of encouragement to those who are now traveling where I have been. I thank God daily for guiding me to CTCA and for guiding me to Cancer Compass. I had a tremendous support system with family and friends but there are not enough words to describe how I feel about my CC family other than to say I would not have made it through as well as I did without you.

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