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Dlynn1210's Recent CancerCompass Activity

  • Dlynn1210 has replied to a post on the message board

    Jude I believe there are times that we can misunderstand the actions of a loved with who is terminally ill.  Acceptance can look very much like denial to onlookers.  My husband went into a downward spiral and I had his radiation oncologist talk to him - he told Jack that "You live until you die, and the key is you LIVE until you die".  It helped Jack tremendously and while some may have thou...

    Yesterday at 12:44 AM view post
    • Dlynn1210 has replied to a post on the message board

      Victoria - The only way your other tonsil could be hidded is if it was small. It may be nothing but I wouldn't accept an explanation from any doctor other than an ENT.  I know how frustrating it is because I went through something very similar.  Doctors can look at you like you are a hypochondriac - and while there are some people who are, there are times we know our bodies better than doctors.&n...

      Yesterday at 12:32 AM view post
      • Dlynn1210 has replied to a post on the message board

        I can answer this one easily. It is definitely your IPAD.  IPADs don't acknowledge punctuation or paragraphs.  We all have the same problem when using our IPADs.  Drives me batty!     Diana

        Yesterday at 12:09 AM view post
        • Dlynn1210 has replied to a post on the message board

          Victoria - I can't tell you what my tonsil felt like but my tonsils were also tiny.  In fact, I had been told my whole life that I was born without tonsils like my mother so it was a huge surprise when the doctor asked if anyone had ever told me I had a greatly enlarged left tonsil.  My ENT who removed both told me the right one was was still so tiny it could easily be overlooked.  ...

          Monday at 10:30 AM view post
          • Dlynn1210 has replied to a post on the message board

            Jontyboy - This is the best part of this website - that it reaches so many.  What one may not have experienced, or forget to mention, someone else will.  You knew something that most of us wouldn't even know - how health care works in the UK.  As always, praying for everyone dealing with this horrible disease. Diana  

            Monday at 10:16 AM view post
            • Dlynn1210 has replied to a post on the message board

              Then start the process Victoria - Monday call and make an appointment with your primary care doctor who can then refer you to an ENT.  Two or three weeks delay is not going to make a difference because tonsil cancer is a slower growing cancer - BUT do not delay a month or more before seeing a doctor.  Whether you have hypothyroidism or not shouldn't have any bearing on a possible cancer diagnosis.   ...

              August 23 at 9:26 PM view post
              • Dlynn1210 has replied to a post on the message board

                Victoria - Call Monday and make and appointment with an ENT ASAP - especially if one tonsil is still a normal size while the other is very swollen.   My only symptom was extreme fatique and I just knew that something was not quite right so I went to five doctors in seven weeks.  The foutrth was an urgent care doctor who did ask if anyone had ever told me I had one enlarged tonsil.  I told him no. &nb...

                August 23 at 9:07 PM view post
                • Dlynn1210 has replied to a post on the message board

                  Gary  So true about the gift that keeps on giving.  That was the biggest shock - I expected it to be as bad as it got when I completed my last radiation treatment.  It wasn't but things do get better with time.  Diana

                  August 23 at 2:37 AM view post
                  • Dlynn1210 has replied to a post on the message board

                    The cancer treatment center where I was diagnosed had IMRT and assured me it was the best.  Then I went to CTCA and they told me that TOMO was better.  I went back to the center where I was diagnosed and they again assured me that  both were equally good.  As IMRT would enable me to be treated 20 min from my home wherein being treated at CTCA meant a four hour round trip.  I really wanted to ...

                    August 23 at 2:33 AM view post
                    • Dlynn1210 has replied to a post on the message board

                      Jacq-e - Kathy is absolutely correct about everyone feeling anger at one time or another.  Kubler Ross's five stages of grief are so well acknowledged that college counseling courses teach around them.  There is no certain order or time limit for each stage and the anger you are feeling is normal for anyone in your position.  I was losing my mother and my husband in the same time period and ...

                      August 17 at 12:15 PM view post
                      • Kjohnchas

                        Kjohnchas Thinking of you,know you have been busy,we will be at ctca Monday for scan,been feeling positive though God bless

                        August 22 at 10:06 AM
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                    About Dlynn1210

                    Patient
                    Head and Neck Cancer, Tonsils Cancer

                    I am married and the mother of five grown children and 14 grandchildren. I was diagnosed in 2007 with SCC of the left tonsil and have been a member of CC since shortly after beginning treatment. I underwent chemo and radiation at CTCA in Zion, IL and received my last clean scan in Sept 2012. I found a wonderful support system on CC who really understood what I was going through and come back often to offer words of encouragement to those who are now traveling where I have been. I thank God daily for guiding me to CTCA and for guiding me to Cancer Compass. I had a tremendous support system with family and friends but there are not enough words to describe how I feel about my CC family other than to say I would not have made it through as well as I did without you.

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