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Dlynn1210's Recent CancerCompass Activity

  • Dlynn1210 has replied to a post on the message board

    Steve - I normally do not post on other types of cancer but fromy reading several posts on CC about urachal cancer after posting about the TV program, I read many success stories so 22 out of 22 even stage 4 dying is incorrect.  Again, I am praying that there is continuing success with injecting polio virus into tumors but this is only the start of trials. Diana 

    Yesterday at 11:47 AM view post
    • Dlynn1210 has replied to a post on the message board

      I only have pain for a few days after my dilations as well.  Everyone responds differently but it is a good idea to have his ENT check it out to see if there are any problems that can be remedied.  Diana

      Tuesday at 10:12 PM view post
      • Dlynn1210 has replied to a post on the message board

        Annie - I have been on Cancer Compass for 7 1/2 years since being diagnosed and treated for tonsil cancer at Cancer Treatment Center of America in Zion, IL.  This site is one of the greatest for providing information from survivors to patients and caregivers.  At the same time, thankfully a much smaller number find it a perfect outlet to scam cancer patients and those who love them.  Read throug...

        Monday at 3:44 PM view post
        • Dlynn1210 has replied to a post on the message board

          My dear friend - I actually went through much of what you are now after I was told that Jack was terminal.  Hospice was called in while he was hospitalized.  The following morning he was scheduled to be discharged and I went ahead in to open my store since we had no idea what time he would be released.  I told him to call me as soon as he was ready to come home and I would be right ther...

          Monday at 2:04 PM view post
          • Dlynn1210 has replied to a post on the message board

            I totally understand but you cannot just decide you want to try and and be able to particpate in the trial.  It is a trial which means you have to meet a certain criteria in order to even be considered. I was excited when I first started watching but I took note of the number of patients who participated that have died.  Others are only out a few months from treatment so it is an important start but not a ...

            Monday at 12:30 PM view post
            • Dlynn1210 has replied to a post on the message board

              Steve is very enthusiastic about a TV program that many of us saw tonight on TV - enough that he has posted ten times on various blogs about it.  Duke University is conducting trials that definitely show some promise in treating various types of cancers but while exciting, we must also keep in mind is that they do not claim it is a cure - but rather a beginning.  Twelve of the 22 patients involved in ...

              Monday at 4:01 AM view post
              • Dlynn1210 has replied to a post on the message board

                Hi Sweetie - As I read through our last few emails, what you described seeing in Chuck sounded very much like what I saw with Jack shortly before they called in Hospice.  I wish with all my heart I had the right words to ease the pain you have to be feeling right now but I know that only God can provide comfort even when words fail.  I will continue to keep you and Chuck in my prayers -...

                Monday at 3:52 AM view post
                • Dlynn1210 has replied to a post on the message board

                  It is promising but they quickly skimmed over the fact that 12 of the 22 people involved in the trial have died.  As you said, it is a trial and not available to just anyone that wants to try it. Diana

                  Monday at 1:47 AM view post
                  • Dlynn1210 has replied to a post on the message board

                    Steve - I saw the same show and while the infusion of polio virus shows promise they clearly stated that this is not a cure.  The one thing they quickly skimmed over was the fact that 12 out of 22 people involved in the trial have died.  My heart goes out to you but please don't go widely posting that this is a cure.  It is a trial so not available to just anyone who...

                    Monday at 1:45 AM view post
                    • Dlynn1210 has replied to a post on the message board

                      The fact that you haven't heard IS a good thing.  I heard that I had cancer before leaving the operating room.  I totally understand though that hearing the word benign will be music to your ears.  Diana

                      March 29 at 9:17 PM view post
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                      About Dlynn1210

                      Patient
                      Head and Neck Cancer, Tonsils Cancer

                      I am married and the mother of five grown children and 14 grandchildren. I was diagnosed in 2007 with SCC of the left tonsil and have been a member of CC since shortly after beginning treatment. I underwent chemo and radiation at CTCA in Zion, IL and received my last clean scan in Sept 2012. I found a wonderful support system on CC who really understood what I was going through and come back often to offer words of encouragement to those who are now traveling where I have been. I thank God daily for guiding me to CTCA and for guiding me to Cancer Compass. I had a tremendous support system with family and friends but there are not enough words to describe how I feel about my CC family other than to say I would not have made it through as well as I did without you.

                      UPDATE - I am now
                      7 1/2 years clear of cancer. My oncologist considers me cured of head and neck cancer. No more scans!!!

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