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Dlynn1210's Recent CancerCompass Activity

  • Dlynn1210 has replied to a post on the message board

    Hi Kathy - I know what you mean - you feel "safe" being treated at CTCA because they cover all bases.  I know it will be tough being away from your grandson but doing fragmented radiation twice a day to lessen the side effects means you could only go home on the weekend anyway.  I found it too stressful on my body and weakened me farther by driving home so you are better to stay put for the duration.  ...

    Yesterday at 10:37 AM view post
    • Dlynn1210 has replied to a post on the message board

      Chuck is being treated at one of the best cancer treatment centers in the U.S.  They devise individual treatment plans specific to each patient and utilize alternatives to lessen the side effects of conventional treatments.  I was treated at CTCA also and know they would frown on any of us who would suggest altering their plan.  Diana  

      Thursday at 1:43 AM view post
      • Dlynn1210 has replied to a post on the message board

        Linda - Nodules are fairly common which I found out after being diagnosed with nodules in my lungs.  After going through cancer, I kind of freaked out upon hearing nodules.  They found them through a CT scan and wanted to do an MRI soon but my oncologist calmly said to wait for my regular check up in two months.  During those two months I came across friends who had also been told they have nodules bu...

        December 12 at 12:36 AM view post
        • Dlynn1210 has replied to a post on the message board

          Kathy I just private messaged you asking how Chuck was doing.  I am so sorry to hear the latest report.  It is always discouraging when we hear the cancer has grown.  Praying for some good news next week so you can enjoy Christmas.  Love you Diana

          December 10 at 11:57 AM view post
          • Dlynn1210 has replied to a post on the message board

            My thoughts exactly - when there is something bothering us that we don't need (e.g.tonsil) and they keep bothering you, have them removed.  Great news either way that you don't have cancer.  A tonsillectomy is not a walk in the park as an adult.  It knocked both my daughter and I for a loop but we survived.  Congratulations on the report! Diana

            December 05 at 6:08 PM view post
            • Dlynn1210 has replied to a post on the message board

              Susan -  We've all talked about before how doctors don't tell us EVERY possible side effect.  I can understand why - some people would focus so heavily on possible side effects that never surface that they would lose quality of life. You would think though that having a possible stroke 5-7 years post treatment would be something they would specifically talk about.  My doctor s...

              December 04 at 2:17 PM view post
              • Dlynn1210 has replied to a post on the message board

                You definitely should know something - I"m praying for great results for you.  I know you get to a point you just want to know why you are feeling so lousy.  Once you know, then you can work on getting better.  Diana

                December 03 at 10:34 PM view post
                • Dlynn1210 has replied to a post on the message board

                  Your tonsils will show up in a CT scan.  If they see anything questionable they may want a MRI but a CT scan is an excellent tool in outlining inside our body. Diana

                  December 03 at 6:12 PM view post
                  • Dlynn1210 has replied to a post on the message board

                    Lymph node involvement just means it has spread outside of the malignancy.  Submandibular to the clavicular area is just describing the area scanned - below the mandible to the clavicle area (jawbone to collarbone in layman's terms).  No adenopathy just means they saw no swelling or infection in lymph nodes but since there was also no mass seen - you do not have cancer.  You results coul...

                    December 03 at 6:08 PM view post
                    • Dlynn1210 has replied to a post on the message board

                      You made a very good point about googling symptoms and self diagnosing.  My husband recently got a rash on his leg that spread to his fingers.  I thought he most likely came into contact with something while working in the yard but after googling rashes, he came to the conclusion he should go to ER on a Sunday.  I strongly discouraged it because we have a $500 co-pay for ER visits.  He went t...

                      December 03 at 1:14 PM view post
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                      About Dlynn1210

                      Patient
                      Head and Neck Cancer, Tonsils Cancer

                      I am married and the mother of five grown children and 14 grandchildren. I was diagnosed in 2007 with SCC of the left tonsil and have been a member of CC since shortly after beginning treatment. I underwent chemo and radiation at CTCA in Zion, IL and received my last clean scan in Sept 2012. I found a wonderful support system on CC who really understood what I was going through and come back often to offer words of encouragement to those who are now traveling where I have been. I thank God daily for guiding me to CTCA and for guiding me to Cancer Compass. I had a tremendous support system with family and friends but there are not enough words to describe how I feel about my CC family other than to say I would not have made it through as well as I did without you.

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