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Dlynn1210's Recent CancerCompass Activity

  • Dlynn1210 has replied to a post on the message board

    Hello everyone - We are in Skagway Alaska today as the 3rd stop on our cruise.. It's been a memorable trip so far. Beautiful scenery.................................................. ANDREA - ................... Not private messaging in case you can't open...................................... Have you heard about treatments yet? Liv n stuff Diana

    Wednesday at 3:22 PM view post
    • Dlynn1210 has replied to a post on the message board

      Crystal Pathology reports only show possible cancer cells in the affected area. A scan is usually done a few months past treatment to give a definitive "no cancer" when no outlying cancer cells show up. As you can tell from reading posts on CC not every ENT, surgeon, or oncologist 100 per cent agrees. My ENT immediately scheduled surgery after instantly knowing what she was looking at was cancer. Diana

      Wednesday at 3:14 PM view post
      • Dlynn1210 has replied to a post on the message board

        Tesori - I wouldn't completely dismiss chemo if your oncologist recommends it because the vast majority of us long term survivors of tonsil cancer had both radiation and chemo. From my understanding, chemo is sort of an insurance policy that kills off any residual outlying cancer cells. My ENT was a surgeon and removed my tonsils. Others have also had their ENT do the surgery as that is their speciality. CTC...

        Wednesday at 3:07 PM view post
        • Dlynn1210 has replied to a post on the message board

          It does work some times to go to a message you typed, click on your name to reach your profile.  Look to your left and click on notifications.  About half of the time I can open it there with my IPAD.  Now my new laptop is doing it as well. Frustrating. Diana

          July 13 at 11:27 PM view post
          • Kjohnchas

            Kjohnchas Dlynn,,,,where are you lately,so miss your posts

            Tuesday at 10:44 AM
        • Dlynn1210 has replied to a post on the message board

          In my seven years on CC more people diagnosed with tonsil cancer had their tonsils removed and then followed with radiation - and most also had chemo. There have been a couple that only had radiation. As for radiation, the hospital where I was diagnosed had IMRT but CTCA where I went for a second opinion had TOMO. Both claimed to be equally good so while researching I found that Siteman Cancer Center in St. Louis ...

          July 11 at 3:06 AM view post
          • Dlynn1210 has replied to a post on the message board

            I didn't require a lot of medications other than magic mouthwash and Emend, an anti nausea med. The Ativan was a must due to my claustrophobia. Without it I would never have made it through. It is a mild tranquilizer but helped immensely. I tried it the first couple of times without and there was no getting me back for a third time without something. One very tiny pill twice a day an hour before treatment. We ...

            July 10 at 10:40 PM view post
            • Dlynn1210 has replied to a post on the message board

              Boy, do we understand about confusion when reading and writing.  I read my above post several times and didn't catch the as instead of has (Andrea has us saying).  I was also ready to post my response when I read back through and discovered I had somehow deleted the entire first paragraph so had to rewrite it.  Love to everyone Diana

              July 10 at 1:12 PM view post
              • Dlynn1210 has replied to a post on the message board

                Hi The post your are resonding to was written in 2008 so you may not hear back from that individual due to the time that has elapsed.  Many come to Cancer Compass only while going through treatment and others return to help those traveling the road we have already traveled - but we often take breaks away from CC because it becomes a little overwhelming reliving our experiences.  If you go to the head and n...

                July 10 at 1:04 PM view post
                • Dlynn1210 has replied to a post on the message board

                  Hi Sweetie - It took me a few minutes after reading your post before I could respond because of shedding tears of joy that you were able to post. I am very sorry to hear that you are enduing so much pain and I will continue to remember you in my daily prayers - that God touches you and lessens your pain - that He gives you the strength in the days ahead to endure treatment. Cancer has a way of b...

                  July 10 at 12:47 PM view post
                  • Dlynn1210 has replied to a post on the message board

                    There are so many advances in both diagnosis and treatment of cancer. One good article ........................................................................................................................ http://www.mayoclinic.org/diseases-conditions/cancer/in-depth/cancer-diagnosis/art-20046459 Diana

                    July 07 at 2:40 AM view post
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                    About Dlynn1210

                    Patient
                    Head and Neck Cancer, Tonsils Cancer

                    I am married and the mother of five grown children and 14 grandchildren. I was diagnosed in 2007 with SCC of the left tonsil and have been a member of CC since shortly after beginning treatment. I underwent chemo and radiation at CTCA in Zion, IL and received my last clean scan in Sept 2012. I found a wonderful support system on CC who really understood what I was going through and come back often to offer words of encouragement to those who are now traveling where I have been. I thank God daily for guiding me to CTCA and for guiding me to Cancer Compass. I had a tremendous support system with family and friends but there are not enough words to describe how I feel about my CC family other than to say I would not have made it through as well as I did without you.

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