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Dlynn1210's Recent CancerCompass Activity

  • Dlynn1210 has replied to a post on the message board

    Toni - The doctors and everyone involved know this is serious - which doesn't mean there is no hope. Taking everything into consideration, your last post shows amazing strength. Anything I could think to encourage you to do or say, you have already addressed here. I truly believe that God is with you. I will continue to pray for you - that God gives you comfort and peace now and in the days ahead. With e...

    4 hours ago view post
    • Dlynn1210 has replied to a post on the message board

      Robin - There is a quote attributed to Mother Teresa that fits situations like yours. It is "God doesn't give us more than we can handle BUT there are times I wish He wouldn't trust me so much!" I've been where you are when I lost my mother, my husband, my best friend, another close friend and my old four legged best buddy all within a few months of each other. It has been 17 years but I remember thinking I j...

      14 hours ago view post
      • Dlynn1210 has replied to a post on the message board

        My dear friend - I remembered you in prayer early this morning and I asked that God give me the right words to comfort you. I am relying on Him now as I read and respond to your latest post. I will share first what came to me as I read your words. After my own battle with cancer, I have come to the conclusion that it is not how much time we have left here on Earth because no one honestly knows ourselves ho...

        Friday at 3:05 PM view post
        • Dlynn1210 has replied to a post on the message board

          Toni - If you remember my friend Brenda with breast cancer. They had run out of options but she is now doing very well in a clinical trial. New and improved treatments are frequently being discovered which is an excellent reason to consider a clinical trial. I agree with Jackie regarding your family. Many of us take each other for granted until a serious illness of a loved one. We realize that we should ma...

          Friday at 1:12 AM view post
          • Dlynn1210 has replied to a post on the message board

            Hi Jackie - I tried Nexium but it took twice as much to do the same job as Dexilant. Sounds like they are preventing us from taking any meds that cost more than $1.98 - even if it prevents esophageal cancer. I am on Medicare - both Medicare and Medicaid were hit to cover the new health care act. I'm going to call Dexilant mfg and see what can be done. If nothing I will check into Nexium. I've tried other meds...

            Friday at 1:03 AM view post
            • Dlynn1210 has replied to a post on the message board

              Toni Is Emory in GA? A friend had encouraged me to take my daughter to one in Atlanta area. His wife was treated there and he spoke very highly of it. Diana

              Thursday at 12:19 PM view post
              • Dlynn1210 has replied to a post on the message board

                Hi Toni Sorry I have been away from my computer but just caught up. I may not resond every day but you are in my daily prayers. First the hot tub issue. I would not recommend one for two reasons. I have one and they are expensive to maintain. Our electric bill is much higher when I have it plugged in. I can't just turn it on minutes before I want jump in; otherwise, I would be jumping into cold water. ...

                Thursday at 12:00 PM view post
                • Dlynn1210 has replied to a post on the message board

                  There have been a couple of very harsh replies here and it is really sad that it was overlooked that the original posted was from someone who was dealing with the loss of of a loved one. The last thing they need is to read harsh words directed at anyone. You can post your beliefs without being harsh. I know that I can't give any medications to anyone other than the person it is prescribed for but a medical profe...

                  April 13 at 6:14 AM view post
                  • Dlynn1210 has replied to a post on the message board

                    I know it is so much better to dilute them and send them down the drain than give them a patient who desperately needs them but can't afford them. Also, I have the address somewhere of a group that takes meds and distributes them overseas during medical missipna. I gave Dad's meds to them But by all means, let's not derive the pharmaceutical company of any more sales. Hospice nurses don't even have to consult...

                    April 12 at 11:23 PM view post
                    • Dlynn1210 has replied to a post on the message board

                      HI Chris I have never known of anyone that didn't have radiation.  As I said, there are even very few that had radiation only - the majority of us had chemo as well.  I totally agree with your original ENT because you don't want cancer to show up later in another area because they skimped on treatment during the initial onset.  Generally a PET scan is scheduled at least 1-2 months after any trea...

                      April 09 at 4:52 PM view post
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                      About Dlynn1210

                      Patient
                      Head and Neck Cancer

                      I am married and the mother of five grown children and 14 grandchildren. I was diagnosed in 2007 with SCC of the left tonsil and have been a member of CC since shortly after beginning treatment. I underwent chemo and radiation at CTCA in Zion, IL and received my last clean scan in Sept 2012. I found a wonderful support system on CC who really understood what I was going through and come back often to offer words of encouragement to those who are now traveling where I have been. I thank God daily for guiding me to CTCA and for guiding me to Cancer Compass. I had a tremendous support system with family and friends but there are not enough words to describe how I feel about my CC family other than to say I would not have made it through as well as I did without you.

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