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Dlynn1210's Recent CancerCompass Activity

  • Dlynn1210 has replied to a post on the message board

    As I said, there are disagreements about sugar and cancer from both patients and medical personnel. Overweight was not my problem after losing 23 lbs during the first 3 weeks of treatment. I lost any extra I had acquired and have never gained it back. In grad school one professor encouraged us to always use layman's language when speaking to patients so I tend to skip the long drawn out technical explanations wh...

    April 21 at 11:52 PM view post
    • Dlynn1210 has replied to a post on the message board

      There is a lot of controversy from everyone about sugar intake but cancer lives sugar. Why else would the lace radio isotopes with it to get cancer cells to race towards during a PET scan? It just isn't during treatment but I seriously watch my sugar intake now - 7 1/2 years post treatment. Instead of syrup I used puréed fruits - like blueberries. Prosure is made by the same manufacturer as Ensure especially ...

      April 21 at 2:37 PM view post
      • Dlynn1210 has replied to a post on the message board

        A PEG tube was my life line. I lost 25 pounds until I agreed to the tube.

        April 18 at 3:31 PM view post
        • Dlynn1210 has replied to a post on the message board

          I did not see this mentioned but what kind of radiation do they have your husband set up for.  There is a new type out since I was treated but TOMO is excellent as it helps to salvage most of your salivary glands which take a hit in radiation.  Those who had IMRT continue to have swallowing problems (dry mouth issues) for the rest of their life.  The hospital where I was diagnosed had IMRT and the seco...

          April 17 at 12:25 PM view post
          • Dlynn1210 has replied to a post on the message board

            The only thing I would mention here is that the worst part is not loss of taste.  Yes, we do lose our taste buds and they very slowly come back but the worst part is the pain involved after having our throat area radiated repeatedly day after day and the mucous build up which comes later in treatment and continues to worsen for approximately 6-8 weeks post treatment.  My husband had to travel with his job ...

            April 17 at 12:20 PM view post
            • Dlynn1210 has replied to a post on the message board

              A Speech Language Pathologist needs to be trained in Vital Stim Therapy.  Not all SLP or speech therapists are qualified to do vital stim therapy.  If your speech therapist was qualified, I truly believe she would have brought up Vital Stim.  I found liquids more difficult to master than some foods - and still do.  I didn't have a lot of trouble with my tube.  Diana 

              April 17 at 1:08 AM view post
              • Dlynn1210 has replied to a post on the message board

                Instead of taking someone's word about the effectiveness of the god particle, click on the name of the person who posted.  It will be a good indication of who is here just to promote this product and who is truly here looking for a treatment that would help fight cancer.   Anyone who is fighting cancer or has a loved one fighting cancer comes to CC to search out how to help rather than just i...

                April 14 at 8:52 PM view post
                • Dlynn1210 has replied to a post on the message board

                  I am 7 1/2 years post treatment.  I was on a feeding tube for over a year before going through Vital Stim swallowing therapy with a Speech Language Pathologist.  I was back to eating within 6-8 weeks and had my tube removed (now a member of the two belly button club).  As Pop said, I have always encouraged people to go to a buffet as often as possible.  We went almost every week.  There is a ...

                  April 13 at 1:29 PM view post
                  • Dlynn1210 has replied to a post on the message board

                    I am 7 1/2 years post treatment.  I was on a feeding tube for over a year before going through Vital Stim swallowing therapy with a Speech Language Pathologist.  I was back to eating within 6-8 weeks and had my tube removed (now a member of the two belly button club).  As Pop said, I have always encouraged people to go to a buffet as often as possible.  We went almost every week.  There is a ...

                    April 13 at 1:28 PM view post
                    • Dlynn1210 has replied to a post on the message board

                      Only his oncologist can say whether the cancer is progressing but what I can say is that chemo and radiation kicks butt.  Chemo is not selective and kills out all the good cells along with the cancerous ones.  Fatique is still something I deal with - but then I was 60 years old when diagnosed and now 68 years old so with age comes fatique.  I once read an article by Rue McClanahan (Golden Girl) wh...

                      April 08 at 2:47 PM view post
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                      About Dlynn1210

                      Patient
                      Head and Neck Cancer, Tonsils Cancer

                      I am married and the mother of five grown children and 14 grandchildren. I was diagnosed in 2007 with SCC of the left tonsil and have been a member of CC since shortly after beginning treatment. I underwent chemo and radiation at CTCA in Zion, IL and received my last clean scan in Sept 2012. I found a wonderful support system on CC who really understood what I was going through and come back often to offer words of encouragement to those who are now traveling where I have been. I thank God daily for guiding me to CTCA and for guiding me to Cancer Compass. I had a tremendous support system with family and friends but there are not enough words to describe how I feel about my CC family other than to say I would not have made it through as well as I did without you.

                      UPDATE - I am now
                      7 1/2 years clear of cancer. My oncologist considers me cured of head and neck cancer. No more scans!!!

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