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Gaylec's Recent CancerCompass Activity

  • Gaylec has replied to a post on the message board

    For my mom, I felt like Hospice pushed to get her out of the facility within a day.  They accelerated her meds schedule twice, cut off her food, and were SUPER RUDE!  My sisters and I were with her when she passed, my brothers and gone to grab a bite to eat and were away.  The witch of a nurse comes in, and says loudly to my mom - "you couldn't wait for your sons to arrive, could you?"  We told he...

    July 02 at 7:22 AM view post
    • Gaylec has replied to a post on the message board

      If you haven't tried Avastin, you might give it a shot. My husband was so bad that I had to lift him in and out of bed, wheel him around the home, and have a bedside commode. We tried Avastin as a last shot, and it made an immediate difference. Got one more year out of it. We are in the same boat as you now, as the Avastin is failing, and the tumor progressed very rapidly. We asked a lot of questions, and basical...

      June 16 at 9:09 PM view post
      • Gaylec has replied to a post on the message board

        This cancer is always adapting, mutating.  I asked about this, as my husband has been fighting for 7 years, 2 surgeries and 3 recurrences, (GBM) have run out of options - such as vaccine, as the cells from resection will be different than what is racing across his brain now.  Avastin helped for awhile as our final bullet, but my husband is losing the battle at this point.  Glad we have had this much ti...

        June 13 at 5:46 AM view post
        • Gaylec has replied to a post on the message board

          With this disease, you do end up being nurse and therapist.  I have to give shots, change dressings, assist with giving baths, dressing, with someone who is often in pain and in a horrible mood.  The loss of control makes my spouse very controlling of every little thing, and it can really get to you. And if you have been doing this for years, the fatigue can get to you.  Add the personality changes due...

          January 30, 2013 view post
          • Gaylec has replied to a post on the message board

            Dr. Linda Liau is a fabulous neurosurgeon.  We went to her because the other hospital said my husband's tumor was inoperable... and that was in September 2006.  The whole team is great - Dr. Cloussey is the neuro oncologist, and Dr. Selch did the radiation surgery (3D mapping).   He has had a couple rucurrences since then, had a second surgery, and has stable MRI's now.  (on Avastin, as Temedor q...

            January 30, 2013 view post
            • Gaylec has replied to a post on the message board

              My husband has been fighting this since September 2006, at UCLA.  I had asked about life expectancy, and was told although there is a range, with average expectancy, etc., they refused to give a timeframe for my husband, saying that he was not at any point where such a guess would be accurate.  I am grateful for that, as it speaks to the fighting spirit of our doctors.  There are so many vairables to t...

              November 17, 2012 view post
              • Gaylec has replied to a post on the message board

                Hugs.  I was there too last summer with my mom - ovarian cancer.  She brought you into the world, and you will usher her into the next, right by her side. Take care and God Bless.

                November 16, 2012 view post
                • Gaylec has replied to a post on the message board

                  My husband started Avastin when the GBM came back a third time.  I had to get him in and out of bed, he was what I thought was weeks from death.  He responded to it immediately, and can now walk around and take care of tasks himself such as showering, etc.   Having said that - his skin is like paper - very very fragile.  He bruises like crazy and the slightest thing can cut him.  The Avastin...

                  November 16, 2012 view post
                  • Gaylec has replied to a post on the message board

                    We have had great results at UCLA.  Linda Liau has operated on John twice, and Dr. Cloughesy's staff is wonderful too.  There are also a lot of clinical trials at UCLA.  My husband has been with them since diagnosis of GBM in 2006.

                    November 16, 2012 view post
                    • Gaylec has replied to a post on the message board

                      Our hearts are with you in these last difficult days.  Hugs to you and your dear Bear. GayleC wife of John, GBM warrior 

                      November 07, 2012 view post
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                      About Gaylec

                      Caregiver
                      Lymphoma

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