Gaylec

Gaylec's Recent CancerCompass Activity

• Gaylec has replied to a post on the message board

  With this disease, you do end up being nurse and therapist.  I have to give shots, change dressings, assist with giving baths, dressing, with someone who is often in pain and in a horrible mood.  The loss of control makes my spouse very controlling of every little thing, and it can really get to you. And if you have been doing this for years, the fatigue can get to you.  Add the personality changes due...

  January 30 at 11:58 PM view post

• Gaylec has replied to a post on the message board

  Dr. Linda Liau is a fabulous neurosurgeon.  We went to her because the other hospital said my husband's tumor was inoperable... and that was in September 2006.  The whole team is great - Dr. Cloussey is the neuro oncologist, and Dr. Selch did the radiation surgery (3D mapping).   He has had a couple rucurrences since then, had a second surgery, and has stable MRI's now.  (on Avastin, as Temedor q...

  January 30 at 11:19 PM view post

• Gaylec has replied to a post on the message board

  My husband has been fighting this since September 2006, at UCLA.  I had asked about life expectancy, and was told although there is a range, with average expectancy, etc., they refused to give a timeframe for my husband, saying that he was not at any point where such a guess would be accurate.  I am grateful for that, as it speaks to the fighting spirit of our doctors.  There are so many vairables to t...

  November 17 at 5:38 AM view post

• Gaylec has replied to a post on the message board

  Hugs.  I was there too last summer with my mom - ovarian cancer.  She brought you into the world, and you will usher her into the next, right by her side. Take care and God Bless.

  November 16 at 5:37 AM view post

• Gaylec has replied to a post on the message board

  My husband started Avastin when the GBM came back a third time.  I had to get him in and out of bed, he was what I thought was weeks from death.  He responded to it immediately, and can now walk around and take care of tasks himself such as showering, etc.   Having said that - his skin is like paper - very very fragile.  He bruises like crazy and the slightest thing can cut him.  The Avastin...

  November 16 at 5:34 AM view post

• Gaylec has replied to a post on the message board

  We have had great results at UCLA.  Linda Liau has operated on John twice, and Dr. Cloughesy's staff is wonderful too.  There are also a lot of clinical trials at UCLA.  My husband has been with them since diagnosis of GBM in 2006.

  November 16 at 5:28 AM view post

• Gaylec has replied to a post on the message board

  Our hearts are with you in these last difficult days.  Hugs to you and your dear Bear. GayleC wife of John, GBM warrior 

  November 07 at 4:23 AM view post

• Gaylec has created a new message board discussion

  Saturday we get to celebrate another birthday for John. We have had more than I thought we would, since he was diagnosed with GBM in October 2006, and has fought back a couple remissions.  Currently he is on Avastin, and the tumor that came back after surgery last April is slowly shrinking, but I have a fear that this could be his last birthday, so we are going to his favorite restaurant, with his best friend an...

  November 02 at 3:12 AM view discussion

• Gaylec has replied to a post on the message board

  Cyber hugs to you Cando.  So sorry you and your loved one have had to endure this horror.  You are in my thoughts and prayers. Gaylec - wife of GMB warrior John.

  November 02 at 3:00 AM view post

• Gaylec has replied to a post on the message board

  I too have heard good things about Cedars, but you also might want to check UCLA - a major brain cancer center with lots of clinical trials as well.  This site lists clinical trials and other info there.  http://www.neurooncology.ucla.edu/PatientCare/WorldClassOncologyCare.aspx

  October 16 at 5:38 AM view post