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Geekie1's Recent CancerCompass Activity

  • Geekie1 has replied to a post on the message board

    Hi, I had my R kidney removed in April '12; after finding a 5cm kidney tumor while experiencing a large stone in my L (the good) kidney.   Pathology confirmed RCC stage 1, grade 2. I have worked with a urologist and nephrologist; we caught a stone to have it analyized, it was calcium oxalate (the most common stone).  I have 3 stones in my remaining L kidney now.  My urologist has ordered po...

    May 14, 2013 view post
    • Geekie1 has replied to a post on the message board

      My understanding is that the CT is better than the PET when it comes to kidney cancer. I had my R kidney removed in April; dx with RCC, stage 1, grade 2.  Follow up is CT scan from neck to groin every 6 months.  Before surgery, I was having some nagging hip pain, so a bone scan was done at my insistance, but this was negative-thank God!  Currently with NED (No Evidence of Disease), every cancer patien...

      February 07, 2013 view post
      • Geekie1 has replied to a post on the message board

        Hi, Just read your post, sorry you are having to go through this. Sounds like you need more testing first of all, probably a CT scan of the area to confirm what is going on with the kidney.  I'm sure the urologist will order this.    You need to find out just what the 'cyst' is and a CT scan (with contrast) will probably tell you that.  Hopefully the urologist you are seeing knows some...

        August 28, 2012 view post
        • Geekie1 has replied to a post on the message board

          First of all, thank God your dad has someone who can research and be an advocate for him....cause driving through the healthcare system, he'll need this.  I was dx with stage 1, grade 2 kidney cancer in April (tumor found in March during a CT scan for stones).  Surgery April 23, open right nephrectomy.  (I'm 45).  Recovery was rough the first few weeks and even now, if driving or sitting for...

          August 25, 2012 view post
          • Geekie1 has replied to a post on the message board

            so far, so good with one kidney; do have some issues with anemia, but this is getting better.  Initially, I had some high kidney function numbers, but these have gone down and I will have more bloodwork in September.  Feeling good, except that I do tire more easily than before, but maybe that's because I'm 46 soon.....haha.  Hope your appt went well today!  

            August 24, 2012 view post
            • Geekie1 has replied to a post on the message board

              has your husband had any scans (i.e. chest CT or bone scan?)

              August 19, 2012 view post
              • Geekie1 has replied to a post on the message board

                Hopefully, by now you have seen a urologist; more testing should tell you if these 'lesions' are suspected renal cancer-as most kidney lesions are considered this until proven otherwise.    I didn't have any history in my family either, but a 5cm tumor was found when I had a kidney stone.  Surgery was April 23 to remove the R kidney, renal cell carcinoma, stage 1, grade 2.  Get to a urologist...

                August 19, 2012 view post
                • Geekie1 has replied to a post on the message board

                  Hi, I had a R radical nephrectomy on April 23.  Initially, I had an epidural in the hospital for pain control, and once it was 'tweaked' it worked well.  Weaned off from that on day 3 and switched to oral meds.    the days in the hospital were rough, but I forced myself to move, one of the most important things you can do. Each time, it gets easier and easier.   Once I returne...

                  August 19, 2012 view post
                  • Geekie1 has replied to a post on the message board

                    Any change in pain level is not normal; I had surgery April 23 and had my R kidney removed.  The first 2 weeks were tough and even now (3 months out) I have days where there is discomfort in my R side, but not pain.  He should see the MD.  Has he had a CT scan?  That could give some answers. Hope he's feeling better by now, just noticed that this was an old post.

                    July 30, 2012 view post
                    • Geekie1 has replied to a post on the message board

                      HI, just saw your post; I am female and had a radical R nephrectomy on April 23.  I have a male friend who had a nephrectomy more than 10 years ago and he also had the testicular pain.   Report it to your doc, not sure what was done for him (if anything); my friend had joked that I wouldn't have that problem, but that he was quite bothered by it.   

                      July 30, 2012 view post
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                      About Geekie1

                      Patient
                      Renal Cell Cancer

                      Hi
                      I'm Heidi; I live in a very small community on the coast of Maine. Diagnosed 3/8/12 with a renal tumor; surgery 4/23-R radical, open nephrectomy-diagnosis: Renal cell carcinoma-stage 1, grade 2; current NED!

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