I agree, the emotional toll of cancer on the caregiver is such a freaking roller coaster. One minute you feel like you might have a handle on things and then it goes from zero to 60. We've been on this journey for 10 months and there are still days where I can do just the bare minimum. It is taking me a long time to grieve for our old life and what we used to have. And to try to get used to th...
They obviously never dealt with cancer. Just a vent for today. My husband was complaining this weekend about a significant loss of vision in his right eye, he was having a harder time communicating and was having issues using his right hand. So the doctor ordered an MRI. We just had one for his brain tumor at the end of April and now we had one yesterday. And the results? A whole lot of...
I have always wanted to go to Greece. In college, I studied Latin and Greek and I was heavily involved in band and different music groups, I never got to study abroad. I told my sister that the first thing I am doing once my husband passes, is taking a trip to Greece and she is coming with me.
My husband always looks at me and says, I'm so glad it's me with cancer and not you. I couldn't do what you are doing. It's so true. We've had our moments. After we had our son, I had an emergency C-Section, and was a mess afterwards and he helped me shower and get dressed and walked with me. My funny story to contribute is right after we first got married, my husband got stationed in Ne...
So far love, we have seen some improvement on shrinking the tumor. We have had some side effects, the crazy rash. But nothing more than that. So far so good for us. I think others have mentioned that Avastin can disqual you from some clinical trials if you are interested in them, so make sure to do your research. Avastin is usually one of the last ditch efforts for chemo, but I've read o...
My husband has had vision decline. After surgery, no peripheral vision on his right side. Doctors let us know his tumor is right near his optic nerve, so they had to be really careful during radiation. Just this past weekend, his vision seems to have changed again. Going to talk to the doctor to see what they say, probably just an MRI to see what the tumor is doing. But there isn't reall...
It is so great to hear women saying exactly what I am feeling. It gives value and worth to how I feel, which is a multitude of things everyday. I feel like the biggest stressor for me is all the emotions that come along with being so many things to so many people. So thankful for you ladies and hearing your stories and your advice. It is a sisterhood. I feel blessed to have met so many w...
My husband was originl diagnosed AA3 in July of 2012. Only were able to get 70% in surgery. He did the norm radiation/temodar. Scan in Nov looked questionable. Scan in January 2013 showed that it had grown back since the radiation and they upgraded him to GBM Stage 4. The good and bad thing about this cancer is that everyone has a different story. It's great because it gives you hope, b...
My husband was doing an hour of physical therapy every day in addition to speech therapy 2x a week. Once he started on the Avastin and Temodar, it was way too much for him. He eventually stopped doing speech therapy because it wasn't really helping. Our therapist was really honest with us saying that the best we could hope for in our situation was to maintain what he had. But our NO ...
PREACH!!! My husband's family, who has been awful this whole time and told us moving back to our home would be a mistake and they would never come visit, even for his funeral, are coming for a visit. Pray that I make it through the next 4 days. My husband has not been feeling well, been back and forth to the doctor. And of course I'm left to entertain his family that I don't get along with. Ug...
Caregiver to my husband, 33, diagnosed with Anaplastic Astrocytoma. We have a 8 month old son. My husband has had a resection, completed radiation, and is continuing on the chemo. We are trying to enjoy each day as this illness is very humbling.
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