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HONEYCOMB1968's Message Board Messages

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I had the same issues was paralised left side used a walker for awhile and then a cane the treatment isn't easy but there is a light at the end of the tunnell i have all functions back except when i get too tired then you can still see my balance issues but other than that i regained all my left side just not as strong as it once was

I wish they would have had that out when mine  appeared in 1999 i wouldn't have lost the vision i lost from the removal but i'm glad that its working for you, i had surgery in 1999 and no recurrences mine was 5 cm when removed good luck and god bless

On Jan 17, 2013 6:25 AM TrustinginGod wrote:

On Jan 15, 2013 8:55 PM rhondak wrote:

i'm so sorry the nurse felt compelled to tell your husband that she and you had conversed, maybe it was the topic - about him more than the diagnosis??  Just wondering?  I do think you have the right to ask about the diagnosis, you are his mate and caretaker.  The nurses at the chemo area seemed more willing to say more to me than the nurse assisting the dr.- like what to expect, etc..  They see it all.  Our drs. did not want to give out too much info, I think because some patients defy all and do the impossible- no 2 patients reacting the same. It gives hope, which we do not want to take away from our loved one.  You are behaving so normally- it's the unknown, the what ifs.  I know what you mean about praying and having faith, I feel God got us through.  He did not answer the prayer of complete healing and we know that is his answer sometimes; he did not take Jesus from the cross But he is with us always.  We know brain cancer is often not overcome- that's why we are afraid.  As pancreatic and ovarian are also almost never overcome, but there are always are exceptions to everything.  Just know with comfort that God is holding your hand and leading you down the path, he is teaching you to hold onto him.  He is always with us, in good and bad, while God is always good, Earthly life is not, he is leading us to that heavenly home and oh, I look forward to it more than ever.  Bless you on this road, try to enjoy every moment as a blessing, enjoy the day without looking to tomorrow.  Please call me if you would like.  I can privately send you my #.

Thank you so much for your post. It's good to hear from someone who understands. I appreciate you taking the time to respond to my post. Your words really helped me. I feel it was meant for me to post so that you could bring that message to me. It is exactly what I needed to hear. I read about so many that started this journey with seizures, my husband didn't and to my knowledge, has never had one and I am so thankful for that. I am thankful for each and every day that God allows us to spend together. This illness has opened our eyes in understanding that life is a gift, don't sweat the small stuff, and show love to one another EVERY day. Tomorrow isn't promised to any of us, healthy or not, and I just need to remember just what you said, God is holding my hand leading me down the path, teaching me to hold onto him. If only you knew what that statement has done for me. You are truly a blessing to me.

I as well never had any siezures just bad headaches was still employed working everyday when i finially found out what was wrong with me, by the scan i had it appeared to be much worse than it was when they went in it wasn't wrapped around like they thought i was lucky it was 5 cm and they got all they could see, the reason for the recurrences i was told was because a tumor was like a spider with lots of legs, those legs are dug in and thats what they can't see  so doctors can only diagnose and treat they aren't god they are given the knowledge by god to treat us but it is always in gods hands. he is not done with me on earth yet. i wrote a song called survivor it was about me and has a different ending than what i am telling now but when i wrote it i believed this thing was gonna be the end for me as the doctor told me he couldn't save my life just extend it but god gave me what i asked for and that was to raise my kids so if it came back tommorrow after all these years i'd be more ready to than i was in 1999 if you'd like to hear it go to youtube type in boltonsongspublish then song survivor god is with us all on this journey wether you are the patient or the caretaker god bless all and keep the faith

mine was a grade 3 anaplastic astrocytomas oliogliomas mixed glioma it was located on the right side back of head it affected left side paralization which all came back balance issues and lost left perifial vision both eyes, some short term memory issues but has improved alot since then. the scariest thing about letting them operate was losing my visual memory example looking outside seeing a tree but not being able to remember seeing the tree that was my biggest fear but i had three young boys 5=7=9 that i needed to get raised well i accomplished that so it was worth everything i went thru keep the faith and never give up

my oncologist said 15 years is the no going back line, he would then declare me cured well mine started in november 1999,  so i'm almost there I really hope that i actually say i beat it but i'm so thankful that god gave them the knowledge and know how to treat me and gave me the strength to fight it kitty i hope mine stays away and its a quick fix for your husband to live a longer life god bless everyone

On Apr 10, 2011 10:07 PM vwxyz wrote:

I am looking for  "truthful complete"  information regarding the above condition.  How, when, and where it was treated.  Is there anybody out there longer than 2-3 years?  Longer than 5-7 years?  Longer than 7-10 years?  ETC.         J.L.

i was dx on nov 1999 had surgery chemo and radiation treated by the mayfield clinic cincinnati ohio dr tu recieved oncology by dr allbright in edgewood ky no recurrences and i am still here going into 2013 keep the faith

RE: Grade 3 long term survivors

by HONEYCOMB1968 - January 05 at 5:30 PM

On Dec 31, 2012 5:48 PM rainflame4 wrote:

Thank you for this chain.  My finace was just diagnosed with a anaplastic astrocytoma, grade 3 on 12/13/12.  We too are looking for stories of long term survival to inspire us and it really does seem to just depend on the individual.  He starts 6 weeks of radiation and chemo in a week.  Best of luck to you!

Sarah

 

was diagnosed with this in 1999 and still here no recurrences I was 31 when diagnosed and told i had 5 years with treatment i'll be 45 in may so keep your faith your not going anywhere till its your time god bless all

Don't ever stop fighting I'm a brain cancer survivor of this same type i was dx in 11/99 had surgery and chemo and radiation and they removed all they could see and i'm still here so keep the faith age and how much removed plays a big part no matter how grim they make it seem they only gave me 5 years but as you can see i'm way past 5 years

survivor, if I can help anyone don't hesitate dx 11/99 recieved chemo radiation and surgery by the wonderful doctors at the mayfield clinic in cincinnati ohio was only given 6 months to live with treatment but still here 

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About HONEYCOMB1968

hi my name is Allison I'm 44 years old this year I'm a survivor of brain cancer dx in nov 1999
went through surgery chemo and radiation
my brain tumor was a grade 3 anaplastic astrocytomas mixed glioma 5 cm was located in the posterior side on the right I lost some short term memory , my balance isn't great and lost left perifial vision left side both eyes but at least I'm here to still talk about it if I can help anyone just message me god bless all

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