Loading...

Hearthealer's Message Board Messages

Loading...
Showing 1 - 10 of 6

Page 1 of 1

Experience with erbitux?

by Hearthealer - September 30, 2011

My husband has been told that most probably his T2N2cM0 poorly differentiated squamous cell cel cancinoma of the left hypopharynx has metasticized to the lung.  The doctor plans to do nothing until the small spots become larger and then start him with the chemo Erbitux. He said that he had an estimated one year to live.

He underwent 7 weeks of radiation and 2 rounds of chemo (too weak at the end to have the recommended 3rd) and initially was cancer free in February 2011.

Can anyone respond about the quality of life on Erbitux and also whether you know anyone who has survived for longer than a year after metastisis to the lung.  (We will be getting a 2nd opinion, just have to figure out where.)  We live in Sacramento so if anyone has better ideas than UCSF or Stanford, please let me know. 

We are obviously heartsick.  My husband is only 64 and has lived a very healthy lifestyle (not that having an unhealthy lifestyle means you "deserve" to get sick) but it is just so unexpected--all of it.

RE: Spouse support

by Hearthealer - March 07, 2011

I am so glad that others replied giving you support.  You said you didn't want a divorce and that makes sense.  However, you could also look at a separation (moving to live with your family during this time--with your toddler).  You need support and your child needs you to have support.

Your husband may be scared, in denial...we don't know what...That is for him to figure out and work through.  Your job right now is to get well so you can stay alive for your child and yourself.  I am 64 years old and believe me, I know about wanting to stay married.  If he is the right person for you, your taking care of yourself in this situation will be the wake up call he needs.

What about his family?  Are they supportive?  Your letter really touched me.  Going to a counselor by yourself or with him would really help.  Often oncologists have a social worker on staff that can work with you.

My prayers are with you.

 

I went to the health food store and bought the tea and honey.  I made the tea and my husband doesn't like it.  How long and how much do you have to drink for it to work?

 

Thanks so much.

 

 

Thank you Roselyn.  That helped.  We saw the doctor and the PET scan is scheduled this Friday, so we should know next Wednesday if he is cancer free.  That will alleviate some of the stress for BOTH of us.

Lately my husband has felt yucky--headache and upset stomach--always feels too full and like he is forcing himself to eat (not just because it doesn't taste good or go down easily).  Anyone else have this problem after treatment?

  He still hasn't had a PET or whatever to ascertain if they got everything.  They have looked in his throat (via) the nose and do not see the tumor.

RE: Radiation Burn

by Hearthealer - February 15, 2011

I was advised by the wife of a cancer survivor to buy Biafine cream for my husband.  I got it on Amazon.com .  It was pricey, $55.00 or so, but it worked.  The doctor said he hadn't seen anyone heal so well and so soon.

I now use it on my face and my face actually feels moist (I am 64 yrs old). 

Showing 1 - 10 of 6

Page 1 of 1

Loading...

About Hearthealer

Caregiver, Survivor
Skin Cancer, Throat Cancer
Cancer Nutrition, Cancer Treatments, Clinical Trials and Research, Diet, Radiation, Support

Hi. My name is Linda and I am 63. My husband, Joe, was diagnosed with throat cancer. We had a 2 week vacation scheduled and went on it because it only delayed treatment 2 or 3 days. He is beginning his 4th week. Complicating things is the fact that I inured my left knee on vacation and am taking my own pain meds & feeling my own pain. Another complication is that I work for myself as a psychotherapist and lose money every time I take off work to go to doctor's appts. I really have to be there because his hearing is bad even with his hearing aids and I want to make sure he really understands what the doctor says. The money part is more troubling to him than to me. He is retired so he is paid whether he is working or not. I feel very confident sometimes and very overwhelmed other time. We have been married 6 years (third and very successful marriage for both of us). I had melanoma 3 or 4 years ago that never spread to the lymph, so technically I am a survivor but don't really thing I earned the title because I didn't have to endure chemo or radiation.

We care about your feedback. Let us know how we can improve your CancerCompass experience.