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Heidic2004's Recent CancerCompass Activity

  • Heidic2004 has replied to a post on the message board

    Thank u for response is a chill pillow one with gel? I bought a cooling pillow but that didnt help. Now the heat got so hot tonight I just shut it off I need to have a little sleep

    August 01 at 10:25 AM view post
    • Heidic2004 has replied to a post on the message board

      I just started novocure ttf and really would like to hear from others. Honestly the alarm wakes me too much at night so not enough sleep my face feels sunburned im only 3 days in 

      July 29 at 7:11 PM view post
      • Heidic2004 has replied to a post on the message board

        I just finished my first round of temodar 280 5 days and my legs pelvis and low back hurt so bad I could hardly walk. It lasted only for a short time so I think it had something to do with it. I'm feeling good on my 23 day off scared to start next round. I hope your mom is doing better on her off as well prayers for you! Heidi

        June 23, 2013 view post
        • Heidic2004 has created a new message board discussion

          Hello everyone.  I am 5 months post rt temporal lobe craniotomy to debulk my oligodendroglioma 2/3 5 1/2 year survivor.  It has been such a rough road.  I would feel great if I did not have this big air/csf filled pouch still on the side of my head.  Has anyone had this particular issue?  I still get pain at one spot in particular of the incision site.   anyone??** Heidi :)

          February 03, 2013 view discussion
          • Heidic2004 has replied to a post on the message board

            hi i just had my oligo debulked rt temporal lobe.  I lost the peripherial vision on left side.  Its really frustrating Heidi

            September 10, 2012 view post
            • Heidic2004 has replied to a post on the message board

              hi.  I can guarantee it is the decadron.  Ive just weaned off the third time.  No one bothered to mention that caffeine is a big no no also while on it.  T his last time I remembered the nightmare it was but forgot the caffeine part until I was over exhausted and needed sleep since I just had my tumor debulked.  Its been almost 3 weeks and once I remembered to drop all caffeine it did get a ...

              September 10, 2012 view post
              • Heidic2004 has replied to a post on the message board

                Hello.  I was approvedright away. Heidi. oligo11

                September 09, 2012 view post
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                About Heidic2004

                Patient
                Brain Cancer
                Cancer Nutrition, Cancer Treatments, Clinical Trials and Research, Diet, Emotional Support, Spiritual Support

                I Was diagnosed with Oligodendroglioma II right temporal lobe and scattered throughout into left lobe. It is inoperable July 07. I had 30 rounds of radiation and now try live my life as normal as possible. I am a wife, a mother of 3 kids 14,20,23. update aug 2012 had tumor debulk due to enhancements. 70% removal. getting ready to start temador for the first time.

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