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Heidic2004's Recent CancerCompass Activity

  • Heidic2004 has replied to a post on the message board

    I just finished my first round of temodar 280 5 days and my legs pelvis and low back hurt so bad I could hardly walk. It lasted only for a short time so I think it had something to do with it. I'm feeling good on my 23 day off scared to start next round. I hope your mom is doing better on her off as well prayers for you! Heidi

    June 23 at 12:49 AM view post
    • Heidic2004 has created a new message board discussion

      Hello everyone.  I am 5 months post rt temporal lobe craniotomy to debulk my oligodendroglioma 2/3 5 1/2 year survivor.  It has been such a rough road.  I would feel great if I did not have this big air/csf filled pouch still on the side of my head.  Has anyone had this particular issue?  I still get pain at one spot in particular of the incision site.   anyone??** Heidi :)

      February 03, 2013 view discussion
      • Heidic2004 has replied to a post on the message board

        hi i just had my oligo debulked rt temporal lobe.  I lost the peripherial vision on left side.  Its really frustrating Heidi

        September 10, 2012 view post
        • Heidic2004 has replied to a post on the message board

          hi.  I can guarantee it is the decadron.  Ive just weaned off the third time.  No one bothered to mention that caffeine is a big no no also while on it.  T his last time I remembered the nightmare it was but forgot the caffeine part until I was over exhausted and needed sleep since I just had my tumor debulked.  Its been almost 3 weeks and once I remembered to drop all caffeine it did get a ...

          September 10, 2012 view post
          • Heidic2004 has replied to a post on the message board

            Hello.  I was approvedright away. Heidi. oligo11

            September 09, 2012 view post
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            About Heidic2004

            Patient
            Brain Cancer
            Cancer Nutrition, Cancer Treatments, Clinical Trials and Research, Diet, Emotional Support, Spiritual Support

            I Was diagnosed with Oligodendroglioma II right temporal lobe and scattered throughout into left lobe. It is inoperable July 07. I had 30 rounds of radiation and now try live my life as normal as possible. I am a wife, a mother of 3 kids 14,20,23. update aug 2012 had tumor debulk due to enhancements. 70% removal. getting ready to start temador for the first time.

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