Hopefuljen

Hopefuljen's Recent CancerCompass Activity

• Hopefuljen has created a new message board discussion

  I am a control freak, I need to know exactly what is going to happen. My amazing Dad is nearing the end, after 2 1/2 yrs he is a mere shell of the man he used to be. Bedridden, cannot walk, cannot sit up, can barely get out a whisper. How long will he suffer, how long can his body fight? He claims he is not in pain. But I can see it on his face. I cannot understand why this happened. I am angry, hurt and upset.

  February 10 at 10:15 PM view discussion

• Hopefuljen has replied to a post on the message board

  I am so sorry to read about your mum, My Dad has been battling this monster for 2 yrs and 8 months. (Right frontal lobe gbm) He fought like hell and now too the time has come to say goodbye. He is in hospital now, cannot walk, no balance, left side is completely gone, cannot swallow thin liquids and only whispers and always has the need to pee. Most of the time he just stares, with very little interaction only mes...

  February 10 at 5:51 AM view post

• Hopefuljen has replied to a post on the message board

  Sorry for my spelling. Supposed to read treat brain tumours, and bowel cancer.

  January 14 at 1:08 AM view post

• Hopefuljen has replied to a post on the message board

  It seems its only expensive to great brain tumours, bowl cancer is a different story, go figure! I cannot imagine your pain, I wish you all the best, I hope your hubby gives it a go, why the heck not, can't hurt. Jen

  January 14 at 1:07 AM view post

• Hopefuljen has replied to a post on the message board

  What does Ritalin do??

  January 13 at 11:20 PM view post

• Hopefuljen has replied to a post on the message board

  Hi haven't tried Avastin yet, the oncologist will be deciding today what (if any) type of treatment to do next. Avastin is very $$$ in Aust. Around $3000 an infusion, not that that matters, if there is a chance it may help we will get it. I guess at this stage with all other issues we need to do what is best for quality of life, as much as its hard to deal with, I think there isn't much medical science can r...

  January 13 at 11:19 PM view post

• Hopefuljen has replied to a post on the message board

  Thanks Amy. Whilst i am a catholic, I don't go to church, I do believe in god however, I may just get that book, can't hurt! Take care Jen

  January 11 at 10:41 PM view post

• Hopefuljen has replied to a post on the message board

  Wow Matt that story just sucks! Vent all you like, I'm a realist - best thoughts to you and your son, (what is his name) I will keep you posted as to what's going on, It's sad but also reassuring to chat to someone who has anything to do with this awful thing. I don't think there is an answer, just a realisation that life needs to be lived to the fullest. Take care Jen xx

  January 11 at 7:20 AM view post

• Hopefuljen has replied to a post on the message board

  Thanks Matt, along with sadness is anger,!! He is on dex already. I guess I will know more on Monday when they go back to oncologist. Thanks for your positive input. :)

  January 11 at 6:03 AM view post

• Hopefuljen has replied to a post on the message board

  Wait for the oncologist to talk to his colleague. No to avastin, is there any point, anyway?

  January 11 at 5:11 AM view post