I was diagnosed with Multiple Myeloma October 2006. At that time I had spine surgery for a large tumor on the spine. Had a Stem Cell Transplant March 2009 at MDAnderson in Houston. I am in remission at present time. Started on Thalomid for maintenance on January 20, 2010. I started with a 200 dosage and was dropped to 100 and then on 50 due to my Platelets dropping. I have currently switched to Revlimid 5 mg for maintenance.
Update: In March 2011 my test results showed my plasma cells have returned and possibly myeloma is back. Increase of Rev to 25mg and Velcade w/dex was done for one cycle with good results then a second cycle of Rev 25mg and Velcade. I completed 4 cycles of Rev 25 mg and Velcade and should be back in remission. Update: In November 2011 counts were acting up so they added dex 20 mg once a week with the Rev 25 mg and I have been back in remission once again.
Latest Update June 2013: Last Nov/Dec I was in the hospital with lung problems and infections. While on antibiotics I stopped my maintenance Rev/Dex. I have been off maintenance now 7 months. Counts are still holding good and both my oncologists agree to continue to keep me off Rev/Dex unless there is change in my counts.
Update: August, 2013: It finally happened after being off maintenance 10 months my Kappa Light Chain has increased from 40's to 178. Waiting for treatment plan from both my doctors. Most likely will be Velcade for 4 cycles.
Update: Nov. 2013. After being off Rev/Dex for one year I am now on Velcade shots twice a week for two weeks and one week off. I am on my second cycle now and blood labs are showing a good response. Kappa Light Chains went from 1237 to 414. I will do three more cycles after this one then go on maintenance Velcade.
Update: Velcade wasn't working so after one month break was put on Kyprolis with Dex and now Cytoxin has been added.
New update 3/2015: After being on Kyprolis/Cytoxin and Dex for a year we have decided that it was not working for me. My last lab reports showed increase in mumbers again so I am off it now. I just started back on Revlimid 25mg with Dex 20 mg two times a week.