JOE2010

I was diagnosed with stage 4 Mantle cell lymphoma in March of this year , and have been battling to achive some kind of remission, have had a dozen or so of different cycles of chemo and now am close to the point to make a decision whehter to have a SCT, has anyone out there had this done? I need some input, Please if you have had this done, can you let me know the outcome.....and what is in store for me, just looking for some honest dialouge

Thanks, Joe

I have heard the very same thing that cancer cells feed well off sugar, from many sources health , nutrition but no doctors  then the questions are ;

Do medical facts support this?

Has research been done?

if so then why aren't Doctors passing this info to patients?

I for one am going to ask the team of doctors (Shands teaching hospital) when I am addmitted to my 2nd round of RICE chemo treatment on Sept 28th , I will poll and post what all 14 doctors say .

Joe

Hope is what I need NP, as soon as my better half signs me up I will see you there

Joe

thanks , I will check it out, it is good to hear of your good 3 yr span

Joe

I am afraid I am giving up hope , my support at home is nearly non existant

thank you for your response

I was diagnosed with MCL stage 4 in March of this year, it presented itself throughout my lymph system but mainly in my abdominal region, suffered a G.I. bleed in doctors office during marrow biopsy and was rushed to hospital and recived 15 units of blood and a regimen of R-chop chemo was started immed. my last cycles of R-chop was in June. In Aug i went for a petscan / ctscan which revealed a relapse, scheduled stem cell consult and immed start of R.I.C.E chem that started Sept 7 th my transplant doctor said i can only recieved donor transplant due to involvement in my marrow also. I just completed the first round of R.I.C.E and had an endoscopy this morning to see the progress of the cancer in my stomach area. results revealed several areas of additional involvement including the original site of bleeding. they took biopsies while there to have a positive diagnosis once they do they will tell me the next course of treatment.

has anyone had simular involvement and can tell how there treatment went...........Thank You

Iwas diagnosed with Stage 4 mantle cell in March and like your husband I have reflected on all the silly and needless aguements I have had with my with over the last 30 years and for the sometimes unbearable depression I go thru on a daily basis..........she truly is my soul mate and I am sorry for the pain and stress this has caused her......I LOVE her with every fiber of my being.....May GOD bless us all

Joe

where are these pills available and what is their cost?

Hi , i was diagnosed with mantle cell lymphoma in march of this year and have alot more experience in this area than I care to have, you say his has a bump on his back, is there any other areas that have these bumps? such as his neck ( front and back) or his groin area? sometimes a bump is just a bump, but he needs to have it looked at, no reason at this point to be scared. If it does turn out to be Lymphoma they willl tell you what kind and the course of treatment. the only thing I can tell you , is to be there for him , it is okay to be emotional but he will need all the support he can get, get him involved in this and other sites so he can better understand from other people who have it what to expect and to just have a safe place where he can unload all the emotions that come attached to a diagnois. if therte is any way I can help you let me know

GOD BLESS

Joe

Hi, my name is Joe I am a 55 yr old married male, i was diagnosed with stage 4 mantle cell lymphoma in March of this yr, when was your sister diagnosed and what stage is her cancer , if there is any way i can help you, questions , etc please let me know . I will try to ease your mind and answer questions you might have

Joe