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JUNIEMOOTS's Recent CancerCompass Activity

  • JUNIEMOOTS has replied to a post on the message board

    You are very lucky, john.  You can cross transplant bridge when u come to it.  20% of cmml patients will end up with acute leukemia (on of them is me) - a transplant is only chance for cure.  Timing is everything.  If  a transplant is in offing, best to get while younger and less sick - something to keep in mind. Regards June  

    April 10 at 6:00 PM view post
    • JUNIEMOOTS has replied to a post on the message board

      You can thank linda, an e-mail friend and patient who takes the time to post my mass e-mails to friends/family to update cancer compass.  I'm happy to be of any help i can.  I am a cmml patient who morphed into acute leukemia.  They are achieving many cures now.

      April 09 at 10:05 PM view post
      • JUNIEMOOTS has replied to a post on the message board

        FIRST OF ALL, IF THE HOSPITAL FEELS YOU WILL BE THE BEST DONOR, THEY WILL CONTACT YOU AFTER A DNA TEST IS TAKEN.  I'M SURPRISED YOU DIDN'T GET A DNA SWAB KIT FROM THE HOSPITAL - THAT IS HOW YOUR SUITABILITY AS A BONE MARROW/STEM CELL DONOR IS DETERMINED.  I DON'T KNOW WHERE A BLOODTEST WOULD ENTER THE PICTURE UNLESS THERE'S SOMETHING I DON'T KNOW BECAUSE I AM NOT FAMILIAR WITH MYELOFIBRO...

        March 16 at 10:51 PM view post
        • JUNIEMOOTS has replied to a post on the message board

          I AM 71 AND CURRENTLY IN REMISSION FROM AML AFTER 2 ROUNDS OF AGGRESSIVE CHEMO.  MY DOCTORS AND HOSPITAL ARE AT HACKENSACK U. HOSPITAL IN NJ, AN IMPORTANT TRANSPLANT CENTER.  I WILL BE RECEIVING A STEM CELL TRANSPLANT IN ABOUT 2 WKS FROM MY SISTER WHO IS ONLY A 50% MATCH.  HOWEVER, THEY HAVE BEEN HAVING GREAT SUCCESS WITH THIS SIBLING TRANSPLANT.  THE MAIN DANGER AS I HAVE BEEN TOLD IS THAT SINCE ...

          March 15 at 1:57 PM view post
          • JUNIEMOOTS has replied to a post on the message board

            I, TOO, HAD A VERY ENLARGED SPLEEN (ABOUT 10 LBS.) WHEN I HAD CMML.  HIS BLASTS ARE VERY HIGH.  MY CMML HAS NOW MORPHED INTO ACUTE MYELOID LEUKEMIA (HAPPENS IN ABOUT 20% OF CASES).  AFTER 2 MONTHS IN HOSPITAL AND 2 AGGRESSIVE CHEMO ROUNDS, I AM IN REMISSION AND WAIING FOR A STEM CELL TRANSPLANT TO TAKE PLACE AT END OF THIS MONTH. IT IS MOST IMPORTANT FOR HIM TO GO TO THE MOST EXPERIENCED DR.S AND ...

            March 15 at 1:24 PM view post
            • JUNIEMOOTS has replied to a post on the message board

              I AM 71 AND AWAITING A STEM CELL TRANSPLANT FROM MY SISTER WHO IS ONLY A 50% MATCH.  HOWEVER, SINCE JOHN HOPKINS "BROKE THE CODE" (WHATEVER THAT MEANS!) THE RISK IS ONLY 2-3% LESS THAN A 100% MATCH.  I HAVE HAD 2 ROUNDS OF CHEMO - FIRST DIDN'T DO MUCH TO BLASTS SO THEY DID A MORE AGGRESSIVE ROUND HERE AT HACKENSACK UNIVERSITY HOSPITAL.  WILL GET A BONE MARROW BIOPSY SOON TO SEE HOW THAT WORKED OUT AND ...

              March 01 at 1:48 PM view post
              • JUNIEMOOTS has replied to a post on the message board

                HI, I'M GOING THROUGH THE SAME THING NOW.  JUST HAD A 2ND ROUND OF CHEMO (MORE AGGRESSIVE)  BLOOD TESTS WERE GOOD BUT THE BMBIOPSY TELLS THE REAL STORY, AND MY BLASTS WERE VERY HIGH.  I'M HOPING TO GET A STEM CELL TRANSPLANT   SISTER IS 50% MATCH.  I'VE BEEN IN HOSPITAL SINCE JAN.6 WITH THE EXCEPTION OF 1 WK AT MY BROTHER'S WHOSE MY CARETAKER. KEEP THE FAITH! JUNE 

                February 18 at 12:39 AM view post
                • JUNIEMOOTS has replied to a post on the message board

                  DON'T BE SCARED.  JUST FOLLOW THE ADVICE THE DOCS GIVE YOU RE CERTAIN FOODS, STAYING AWAIY FROM SICK PEOPLE.  I WILL BE GOING TO MY BRO'S AGAIN AFTER DANGER OF STORM IS OVER.  CHEMO IS EASIY WITH ANTI-NAUSEA MEDS.  YOU'LL BE FINE - IT'LL BE EASIER THAN U THINK. BLESSINGS, JUNE

                  February 11 at 9:27 PM view post
                  • JUNIEMOOTS has replied to a post on the message board

                    HI SUE,  YOU'RE RIGHT - CMML IS NOT GOOD RARE DISORDER THEIY DON'T KNOW THAT MUCH ABOUT, BUT THERE'RE THINGS THAT CAN BE DONE AND YOU CAN GO INTO REMISSION AND EVEN PAST THAT.  MY BLASTS WERE BETWEEN 20-30 AFTER FIRST CHEMO - NOW FINISHING UP 2ND CHEMO ROUND HOPING TO LOWER BLASTS I- WILL GET ANOTHER BM BIOPSY IN A WEEK OR SO TO DETERMINE IF WE CAN GO AHEAD WITH STEM CELL TRANSPLANT.  HOWEVER, IF WAS T...

                    February 11 at 2:59 AM view post
                    • JUNIEMOOTS has replied to a post on the message board

                      DEAR V: THANKS FOR THE PRAYERS - I TRULY BELIEVE THEY HELP. JUNE

                      February 04 at 10:44 PM view post
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                      About JUNIEMOOTS

                      Survivor
                      Cervical Cancer

                      IIIB cervical cancer survivor 6.5 years - now have CMML - had 5 cycles of Vidaza - not working well, now on hydroxyurea and doing well - waiting for a donor for a stem cell transplant. practice yoga and exercise regularly, although fatigue has slowed me down.

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