Partners even more likely than survivors to experience fear and worry over long term, study finds
Hi, dan: i love your positive attitude. I know the host vs graft disease is one of the risks with a transplant from a donor - but better than the alternative! You seem to have a strong inner strength which i am also blessed to have.
I will keep fighting as you do!
I am very happy to hear you are doing so well! When your doc says he doesn't need to see you for a year, does that mean you're stopping the vidaza? It looks like you were "stable" (not requiring treatment for quite awhile before starting on the vidaza. I would assume you have to keep taking the chemo, even though you have improved? I am only on my 2nd cycle this week, and so far, wbc's have g...
Hi, Dan: I am very interested in your bone marrow transplant. Did you have a donor very closely matched? Where did you have the transplant done? You are very blessed -- I've been told transplant is not in the cards for me -- too risky.
All the best,
I have CMML (70 yr old female) and just started chemo with Vidaza - it is my understanding there are only 2 drugs that are used - Vidaza and Dacogen(spelling?). Sometimes Gleevac is used for certain chromosome abnormalities with CMML. MD Anderson Hospital in Houston is a great hospital - and there's a hospital in Little Rock, Arkansas (can't remember name- but is world renowned) which has great succe...
There's a middle-aged gentlemen in my leukemia group with MCL who had a recent successful stem cell transplant and is doing quite well.
Good luck and blessings to you.
Hello, Sorry to hear your boyfriend has been diagnosed with CMML. The usual course is to wait until blood parameters get so out of whack that treatment must be started; I assume this has happened. Stem cell transplants don't work very well with CMML as you can't use your own stem cells but must find a donor which is riskier. However, Vidaza is a good chemo for this. I just started m...
Glad to hear you're doing OK. I'm feeling stronger this week. Went to my support group last night and brought up the subject of suspending treatment if blood parameters improve significantly. My CMML friend said she brought that up and it cannot be done, as if it's suspended for too long, it doesn't work anymore; but after her 4 yrs of treatment with Dacogen, they will be extending her "off" time to...
Hi, Susan: I know you've been in clinical trials for the pill. What scares me, is when you take a pill instead of infusion, the coverage may change drastically, such as with Gleevac which is a pill and costs about $2000 a month unless you make a deal with the company. Anyway, because I take an infusion and it's done in a chemo suite, it's covered by Medicare. How are you doing? The last ...
Startedfirstcycle Vidaza chemo 2 wks. ago. 5 days infusion, then 3 wks off, then repeat every month ad naseum. First bloodtests showed WBC's down then up; other parameters improved; others got worse, but doc pleased enough not to order another bloodtest this past Monday. Yesterday, all of a sudden it seems, I felt strangely alert and more myself. Less fatigued. Has this happened to anyon...
How are you doing? There is a man in our group who has AML and had a transplant and is doing well.
IIIB cervical cancer survivor 5.5 years - now have CMML - just started chemo (Vidaza)practice yoga and exercise regularly, although fatigue has slowed me down.
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