Loading...

Joanie33's Recent CancerCompass Activity

  • Joanie33 has created a new message board discussion

    I wrote in a long time ago asking for advise to relieve pain in neck caused by radiation treatment after having the mandable ? removed. nothing worked Are there any new sugestions that may help ? Apart from the side of my neck, the tightness ( noose I call it ) goes from under my chin  right down past the adams apple It is unbearable.I had another dilation last week, but that isnt meant to help fibrosis as we al...

    December 11, 2012 view discussion
    • Joanie33 has replied to a post on the message board

      Thank you Charles for your mail re the lung cancer . I just saw your new message about your having another tumor in the right lung. I told you my husband had the complete lung removed ,but that lung was the one he also had the upper lobe removed from -----TEN years before. He had a very good run with that length of time, and yes , when it did return and they took the whole thing, he has done quite well really. It is ...

      September 10, 2012 view post
      • Joanie33 has created a new message board discussion

        I would like to find out if anyone has had a complete lung removed. ? My husband had it done ( his right lung ) along with five ribs  on Dec 29th-2011. He gets lots of pain in the rt shoulder and still has coughing spells, though a Pet scan is showing no signs of cancer anywhere in his body . I am a member of Cancer compass myself under the head and neck section,but I would like any replies for my husband under...

        September 05, 2012 view discussion
        • Joanie33 has replied to a post on the message board

          Hi bobbykins.Can you explain a little more on what your simptoms are for the problem you are told is called wooden neck ! I have a very painful neck and had 4 throat dilations . My treatment finished July 4th 2008.  I`m told mine is fibrosis now.,and there is no cure . I just wonder if you explain to me more that may be what you have . I have never heard of wooden neck !!           &nbs...

          September 01, 2012 view post
          • Joanie33 has replied to a post on the message board

            Hi Debbie, We sound to be suffering very much the same. I had my jaw bone removed and a leg bone put in it`s place, followed also by radiation.My saliva glands were ruined with the radiation,so my mouth is also constantly dry. I don`t get enough sleep either because I have to get up so often during the night. I am so sorry for you Debbie because all your discomfort started early after the treatment was over. At leas...

            June 21, 2012 view post
            • Joanie33 has replied to a post on the message board

              Hi Roger, Thanks for your reply . My husband and I  say all the time," We know the cause of the problem ,but after all these years, wouldn`t you think they might have come up with something to ease people`s pain a little " ?? I didn`t have chemo, just radiation,but I was burned so badly my left shoulder muscles are completely gone. Clothing simply wont stay on that shoulder.  I will look for the book you ...

              June 21, 2012 view post
              • Joanie33 has replied to a post on the message board

                Hi Mark,  I agree, I can`t understand the lack of complaints either. I`m told that the fibrosis in the neck is spasms in the muscles. There is no cure for them and it can get worse !!!  Do you have the feeling of a noose around the neck that just gets tighter and tighter ??  I don`t know what your original problem was, but I presume you had radiation that has caused this ......right ? I cannot take...

                June 20, 2012 view post
                • Joanie33 has created a new message board discussion

                  I wrote in almost a couple of years ago on this subtect  regarding the terrible neck pain caused by radiation.I got some advise from others,but none of their sugestions worked for me . Actually it is 4yrs now since my surgery and radiation was finished . I just wonder if since I asked for help, anyone has come up with any other " tips " they could share with me  that may help. My pain just gets worse !! &nb...

                  June 19, 2012 view discussion
                  • Joanie33 has replied to a post on the message board

                    Ian, I did try and send a reply, but i have no idea what is suddenly happening !! Will you just let me know if you got it.It was regards dilation ? I`m driving my husband crazy  Ah

                    May 05, 2012 view post
                    • Joanie33 has replied to a post on the message board

                      Hi,Me again.   ....I found out I had cancer after having a tooth pulled .The hole just wouldn`t heal,plus I had a tiny white spot on the floor of my mouth.I saw my GP who decided to send me to an ENT. A biopsy was done and I was told it was cancer...... but very early stage ( I hate to think what I would have gone through had it been late stage AH )  It had gone into the jaw bone .I was told it was very eas...

                      May 05, 2012 view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About Joanie33

                      Survivor
                      Bone Cancer
                      After Treatment

                      I had surgery for bone cancer in lower mandible,had radiation treatment which caused fibrosis in neck and throat which affects swallowing and causes pain. Has anyone out there had the same thing? and is there any advice. Joanie33

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.