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Julesalso's Recent CancerCompass Activity

  • Julesalso has replied to a post on the message board

    Hi Bob For what it is worth I started off with a blocked ear that wouldn't unblock easily.  Then it moved onto being an ear ache and then facial neuralgia on the same side.  I was given medication for the neuralgia which continued to get worse until my throat started to get sore and that was put down to thrush.  Later when I couldn't swallow a tiny tablet they diagnosed T4 N2 base of the tongue cancer...

    March 02, 2013 view post
    • Julesalso has replied to a post on the message board

      Due to the position of your radiotherapy it might be worth looking into how to keep the skin away from skin - if that makes sense.  I had all my lymph glands removed from my armpit years ago, although no radiotherapy to the area.  It is a pretty tough op to get over!  TOok me a while to get my arm moving again but it eventually did with some gentle and frequent work.  You can also get burn dressin...

      February 24, 2013 view post
      • Julesalso has replied to a post on the message board

        GOod luck with that ... skin care is important to start as soon as you start your radiation.  :)  I used to use saline soaks ... make up a bottle of saline water and leave it in the fridge and used sterile face cloths and just leave it on the area that was getting hit.  Take care Julie

        February 23, 2013 view post
        • Julesalso has replied to a post on the message board

          Even if saliva returns the properties of it change, according to what I have been told.  If anyone has their own teeth it is important to have good oral hygiene.  Most seem to do high flouride in some way, either gel trays or toothpaste.  Personally, I use a swedish tooth brush and high flouride toothpaste twice daily and in between I use a sensitive toothpaste.  I carry a tooth brush and toothpas...

          February 23, 2013 view post
          • Julesalso has replied to a post on the message board

            Melanomore Yw, where are you at with it all?  Have you had treatment? Julie

            February 21, 2013 view post
            • Julesalso has replied to a post on the message board

              Hi Fisherman Don't listen to statistics.  I am a 24 year survivor of amelanotic melanoma - secondaries in the lymph system with no known primary.  :)  Was initially told it would possibly be a month!  Now I am T4 N2 Base of Tongue cancer person.  I had cisplatin followed by radiotherapy and cetuximab.  No surgery as that would have meant taking my vocal chords and they tried to avoid t...

              February 21, 2013 view post
              • Julesalso has replied to a post on the message board

                Hi melanomore I dont have any experience with your particular cancer but it is hard having a rare cancer.  Hopefully you can take heart in that we have all been diagnosed and had that experience and can at least relate in that way. :) Julie

                February 21, 2013 view post
                • Julesalso has replied to a post on the message board

                  Hi Mary I cannot really help with saliva production as that is up the gods.  It may or may not come back.  In the meantime biotene is usually considered one of the best products to try although some have used others and gotten good results.  Saliva production post treatment waxes and wanes a bit also, aswell as taste buds.  Your husband might find using a camelback a good thing as it can be place...

                  February 21, 2013 view post
                  • Julesalso has replied to a post on the message board

                    Susan Congratulations on reaching the two year mark! Julie

                    February 18, 2013 view post
                    • Julesalso has replied to a post on the message board

                      Geees Dave and I thought you would have been here in west aus by now :D

                      January 10, 2013 view post
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                      About Julesalso

                      Patient
                      Tongue Cancer
                      Cancer Diagnosis, Cancer Nutrition, Cancer Treatments, Diet, Radiation, Side Effects, After Treatment

                      Ok, I live in western Australia south of perth just outside a place called Bunbury. :) This is not my first time having cancer. I was first diagnosed 21 years ago with amelanotic melanoma. I was then diagnosed as having ms ... non remitting kind i believe after 4 - 5 years with no further involvement. Now i am doing the cancer thing again with a squamous cell carcinoma on the base of my tongue. Not absolutely sure just yet if there is any involvement with lymph glands or not. I sound a bit vague about this and i am. I had a very terrible time prior to getting treatment for this cancer and have just finished. To date it seems like i am getting some taste back again after one week out of radiation.

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