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Kejnah's Recent CancerCompass Activity

  • Kejnah has created a new message board discussion

    We did folfirinox for 11 rounds, no evidence of spread on CT, went to try the nanoknife but when they looked with the laparoscope, there were implants on the liver and stomach...now what? 

    December 13 at 10:02 PM view discussion
    • Kejnah has replied to a post on the message board

      Hi, Naomi-- my dad got hospitalized with new onset diabetes and they found a mass about a month or two later.  I would check into what surgeon you are going to use.  If they end up having to do any type of large and involved surgery, it is of the utmost importance to find a center that does it quite often.  I pray for you and your family that it is not cancer. 

      August 31 at 4:23 AM view post
      • Kejnah has replied to a post on the message board

        I'm so sorry.  You and your family are in my prayers.

        August 25 at 2:49 PM view post
        • Kejnah has replied to a post on the message board

          My dad said he gets the same thing because I've called him while he is doing chemo and he sounds slurred and says it feels like his tongue doesn't move very well.  They give him magnesium and calcium infusions before he gets the chemo as well as atropine and he said that helps a little bit.  So far the oncologist hasn't been too worried about it.  Has your mother in law had any problems with hiccups?

          August 25 at 3:20 AM view post
          • Kejnah has replied to a post on the message board

            Hey, Sheann glad to hear you're doing well!  My dad just finished #2 and we are starting to have some problems with tenesmus (rectal cramping).  He tried the Creon and that hasn't really helped.  Did you have these problems?  Any advice? He had to get Neupogen shot as well.  Up til now, he was actually doing really well with the exception of some cold beverage intolerance.  Thank you and...

            June 30 at 4:24 PM view post
            • Kejnah has replied to a post on the message board

              My dad just finished 2nd treatment of folfirinox-- he was actually doing really well except for some problems with cold water.  After his second tx they gave him Neupogen and then they started him on some Creon...and then for the last 3 days he has been having tenesmus (cramping of the rectum).  Has anyone else had this??  Any advice?  I wish Delaware allowed medical cannabis-- I think it wou...

              June 30 at 4:21 PM view post
              • Kejnah has replied to a post on the message board

                Hi, Dave-- thank you for your prayers.  Now's the time that we all need them.  My dad was originally thought to be resectable based on CT imaging but when they went in, there was significant portal vein involvement PLUS liver mets.  I am confident in our surgeon and he really did attempt to resect the mass but he was unable to do so without significant intraoperative risk.  They did a palliative b...

                May 05, 2012 view post
                • Kejnah has replied to a post on the message board

                  Thank you for replying.  It is so hard to try and figure out which "poison" to pick for my dad.  One of the best surgeons in the country tried to perform the Whipple, but because of portal vein involvement (which he can reconstruct) PLUS liver mets, he decided that our best bet would be chemotherapy along with a palliative bypass.  The path showed mucinous adenocarcinoma.  We are doing the officia...

                  May 05, 2012 view post
                  • Kejnah has created a new message board discussion

                    Having some minor panic/buyer's remorse about our dad doing Folfirinox (we have not started yet...or decided which state where we will be doing treatment).  Do we go straight to clinical trials?  Do we start with the Folfirinox?  Any advice is helpful.  Also, make sure you talk to your Congressperson about The Pancreatic Cancer Research and Education Act (HR733/S362).   We need more fu...

                    May 02, 2012 view discussion
                    • Kejnah has replied to a post on the message board

                      Excellent news!  Congratulations!  My prayers for a good result with the vaccine!

                      May 02, 2012 view post
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                      About Kejnah

                      Caregiver, Doctor
                      Pancreatic Cancer
                      Acupuncture, Alternative Treatments, Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Diet, Local Hyperthermia, Massage Therapy, Naturopathic Medicine, Supplements, Conventional Treatments, Genetics, Side Effects, Support

                      My 57 year old dad was just diagnosed with stage IV pancreatic cancer. He has had no pain, no jaundice, and only a small amount of weight loss. His only symptom was sudden onset diabetes. He is very healthy. An attempt at a Whipple was made, but unfortunately at the time of resection, several very small liver metastases were noted. The final pathology was mucinous adenocarcinoma. A palliative gastrojejunostomy and hepaticojejunostomy were performed as was a celiac plexus neurolysis procedure. At this point, we are interested in pursuing chemotherapy.

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