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Kelly5's Message Board Messages

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AML

by Kelly5 - February 07, 2013

I have AML, systemic mastocytosis, and Hep C. I was diagnoses with the AML march of last year, I'm hoping for a transplant soon, otherwise I am told I do not have long to live. My AML is much more agressive then they first thought and I never stay in remission for long at all after chemo, it is always for less then a month. So my only choice is a bone marrow transplant. No on in my family was a match so they are looking for a match in the data bases they use. It is risky for me to have the transplant because of the Hep C, yet there again it is my only choice if I want to live for any length of time. Please if anyone has any advice, or something to say that might help please do reply.

AML

by Kelly5 - February 07, 2013

I have AML, systemic mastocytosis, and Hep C. I was diagnoses with the AML march of last year, I'm hoping for a transplant soon, otherwise I am told I do not have long to live. My AML is much more agressive then they first thought and I never stay in remission for long at all after chemo, it is always for less then a month. So my only choice is a bone marrow transplant. No on in my family was a match so they are looking for a match in the data bases they use. It is risky for me to have the transplant because of the Hep C, yet there again it is my only choice if I want to live for any length of time. Please if anyone has any advice, or something to say that might help please do reply.

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About Kelly5

Patient
Leukemia - (AML)
After Treatment, Emotional Support, Spiritual Support

I was diagnosd with AML March 3rd 2012, it is almost a year later now. During this past year I have not been able to stay in remission for any length of time. When I was diagnosed with AML they also found systemic mastocytosis, and I have a history of Hep C. The combination makes me a hard candidate for a bone maarrow transplant, yet I need one in order to survive any length of time. I'm willing to do whatever it takes to live, I'm scared and looking for advice.

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