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Krissalee85's Message Board Messages

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My labwork says "Immunofixations- No Bands Detected".

I'm not sure what the rules are for posting links in this message board, but I found this on a pathlogy website called Final Diagnosis- "Although Non-secretory multiple myeloma may not have a monoclonal protein in serum or urine protein electrophoresis, many of these (up to 75%) will have a positive sFLC,2implying a need to reclassify them as oligosecretory myelomas.3In 2006, the International Myeloma Working Group suggested that should patients be suspected of having myeloma lack the M-component, an abnormal FLC ratio on the sFLC assay might satisfy this criterion."

Thank you for your help in deciphering the meaning of my confusing results! I appreciate it very much. I hate feeling lost as to what is wrong with me. I also have brain cancer which is now in remission. I am wondering if that has had anything to do with the numbers. I've never had chemo or radiation or any other medications for it apart from a short time on steriods.

My kidney levels were normal though.

Hello everyone,

I recently had bloodwork done and everything was normal except for the Free Light Chain Assay. I didn't get any explaination of it from my doctor though so I have been researching it myself.

My results:

Kappa Free Light Chain- 0.71 (normal)

Lamba Free Light Chain- 0.21 (low)

Kap/Lam Free Light Chain Ratio- 3.38 (high)

The doctor wrote in a note saying "Proteins in the blood need to be monitored".

Could this be and early stage non-secretory myeloma? Igg, Iga and Igm levels were normal. Calcium and Albumin levels were also normal.

When my tumor was found, I was told it was likely a benign lesion. I was having uncontrollable seizures so I had to have it removed in 2010. It was found to be a grade 2 mixed glioneuronal tumor that was infiltrating the surrounding brain tissue. This wouldn't have been detectable without surgery. Therefore, I would recommend having the tumor resected just to be sure that it is a grade 1. Since the surgery, I have had an MRI every 6 months and there has been no regrowth. I have had no other treatment. It is better to know for sure what is happening inside your brain!

Oops, the link didn't past correctly. Here is the correct link- http://www.elephantjournal.com/2013/10/life-before-brain-can

Hello everyone, I recently had an essay I wrote about having brain cancer published on elephantjournal.com . Here it is for anyone who would like to read it- elephantjournal.com /2013/10/life-before-brain-cancer-a-love-affair-with-the-past-karissa-kneeland/" target="_blank" rel="nofollow">http://www.elephantjournal.com /2013/10/life-before-brain-can


Karissa

Hello,

Do you know if your tumor has the 1p19q codeletion? If so, that is very good news as it means it is more responsive to treatments and has a slower progression rate. I have heard many stories of people who have been living with this type of tumor for 20 plus years!

I am also wondering about the MIB-1 proliferative index. It seems that grade 2's are usually less than 2%, but mine was 7.7%. How can a grade 2 tumor have such a high index?

I had a tumor growing in my left temporal lobe for about 10 years before being diagnosed when I was 23. Apart from a few partial complex seizures a month and anxiety, I felt fine. After surgery, I never felt myself again. I had my entire left anterior temporal lobe, amygdala, and hippocampus removed. This was my only treatment, no chemo or radiation. It is said to be a mystery glioma- a hodgepodge of mixed glioma and glioneuronal tumor components. It's a grade 2. I was told that recurrence is inevitable, but to go on with my life. But my life has felt like it has been put on pause since the surgery. I always feel as if I am filled with posion, or that I am fighting off germs. My eyes are always bloodshot and puffy, my head twitches and pounds, I am unable to sleep normally- I usually fall asleep, have a quick dream and wake up every hour, often I lay awake for hours every night trying to fall back asleep- I have no energy. My doctors dismiss me as depressed. I am aware of what depression is. I know that this is not what I am feeling. I have every desire to accomplish my goals and to go out and enjoy my life. I love to read and go to the movies, but my eyes always feel so tired I have to shut them. What I am feeling is frustration. I have also had a slew of food allergies/sensitivities come up- gluten, soy, dairy, caffiene. I can't handle any alcohol anymore- 1 glass of wine makes me feel like my head is going to explode. I just do not feel well enough to go out, apart from walking the dog. I am 27. I feel like I'm 87. I would like to know if anyone else has experienced this after brain surgery.

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About Krissalee85

Patient, Survivor
Brain Cancer
Acupuncture, Alternative Treatments, Cancer Diagnosis, Cancer Nutrition, Diagnostic Imaging, Diet, Emotional Support, Genetics, Image Enhancement, Insurance, Lifestyle, Naturopathic Medicine, Spiritual Support, Supplements, Surgery

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