Krissalee85's Message Board Messages

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My labwork says "Immunofixations- No Bands Detected".

I'm not sure what the rules are for posting links in this message board, but I found this on a pathlogy website called Final Diagnosis- "Although Non-secretory multiple myeloma may not have a monoclonal protein in serum or urine protein electrophoresis, many of these (up to 75%) will have a positive sFLC,2implying a need to reclassify them as oligosecretory myelomas.3In 2006, the International Myeloma Working Group suggested that should patients be suspected of having myeloma lack the M-component, an abnormal FLC ratio on the sFLC assay might satisfy this criterion."

Thank you for your help in deciphering the meaning of my confusing results! I appreciate it very much. I hate feeling lost as to what is wrong with me. I also have brain cancer which is now in remission. I am wondering if that has had anything to do with the numbers. I've never had chemo or radiation or any other medications for it apart from a short time on steriods.

My kidney levels were normal though.

Hello everyone,

I recently had bloodwork done and everything was normal except for the Free Light Chain Assay. I didn't get any explaination of it from my doctor though so I have been researching it myself.

My results:

Kappa Free Light Chain- 0.71 (normal)

Lamba Free Light Chain- 0.21 (low)

Kap/Lam Free Light Chain Ratio- 3.38 (high)

The doctor wrote in a note saying "Proteins in the blood need to be monitored".

Could this be and early stage non-secretory myeloma? Igg, Iga and Igm levels were normal. Calcium and Albumin levels were also normal.

When my tumor was found, I was told it was likely a benign lesion. I was having uncontrollable seizures so I had to have it removed in 2010. It was found to be a grade 2 mixed glioneuronal tumor that was infiltrating the surrounding brain tissue. This wouldn't have been detectable without surgery. Therefore, I would recommend having the tumor resected just to be sure that it is a grade 1. Since the surgery, I have had an MRI every 6 months and there has been no regrowth. I have had no other treatment. It is better to know for sure what is happening inside your brain!

Oops, the link didn't past correctly. Here is the correct link- http://www.elephantjournal.com/2013/10/life-before-brain-can

Hello everyone, I recently had an essay I wrote about having brain cancer published on elephantjournal.com . Here it is for anyone who would like to read it- elephantjournal.com /2013/10/life-before-brain-cancer-a-love-affair-with-the-past-karissa-kneeland/" target="_blank" rel="nofollow">http://www.elephantjournal.com /2013/10/life-before-brain-can



Do you know if your tumor has the 1p19q codeletion? If so, that is very good news as it means it is more responsive to treatments and has a slower progression rate. I have heard many stories of people who have been living with this type of tumor for 20 plus years!

I am also wondering about the MIB-1 proliferative index. It seems that grade 2's are usually less than 2%, but mine was 7.7%. How can a grade 2 tumor have such a high index?

I had a tumor growing in my left temporal lobe for about 10 years before being diagnosed when I was 23. Apart from a few partial complex seizures a month and anxiety, I felt fine. After surgery, I never felt myself again. I had my entire left anterior temporal lobe, amygdala, and hippocampus removed. This was my only treatment, no chemo or radiation. It is said to be a mystery glioma- a hodgepodge of mixed glioma and glioneuronal tumor components. It's a grade 2. I was told that recurrence is inevitable, but to go on with my life. But my life has felt like it has been put on pause since the surgery. I always feel as if I am filled with posion, or that I am fighting off germs. My eyes are always bloodshot and puffy, my head twitches and pounds, I am unable to sleep normally- I usually fall asleep, have a quick dream and wake up every hour, often I lay awake for hours every night trying to fall back asleep- I have no energy. My doctors dismiss me as depressed. I am aware of what depression is. I know that this is not what I am feeling. I have every desire to accomplish my goals and to go out and enjoy my life. I love to read and go to the movies, but my eyes always feel so tired I have to shut them. What I am feeling is frustration. I have also had a slew of food allergies/sensitivities come up- gluten, soy, dairy, caffiene. I can't handle any alcohol anymore- 1 glass of wine makes me feel like my head is going to explode. I just do not feel well enough to go out, apart from walking the dog. I am 27. I feel like I'm 87. I would like to know if anyone else has experienced this after brain surgery.

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About Krissalee85

Patient, Survivor
Brain Cancer
Acupuncture, Alternative Treatments, Cancer Diagnosis, Cancer Nutrition, Diagnostic Imaging, Diet, Emotional Support, Genetics, Image Enhancement, Insurance, Lifestyle, Naturopathic Medicine, Spiritual Support, Supplements, Surgery

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